Guestbook

You may use this Guestbook to show your support for the family
and send them greetings by adding an entry below.

talmengor
Continuing to pray for you Emerson and for your family.  It has been a long time since we have had an update...I miss reading about you.  I have been following your story and praying for you for many years.  May God bless you and embrace you and your family with strength, love and continued courage.
Lorelei
Hello, Does anyone have any updates on this sweet child?
Joan/NE
Please, if anyone knows how Emerson and her family are post to this guestbook. It's been so long since we've heard anything. I miss yo Emerson and Erica. I have been reading and praying for you from the beginning when you were first in Omaha. Arms around You, Joan/NE
Rebecca Kottman...
Are there any new updates since 2013? I logged on to see, and couldn't find anything from Erika any later than June of 2013 with some comments as late as December of 2013. How are things?
Coralie
Missing you as I'm not on facebook any more but continuing to pray for you all that GOD will be leading in all that is happening...with hugs and prayers from across the miles :)
Lorelei
I hope everything is okay for your sweet family...as there has been no updates in 6 months.
Sunshine
I hope Emerson had a good summer. I miss reading updates about her, but know that no news is probably good news :).
Anne Dennon
It's your special day Eme. HAPPY BIRTHDAY TO YOU. I hope this finds you doing very well and that you had a fun summer with your brothers. I think of you all the time and even though you have never met me, I consider myself lucky to be one of your many friends. Enjoy your day and be sure to give your Mommy a big hug. Much love from our home on Bainbridge Island, WA. Anne
Joan/NE
I hope you 2 are doing great. I check everyday, hoping to see an update.I still don't do facebook. Are you still in Omaha? Arms around You...Joan
Anne Dennon
Thinking of you all and sending love, prayers for strength along with support. Anne
Annette W
Thank you so much for the update. While I am sorry to read you will be in Omaha for the summer, I am so happy to see Eme is in good spirits and happy! That is worth a lot! As you said, with the boys out of school you will be able to have some time with them. A trip to Michigan, if it works out, would certainly be great for all of you! I still am in awe of you, Erika, and all you have learned, advocated, and done for your beautiful daughter. I think it is your attitude that is the most impressive....that is wonderful. Prayers always....Annette
annette
I sure hope Eme was able to discharge yesterday! Even talking about it is encouraging. Good Mother's Day gift:) I have to agree that between the Denver and the Omaha hospitals, Eme is in the best possible hands. I think, too, that our good Lord has a hand in it, too! My gosh, what different letters than not that long ago. As difficult as it will be for you with your required nursing, I know this is so much better than her being inpatient! Prayers for both of you, of course! Annette
Annette
What an awesome update with WONDERFUL thoughts and news! Your letter sure made my day to read of the improvements....and HOPE for the days to come! I laughed when I read about Eme entertaining the nurses...that is great. What a good feeling you must have after these past months... I think all the prayers of all those who know Eme's story are the reason for positive steps and hopeful feelings. And you are so, so right about your instinct, especially a mother's instinct. No one knows your daughter as you do. Again, thank you for the update, and as always, lots of prayers.. Annette
Anne Dennon
BEAUTIFUL, simply beautiful report. Thank you Erika. I will fly high on HOPE with you all.
Anne Dennon
How are things going Erika?
Linda
Praying for you Emerson!
Kay
I haven't ever left a comment or message before but I've been following Ashley, Emerson, and a couple of other children for several years. The resilience of these beautiful kids and the devoted love and caring of their families and the compassion and care given in various hospitals is an inspiration to us and a lesson in what is REALLY important in life. We pray for Emerson, Ashley, Kylie, and Lauren by name in our night prayers, along with our other intentions. Thank you for sharing so generously the journey with its ups and downs. You all are the real heroes in the world today. Whether we are healthy, or whether we are struggling, we are all in the hands of our Creator who knows all the whys and wherefores. May He bless you all abundantly in every way.
Annette W
I am so happy Eme is in Omaha. Certainly under the circumstances, they are the best to be able to figure out exactly what is going on. You absolutely made the right decision. Your words about the six years....how so wonderfully true. And not only for you, but for all those whose lives Eme's story has touched and changed for the better. I hope you are able to get some answers quickly..even today. Prayers for all of you, Annette
Anne Dennon
So Happy you are in Omaha. I know well what Eme has done for me - Surety in the Power of Prayer. And you Erika - that people like you exist! Thank you. Remaining prayerful. Anne
Annette W
Dear, dear Erika, I have been out of "computer touch" for a week. When I opened your first "quick preview" and then the awesome photos at Disney just now, I was so excited and happy for you, Eme, and the family. But my, how things changed after your whirlwind of activities. I am so sorry to read the very latest about going back to Omaha, though I absolutely agree it is the right thing to do. I hope as the day progressed today, that things changed and the flight is possible tomorrow or as soon as possible. Your beautiful words about life and children were so touching. How special both you and Emerson are.....as are the rest of your family. So many have learned from you. I am sure there are many who wish they had your strength, including myself. My prayers go out,too, for little Ashley. Thank you so much for posting to this site. Prayers, prayers, prayers..... Annette
Lorelei
Hello, I have followed Emerson and Ashley Kate's blogs for a while...both little girls have touched my heart. I have lost 4 members of my family to cirrhosis, but I still have no clue what you go through daily. Your children are in my prayers...and so are you.
Anne Dennon
Love goes out to you both through tears. Safe journey. Anne
Anne Dennon
Happy Easter Erika and Eme. Said prayers for you this morning at church. Of course you are in my prayers daily. So glad to hear from you. What a memorable trip to Disney!Your joy is contagious to us all. Thank you Disney people. Blessings, Anne
Sunshine
Thinking about you guys. Praying this morning for each of you. Sunshine
rrabbit1993
Hello Emerson, I hope you and your family have a magical time at Disneyland. It will be a blessing to have you all here in the park.  Lilly (Disney CM)
jeek01@gmail.com
*so happy indeed!  Each day is a blessing!  We love you all and look forward to a few pics and shared moments when you all return to Colorado after DISNEYLAND!!!!!!!!!!  BTW- Emily giggled so much about the Small World story- she could just picture cute little Eme packed and ready to go!* *Hugs and Kisses* *Erin and Emily Koesters*
Annette W
Mon morn Thank you for the newest post. Oh, it made me feel better for you! Fingers crossed (and prayers, of course!) for discharge Wednesday.....and sunny Disney on Friday. That is so great! Grab each day, enjoy each minute.....just as you said. Thinking of you, Annette
Annette W
Sat morn I hope you were able to get some sleep last night. The last days had to have been zapping, to say the least. Your information, thoughts, and words, while so heart wrenching, were so well said. I can not even begin to imagine how you are "holding it together", but I do pray for you to find the right words for Eme. I really do think she has more insight and understanding than we know..... I also pray you can get her home soon and then a trip to the magical world of Disney. For now just hold that sweet little angel. Always with prayers, Annette
Sara (Sarajack from LF)
I read this post late last night and remember falling asleep with tears in my eyes... But this morning, I couldn't figure out if I had a dream about it or if this was really true... I check these posts daily, and never know quite what to say. I am always praying for you, Emerson and your entire family....but it never seems quite enough. I remember when I first started following Emerson's story and was new to the world of liver disease, ect. one thing that kept things in perspective when I was falling apart, or when I was sweating the small stuff, was thinking of you two and what you were dealing with. I remember thinking (after reading an update), "Look at how strong Erika is, you need to be strong for your child too!" You have done so much for Emerson and your entire family...and I want you to know that you will be in my constant thoughts and prayers. **Hugs**
Jackie Tate
Read this with tears...being apart of Emerson's life, although never meeting any of you, has truly been a blessing. She has taught many of us so much. So have you Erika. Your blogs, words, are always well written, always detailed and so touching. It truly is a small world..hundreds of people and our hearts reaching out to you will be on that boat with you as you take Emerson on that ride..You are certainly in my thoughts and prayers...
Annette W
Thurs eve Oh, Erika, I am so sorry. My heart aches for all of you. I do not know what to say... You are so brave and such a wonderful person and mother. You and Eme are both angels....and I pray for strength in the days to come.... Annette W
Sunshine
I will be praying for you. I am so sorry. Sunshine
Annette W
Thurs morn Thank you for the update. I hope Eme had a restful evening after a tough day yesterday and YOU got some rest, too. I also hope the results come back quickly today with some answers. The prayers never stop....Annette
Anne Dennon
Thank you for the updates. Ongoing prayers continue and will throughout the night for Eme. She is very much in my heart. Anne
Annette W
Wed morn What a better cause for exhaustion.....fun times with the boys! That is great! I pray today goes well, and I am so happy Eme is "showing" her beautiful face! Thinking of you today (as always!).... Annette
Annette W
Sun eve. Hope you had a wonderful day with all three of your boys and got to absorb some of that Denver sunshine! I am so sorry to read what transpired since yesterday. But, yes, let the doctors...and God...make the decisions...and maybe Emerson, too. You being with her is what is important and knowing WITHOUT A DOUBT you have done all you could possibly have done...and in fact, still continue to do so. I pray that God wraps His arms around you and Emerson right now....for love, strength, hope, and peace. Prayers, Annette
Anne Dennon
Erika, I love the saying "If God is your co-pilot, switch seats."
bubbly
Hand more and more and more to God as only God has awesome plans for your baby and for the rest of the world. Completely depend, rely and trust God. I have started a prayer group here in Canada for your baby and your family. There are about 125 people in this group and we pray tons everyday for your baby and your family. Spend more and more and more time praying and it will all work out the way God wants it.
Anne Dennon
Just read your last two updates Erika. Please know I'm right there with you praying as this unfolds. May the peace of the Lord that passeth all understanding be with you. Love, Anne
Annette W
My dear Erika, I just read your last two letters. (It's Saturday late afternoon now) Of course everyone will be praying. In a way some of my prayers have been answered in that YOU are not being so tough on yourself about what steps to take, what decisions to be made, etc. And you are taking, as you said, an emotional break right now and having some fun with the boys. You need and deserve to do that. Your words about dear Eme were so touching...what a special mother you are..... Prayers, prayers for strength.....Annette Annette
Annette W
First of all, thank you so much for the picture of your beautiful Valentine! I am so sorry to hear, though, the news today....such difficult, heart-wrenching choices to be made. My deepest prayers for strength to help with your decisions. I am thinking of you with hope..... Annette W
Anne Dennon
Erika, I have chills over this news ... will pray for guidance for you. However can one think clearly under these circumstances?! May the Lord watch over you and help precious Eme. Arms around you both with love. Anne
Annette W
Oh, I am so happy yesterday was such a better day for you and Eme! You deserve that and so much more! Yeah! Thanks for the address. And the update. Prayers and hope that today goes better, too..... Annette
Anne Dennon
Happiness is! ... Thank you for this good news and update. Of course prayers continue. Arms around you both with love. Anne
jeek01@gmail.com
AMEN! to the Compassion entry!  AMEN! and I am good with either place to look.  FYI- I started updating on CB and then posting link on FB.  Sometimes easier. Much love our dear ones! HOPE * BELIEVE Erin
Annette W
Oh, my. I just read your letter about "Compassion". Obviously there have been times lately made even tougher by some not so compassionate actions and words. I am so sorry. It has to be so frustrating and hurtful. I just hope the people who need it most read what you wrote.....and change their ways..... Prayers always, Annette W
Annette W
As I am old-fashioned (and old!), I do not do Facebook. So, this site is where I find your updates. Thanks! Annette
Dorothy
I can follow both but I do print out your blog to send to a friend who has been following Eme but doesn't get Facebook or go to links.
Anne Dennon
This site works best for me Erika. Looking forward to an update on Eme's condition. Prayers continue with love.
lawnmower
I have followed Emerson's story on this site for a long time.  I don't have facebook and would love to be able to continue to read your posts.  You are very inspiring and certainly have a talent for writing.  I pray that you all are doing as well as can be during this time.  Thank you for taking time to write.  Stacy Murphy 
Rebecca Kottman...
Hi Erika! I never have done Facebook or Twitter, so this website is the only way I can learn about Eme...thanks for posting here if possible.
Just A Few Floors Above
Sending all my love from just a few floors above. I work nights at CHOC and often want to come down and just squeeze you :) and Eme. Get some rest, food and more rest.
Pamela Q
Erika...You, Emerson, Jim and the boys are in our thoughts and prayers. PLEASE let us CSS moms know how we can help. May God hold little Emerson's hand through all of this and wrap HIs arms around you all... Hugs, pam
mary a
I will pray for your little girl andyour family! I found your blog by accident, I was trying to find answers about my son. He had a bowel transplant at unmc on 11/30/12. he is still in the hospital, the docs can't get the feeds going. We always joke that our son does things his own way, after reading your blog, I think he may have a partner!:) I hope she is doing ok.
Kendra
Erika - you don't know me, but I am a prayer warrior who has followed Emersons story for a while. You are an inspiration to all moms with your loving and compassionate spirit. God certainly chose the best mom for Eme. You are a such an amazing person to juggle all that you do and still carry on. I pray with all my heart that God allows Emerson to remain here with you and more specifically to give her earthly healing. What a precious little girl you have. I will continue to lift you all up in prayer as I know this time is so difficult. Praying for the peace that only comes for our God and for brighter days ahead. God Bless You
Linda
You are masterful with your writings. I can only imagine, as a mother, what you are going through. God must have special plans for your little Emerson. Thoughts and prayers continue to be with you all.
Anne Dennon
I'm praying for you all Erika. Love, Anne
Annette w
I am so sorry to hear the latest news. I am praying for strength, hope, and less pain for dear Eme.......and all of you. Thank you for writing. Love, Annette
Annette W
I was so, so happy to get your letter today. Thank you so much for updating. I was wondering how your holiday went. It sounds like you were able to grab some happiness and good times. I PRAY that tomorrow Eme gets to go home! No matter for what length of time she gets to sleep in her own bed, it will be wonderful for all you. Eme and all of you need and deserve that. Your words were so touching...what an incredible mother and woman you are, Erika. One day, hour, minute at a time.... Praying, hoping, and thinking of all of you, Annette
Kathryn Michalski
It has been a long while since I have checked your blog, but Emerson is on my mind often. I hope that you all are home now and continue to keep her and your family in prayer. You are an amazing family!
Carey in Larkspur
Hi Erika, Still here checking in and keeping Emerson & family in my prayers. Will be praying specifically that your family is home together for Christmas. With Love, Carey
Annette W
Oh, I was so hoping to read Eme was going home, as everyone was. It just will have to next week...that is the new goal and hope. I, too, can not comprehend how her little body can take all of this....And YOU, too....you have to be exhausted. I pray this week/day/hour brings better results and news. We all want so badly for dear Eme to be home for the holidays with her family. Prayers and hope.... Annette W
Annette W
I was so pleased to get today's letter...I have thinking about all of you. Thank you so much for sending it to this blog. One of the best Christmas presents I could receive is learning that Eme is home with her family for the holiday. I pray this happens...and hopefully next week. Your words were touching...and a good reminder to all to grab onto the important things such as family and friends. Those are always constant and can be counted on. Praying for an improved weekend, strength for all of you, and a trip back to your home next week.... Annette
Sunshine
I wanted to wish you guys a Happy Thanksgiving! I sure hope Emerson is doing better, we are praying for y'all! Sunshine
Annette W
Oh, I wish I could join the festivities! Sounds like it will be fun and certainly a worthwhile charity event. And it will do you some good to get away from the hospital! Yeah! I am sorry to read that things aren't going as well as hoped....I pray tomorrow will bring better success. But whatever is happening, YOU are doing all you can possibly do...... Thanks for the update....have some fun tonight:) Prayers, Annette
Annette W
Wed morn More than fingers crossed for positive results in taking Eme off the vent. One step/treatment at a time sounds like a good idea. At least the antibiotics are helpful, though I understand it is worrisome not understanding the exact underlying cause. But just so they help keep the fever down! Thank you for the update. I really, really appreciate you sending it to the old blog! Prayers and hope... Annette
Annette W
I pray today brings you better ideas with the new "set of eyes". Poor, dear Eme. My heart aches for her....and you. What would she possibly have done these years without her incredible mother????? We are all praying for you with kind, hopeful thoughts. Annette
Annette W
I was impressed and touched by your "Random Thoughts" letter. It sure proves how insightful you are while also being realistic.... even in such an emotional time. I know it is so much easier said than done, but I pray you can follow your own advice to yourself, especially with rougher days like yesterday. I am not sure what has transpired today, but I so hope there were no baby steps backwards.... Prayers for all of you, Annette
Annette W
Oh, I am teary from reading the positive news! Your letter certainly made my day. These forward steps help everyone have even more hope and as you said, more smiles and memories with your dear, sweet daughter. I knew you know Eme better than anyone! Prayers, prayers, prayers, for continued good news....Now, YOU get some sleep! Annette
Annette W
I am thinking of you and Eme... I PRAY today is better....
annedennon@aol.com
Erika, So sorry not to be able to get through to you. Many attempts have failed over the last few days. This looks like it will work. I've been praying and will stay with it. Just want to assure you I'm one of your warriors. Anne
annedennon@aol.com
dBGZW
Lacey and Jax
Always praying for Em! This made me cringe because its a huge problem we have. Jax has clotted off all of his major veins in his chest including his SVC. So now he has no central access above the waist. Its such a scary thing. But miss Em is amazing, and as always, she will adapt!
Annette W
Wed afternoon Thanks for the update. I sure like the way you are thinking. Time always helps in everything! And I bet you know as much as or not more than the doctors, as wonderful as they are. My gosh, this has been your life; you know Eme better than anyone on the planet. Trust in your instincts, trust in all the prayers everyone is offering. Hope YOU are getting some sleep! Prayers, Annette
Annette W
Praying today is better....
Joanne Kocourek
You can hold on to HOPE—no matter what happens because there’s One who’s holding on to YOU. He’ll stop at nothing and do anything to make sure you have everything you need. Waiting in hope with you to see all God will do. Praying for you. Sometimes it’s hard to understand why God allows us to go through certain situations but please remember that, no matter what, God is there with you through it all and that others who care are keeping you in their prayers
Sue Rose-Sassone
PRAYING for Beautiful Emerson
Annette W
Baby steps forward....that is encouraging! We all hope each day brings improvement, no matter how small. Thank goodness for your "warriors"! They sound like quite a team. Thanks again for the update; it's so appreciated. Praying for a good day today..... Annette
Annette W
Hope, hope, hope....... Thank you for your letter/update from last evening (Sunday). I hope YOU got some sleep last night; you have to be exhausted. And dear Eme.....I can not fathom what her little body is going through. Prayers, of course, continue along with unending HOPE. Annette W
Teresa
May you get some rest tonight. Prayers for Emerson and the whole White family. I pray for peace, rest and knowledge that you are loved and supported by many. Tell Emerson she is loved by many.
Sunshine
OH I am so very sorry about all of this. I will be praying for you, for Emerson and for the medical team treating her. Sunshine
Annette W
I just now saw your two last blog entries. Oh, my dear Erika, I am so sorry to hear what the last week has been for sweet Eme, you and your family. My heart aches for all of you. As you wrote: one hour at a time. But I am sure those hours have to be tormenting. Right now you are doing all that can be done. I am praying so hard for you and Eme....mostly for strength for these hard, hard days..... Thank you so much for posting. May God hold you both in His hands.... Annette
Anne Dennon
Thank you so much Erica. Have tried for three days to respond via facebook. Just doing something incorrectly. You know by now that my prayers continue whether you are able to write or not. May God's blessings hold you strong on this journey. Your picture says more than a thousand words - usually - however your words are truly powerful and exceptional!!! Again thank you for finding time to keep us all on the same page with you. Much love to each of you. Anne
Annette W
Oh, how happy I was this morning to get your letter! Thank you so much for updating, and in such a well written, informative way. I promise you that not a day goes by that I have not included your family in my prayers. I can imagine how scary and upsetting these past months have been. But I can't even start to comprehend how your family, especially you, has handled it the way you have. You are so incredible.... It saddens me to think of dear Eme in pain, both mentally and physically, and I know it is heart breaking for you to see. But I also know whatever you are doing to help her is the right way. One can only do what they think is best at the time. You are too good a mother and too special of a person to ever second guess yourself. Thank you for the darling pumpkin picture; I, too, love this time of year. For us here in eastern Michigan it has been a beautiful fall. Have to admit I am not looking forward to snow and cold, though! Take care, my dear Erika.....Again, thank you for the update. Give that extraordinary young lady a hug for me. Annette
Sunshine
Hello. I am not on facebook, but wonder often how Emerson and you are doing? I hope having a fabulous fall! Sunshine
Anne Dennon
So beautiful an entry Erika. Thank you. With you in spirit up there on the Mountain top in the good air and happy to find you living life by the moment. Love and prayers to you all. Anne
Annette W
Thank you so much for the update. I am saddened to read about all the difficulties now. I hope by today (Thurs) Eme is on the floor. And I so hope you are getting some rest at least. You have to be exhausted....physically, emotionally and mentally. My prayers are for all of you.....especially to give you strength. My wish, too, for both you and Eme for those much desired comfort, care, and support. Thinking of you everyday, Annette W
Anne Dennon
Thank you Erika for your entry. Helps me FOCUS on my prayers for Eme. Hoping for you both to be home bound soon. Love, Anne
jeek01@gmail.com
We continue to ride along on your family's journey and all of its bumps, turns, and routes!  Our love remains strong and we continue to HOPE for that quality of life you all deserve! Much love, Erin & Emily, Joe and Taylor-Jo and Grma J, too!
Annette W
I am glad you had a nice Mother's Day (considering!). If any mother deserves a good one, it's YOU! I so, so hope you can get Eme back home soon. I know how much better that is for her...and the family. I also know right now it is just one day at a time. Thank you so much for posting and the good explanations. All of you continue to be in my prayers..... With lots of HOPE, too....Annette W
JennE
Sending lots of thoughts and prayers your way!!
Lynette Allison
Erika - You and Emerson continue to be in my prayers. God Bless.
JennE
Emerson looks amazing, she has such a precious little smile. I cannot imagine what you and your family are going through right now. I have a little girl that is going to turn 6 in September. I look at Eme and look at my little one and realize it can happen to anyone in a split second. They can be taken away from us just like that. You try your hardest to protect your family. No parent should ever have to think about going through this process. You should never feel bad about not wanting to give up. Its your decision and she is your daughter, you have the right to fight and fight for her for as long as you need to with no questions asked. You are a very strong woman and when your put in a position like this, it only makes you stronger! You will make the right decision no matter what. I wish that no parent would ever have to endure anything like this, you nor Eme deserve any of it. I don't know you but I read your posts all of the time and it makes my heart ache to see what you are going through but remember there are people out there that pray for Eme and truely care and the power or prayer means a lot!
Anne Dennon
What a beautiful picture! So very, very glad to get your update. My heart goes out to you Erika with your concerns. I do understand your emotions. Hoping each day brings answers for you and that there will be a trip home very soon. Keeping the prayers flowing. Love, Anne
Annette W
Thank you so much for the long update, Erika. I know it's been awhile, but I assumed things were going pretty well. Believe me when I say not a day goes by without a prayer for Eme, whether I hear anything or not! I am thankful you have had a good two months, but am saddened to hear of your tough time now. BUT you have always done the right thing! It's not a question of not seeing the forest through the trees. Instead it is seeing flowers, life, and sunrays in that forest. That is what you have done these years. You have given Eme days of laughs and smiles to help make up for the days of tears and fears. It looks like there will be tough medical questions in the next week....hope and prayers for the right answers, which will lead to a good summer! Take care of yourself.... Thinking about you, Annette
JennE
Oh thank god for someone posting that, its makes me feel a whole lot better. I will check on facebook this evening! I would love to see a picture of her! I hope everyone is doing ok and enjoying every minute of Emme, she is truely a precious child. Thinking about her makes a person realize that you cannot take life for granted and to live everyday to the fullest. She is such an angel!
Clare Johnson
Do check  "Pray for Emerson" on Facebook.   Eme just celebrated the third anniversary of her second transplants.  There is a darling photograph there too.  
Beverly Hightower
I long to hear news of Eme, and the rest of the White family. Nothing has been posted since February, I think. You're always in my prayers and thoughts.
JennE
In my last post I noticed that the RIP was for Emma. I am hoping its not Emme and it was just spelled wrong. Like Erika has always said that "no news means good news" for them. I hope we find out something soon as I am getting antsy about it. I would love to hear some news on Emme but I am sure they are very busy and finding the time to update is hard when you have 3 children and a husband wanting your attention. It is the same way in my house. If anyone knows anything will they post something please. Even if it is just, she is still here with us and not to worry!
JennE
Is what I am reading true???? I have followed Emme's story from the beginning. I am sitting here in tears trying to understand and hoping that it is not true. Although she has fought so hard and no longer has to. She was such a special little girl and deserved everything anyone could give her, she did not deserve to go through so much of this. God has a weird way of working sometimes but it only makes us stronger. I hope Emme's family can find peace and know that we (everyone) is thinking about them and sending prayers their way.
Steven
BrendaR, I heard sad news as Emma did pass away in her sleep. She is no longer in pain.
BrendaR
I saw the RIP from Steven, but it was for Emma. Hoping and praying that it was a mistake and all is well for little Eme. I am getting concerned that I haven't seen a post since Feb. 28th, but I am hoping what you said once is still true- no news is good news. Also praying for you Erika, as you take such good care of your family!
Anne Dennon
Hi Erika, Thinking about you and Emme and hoping all is going along steady. Would so love to be at one of your sharing speeches so I could stand up and lead the clapping session. Love to the White family. Anne
Concerned in VA
Emerson's special story is one that I have followed through the ups and downs over the years. Having worked for the Phil Long Group, I have been with you since before the first transplant. Your strength and courage is inspiring. Please know that there is a network of support and concern for the wellness of Emerson and your whole family. It's been almost 6 weeks since the last blog update, and I am praying that no news is good news, as usual.
Lisa P.
WHAT??????
Steve
RIP Emma!
Carole
One of your regular readers. Have not heard anything lately so hope all is okay. They say no news is good news.
jeek01@gmail.com
We love you and hope the best for you and yours. The Koesters
donna leckenby
glad to hear that all is going well hope it will cont for you and your family
Michelle Lindemann (Weston's Mom on Liver Families)
Erika, You always amaze me. You have every reason to be so proud of yourself and the wonderful Mother you are! Thanks for keeping us posted. Emerson and all of you are in my thoughts and prayers everyday. I'm so happy Eme has been able to stay out of the hospital so you can both be home where you belong, I can only imagine how great it feels for you after so many years! Take care of yourself and know we are all here praying and rooting for you and Emerson. Hugs, Michelle
Clare Johnson
Erika,  Thank you for the Update.  I fully agree with your current thoughts and decisions.  Your last couple of paragraphs Say It All.   Take care of Yourself,  Enjoy your Family, Share Your Story.  The speaking engagements will be a good outlet for you and contribute to the community.  You are a gifted Communicator.  Be Happy. Much Love and Many Prayers,  Clare
Anne Dennon
Erika, Is there another way to keep updated with you? You can see I'm having trouble with this method! Love to all ... Anne
Anne Dennon
And the prayers stau steady and strong for each of you. Anne
Carey in Larkspur
Hi Erika, Praying for some answers and a quick release... hopefully this time next week you will all be back in the White house enjoying your quality family-time again. Blessings, Carey
Annette W
I do hope by next week you both will be going home...surely has to be the best thing for dear Eme. And by then your inches and inches of snow should be gone. Can't believe how much your area is getting right now! Be careful driving! Always praying and thinking of you..... Annette W
jeek01@gmail.com
Well my dear ones, Eme certainly keeps everyone on their toes!  Hey- look how long you all stayed out though.  That was remarkable in and of itself!  Way to go mama!  The snow is headed our way tonight!  Best wishes to you and yours and we HOPE you two are back at home next week where you belong. HUGS and KISSES- The Koesters
Annette W
I am so sorry to hear Eme is back in the hospital. Hopefully they will be able to have a good diagnosis soon. It is encouraging she is interacting! I know all of you have cherished having her home these past few months; I pray she will back there soon.....she is such a fighter! Without going into detail, please know your philosophy of life and your words of wisdom these past years have helped me recently with family events. You are so special, as is your beautiful daughter...... Take care, dear Erika....
Laurie & Shania
Hi Erika, I'm sorry that Eme is back in the hospital. She's been doing so good! How's school going? I've loved your last couple of updates! You were all together as a family! Praying that this will be a short hospital stay! Our thoughts and prayers for all of you!!
Anne Dennon
Hi Erika, I will try once more to send a message to you. Three or four have failed to go through in the past two months. I must not understand the process of entering the right code - don't know but will give it one more attempt. Was so happy to find new updates from you and hear the happy news about your "happy" girl. I too cried when reading about Disneyland and some incredible person (s) who made your trip beyond imagination. Thank you to whom ever you are if you are reading this blog. Now why should I be so surprised about your new goals ... have I not learned after all these years to just be amazed. So proud of you Erika. Take care of yourself so that you have the strength to carry them through. You all of course realize the wonder of getting Eme home after all odds, but I want you to know that for those of us out here, it is just as rewarding. A gift we all share in with your family. No better example of what a gift each day is for every one of us. I'll watch for your weekly blogs and understand if they have to be sidestepped now and then. Keeping the prayers going for Eme. Love, Anne Dennon
joey and daisy
i am SOSOSOSOSOSOOOOO happy that all is well! (minus chem equations, eek ;-) you painted a glorious picture of life at HOME. you are all outstanding people, thank you...love, us
Anonymous
Erika, In the past when there was too long an interval between updates, I worried. This time, though, I just KNEW it was because you were all thriving. So good to hear about your hospital-free Christmas and your fabulous trip! What wonderful family memories you made. Your story about the anonymous donor at Disney just proves "it's a small world after all" and that there are still GOOD people! Wishing you all the best in your future endeavors -- I have no doubt some day you will be instrumental in bettering the lives of sick children all over the world. Hugs to Princess Belle and All the Best to the White family in 2012 from Neva (Lucy's Oma)
Deanna Bingley
Erika, I have read your New Years Novel at least 10 times - for a few reasons: 1. I was so happy to hear that life seems to be calming down (or at least it's as crazy as ever, but in the comfort of your own home :) 2. The surprises that awaited you at Disney bring happy tears to my and renew my faith in mankind. It makes me realize that while we hear everything bad on the news - the good outweighs the bad by leaps and bounds. Thank you to that Man at Disney - you gave more than a dream to the White family - you gave me something as well - inspiration to always pay it forward. 3. I love that you are following your dreams - fulfilling your hopes and keeping your mind healthy is as important as keeping your body healthy. As always, thank you for sharing your life and your daughter with us. Continued prayers for health, happiness and peace for all of you. Deannna
Mackinaw neighbors Bill and Marilyn
Merry Ketchup, Happy New Year, Happy new challenges, Happy new prayers, Happy new songs of celebration, Happy new smiles, Happy new chapters, Happy new goals, Happy new family life, and best of all Happy new Erica! We love you enormously and send sincere wishes for all your dreams to come true. Thank you for sharing with all of us. We are grateful. Go girl go!
Carmelita Baza
Erika! Happy New Year indeed! What an awesome Christmas gift you guys experienced. Zach is doing well and I too am working with our Texas Organ Sharing Alliance as a speaker/manning organ donation information tables as the opportunity presents itself. I keep saying that it took us about 4 years to get back to a relatively normal life and now it's "my turn". Finallly, I'm taking better care of myself and doing things I enjoy as well as spending quality family time. So glad to hear such a positive update and praying that things continue on a positive path for you and your family!
Richard Bastien
It is a real heart warming story to hear about your family trip to Disneyland. I wish my mother could have heard about Emerson’s encounter with the Princess. We saw your mother grow up, then you and your brothers, and now Emerson and your boys. It was a thrill to see her this past summer. Enjoying the beach. She was so industrious with all the new experiences. Love, (Long time neighbor), Richard Bastien
Jennifer Bebergal
I should learn not to read your blogs at work Erika! I am crying with joy at your wonderful holiday, wonderful memories, and wonderful experiences that your family deserves more than any other I know (or at least FEEL like I know!) I am so happy for you - while your new journey won't be easy, I know you will attack it as you always do! Best of luck and love from my family to yours. A friend in Florida
Anonymous
Wowee Zowee that is some Disneyland experience.  So grateful to all that made that possible for you. What a tear jerker in a good way that story is.  I could not think of a princess that deserved it more & what a nice treat for your boys as well.  Was glad to read in your journal you are taking some time to take care of you as well.  Things run better when Mommy is doing good.  So thankful also that Emerson was hospital free for Christmas.  
Kathy Russell
What a wonderful surprise when I checked your blog today (as I do everyday)! I am so happy for you and your family! It sounds like everything is falling into place, so you really can just be a mom and have a life of your own. Reading about the Disney trip made me cry, and I am so pleased to know you have found a niche for yourself in the pharmacy world. I wish you well with all your classes and new pursuits. And Praise God that Emerson is doing so well! Our prayers for her continue, as always.
Carolyn O'Cain
Erika, your Disney story brought tears to my eyes and joy to my heart. I could just see all the princesses with Princess Emerson and the fun and delight they had together. What a special time for all of you. More than excited about the nursing help that you have for Emerson now. A glorious provision by our loving Lord. So very thankful that you can have a break in order to care for yourself, your boys and your marriage. Will be praying for your schooling and your other activities. I know the Lord will use you and Emerson's journey to bless others. Happy New Year to you and yours! Thanks for letting us be part of your family. What a privilege! Always praying! In His great and mighty love, Carolyn O'Cain
Teresa
Hope you continue to enjoy days at home with the family. Glad to hear you had a wonderful Christmas at home. Continued prayers for health and happiness.
Alison Stanley
Merry Christmas to the Whites. What a blessing and answer to prayer to have Emerson home and the whole family together. Praise God!
LISA p
Merry Ketchup! And Happy New Year too! Check in daily maybe even twice anticipating an update. Although disappointed there have been no new posts, I am equally as glad there are none. Simply means no major events to share. ( Sincerely hope that's the reason)I like that! I know I am one of the thousands that have followed your (Emes) story for many years. Just means that many more prayers. Praying for peace within your family. God Bless, Lisa Pramod
Laurie & Shania
Was so happy to hear that you all got to celebrate Christmas at home! I'm sure Santa was good to all of you! Hope this was the best Ketchup ever! Wishing you all a Happy New Year! Praying that 2012 will come in with a bang! Hope it will be a good year for your family! Love ya guys!!
Kathryn
So happy that you all are home for Christmas!! What a blessing! Looking forward to seeing the photos when you get a chance to post them. Prayers continue for blessings in the new year as well. - Kathryn and family
Clare Johnson
Erika, What a Blessing, Home with your Whole Family for Christmas.  We wish you and yours Much Joy.  Love,  Marv and Clare & Our Family      
Annette w
I am so, so happy for all of you! What a special Christmas. What a wonderful "ketchup" day you must have had. Looking forward to the pics! Prayers, Annette
Sunshine
Merry Christmas! I sincerely hope that no news is great news and that you all are home together enjoying a wonderful Christmas. Sunshine
Annette W
Oh, my! I can not believe you were in the hospital! I hope by now you are better and have gotten some sleep-filled nights. I am sorry I have not written in awhile; I have been out of country since before turkey day and was computer-less. I am so thankful that Emerson is home and for every good day you seemed to have had. Though I was far away, I promise everyday I said a prayer for your family. I pray right now that you YOU are better, Emerson is "holding her own", and the boys are as excited as can be for Christmas. Happy, blessed holidays to all of you......
carey clawson
Glad to hear that you are recovering and you were able to enjoy T-Day at home with your family!  The irony... you two finally make it back to Colorado and then you end up hospitalized!  Will be praying that both of you stay away from hospitals ~ at least for the next month! :)  Wishing your family tremendous joy, love and togetherness this Christmas.  God bless, Carey
lmarsh
Happy Day! Was trying to send Emerson a card to the PO Box 31366, got it back. Not deliverable. Need to get current address. Address listed on Make a Child Smile is not correct. Thank you! Hugs n Kisses
Em
Erika, I am so so very happy that everything is going well. My son has and suffers from "Post-Concussion Migraines" from football. SO, I understand what you are going through. I wish you and your family the most wonderful Christmas and New Year EVER!!!!!! hugs to you all Emelie
Lauren Jones Dinsmore
Happy Thanksgiving White family! Hope you are still all home together. Thinking of you. xoxo Lauren
Terri
Hi, haven't read in a while but wanted to stop by to see how Emerson was doing! I am glad she is doing ok but sorry you are sick. I hope you get better soon and that Emerson remains good! I love her Halloween costume, she is so adorable. :) Terri from liver families
jasmyn
hey ms erica and family.... i just wanted to say i am glad to see little emy is still doing ok i wish yu all the very best luck and hope emy can live a very happy life some day. God bless you all and i will pray for you all. xoxo jasmyn
Tammie and Vonn
Emerson amazes me again! I look on fb and there is a blog entry so I go to it and yep....There she is! Still, again, up, moving around smiling and of course....a princess. Not meaning for this to sound like it's a bad thing or anything, it's just that....she is still with us and looks like she does in these pictures. I know, she is not "fixed" but wow....I'm just amazed. Thank you Erika for sharing your princess with us again, still. We love her too.
Annette W
Thank you for the "spootacular" pictures! I will keep my fingers crossed for discharge Friday. Enjoy, enjoy these good days...I will be praying for more.... Happy Halloween, dear ladies! Annette
Stef in Maryland
I am so very, very happy to see the beautiful blond princess on Halloween!  I know that she must take your breath away, and it is indeed a moment to remember always.   Many hugs from a mom who cherishes each moment with her daughter as much as you do with Eme.  Best, Stefanie  
Kathy Russell
I just want to let you know I am still hoping and praying. God is definitely still in the miracle business, and I believe it is a miracle that Eme is still here. We have seen one miracle after another with her. Our prayers will continue for many, many more. God bless you and your family.
Annette W
I read your heart-felt letter with sadness this morning for I can not begin to know the feelings and fears you are having. But your last paragraph, because it mentioned hope, is what humans are all about, and certainly mothers. That is all you can do right now along with enjoying every good moment. I do not know why some angels have been taken and Emerson is still with you. That question is one no one can answer. But I truly believe that everyone that lives and has lived has been on earth for such a very, very short period of time, but will spend eons in a different world without pain and sadness. THAT is also hope..... I attended yesterday Marina Jacka's funeral. I bet you remember her; she taught "home ec" at Boulan. Obviously it was a sad day, but as I watched her family around her husband (who had quadruple bypass surgery 11 days ago) it hit home that every day is a gift, no matter our circumstances. All one can do is that old adage "one day at a time".....and grab at least one good thing each day....whether it is a beautiful smile from a sick daughter or a kind word from a nurse or stranger. I am glad you are seeking help from a hospice group; I am sure they will be helpful. They are wonderful, special people. I am hopeful you are catching up on some much needed sleep, and the snow abates. Knowing Colorado, it could possibly be in the 70's next week! I know with that beautiful sunshine the snow will melt quickly. Thinking of all of you with heartfelt prayers.....Annette
Candice Behm
Hi, Thankful for the family beach time for you all. Awesome photos. The one of Emerson in the beach chair makes me grin. What a little fashionista! More special memories made! Keeping you in my daily prayers!
Laurie and Shania
Hi Erika, Hope you're getting some rest and eating better! Hope that Eme will be out soon, so she can dress up for Halloween and have some fun with her brothers! Hopefully Denver is handling Eme's care without any problems, so you can stay close to home! I figured that you have a lot on your plate when you're at home. All of you are always in our prayers! Love all the pictures! All the kids are growing-up too fast!  
Sandi Berns
You have a BEAUTIFUL family! I am praying for you all.
Erin & Family
We love you all and enjoy the pictures! YOU KNOW we are always thinking of your family and HOPE for the best! Erin,Joe, Emily, Taylor-Jo and Grma J
Karen J
I am in Il and have been reading you blog for over 2 years now. I don't remember how I got to reading it but I am praying for you andEm and your family everyday.
trdubs
Erika, thanks for the update. I can imagine how hard these would be sometimes. I applaud you for finding the right words....Usually, I can almost "hear" you right through the page. I do have to say that your entry was very clear, precise and thought through. I envy that strength in you. We will continue to think of you and the family and pray for more precious memories with Emerson. The pictures were wonderful. What sweet boys! They love that girl! Glad that you all got away from it all for a short time. Hugs, hugs, hugs to you. Tammie and Vonn
Annette W
I was so, so happy to get your letter. Thank you so much for letting us know what is going on. And those photos were beautiful!!!! They brought tears to my eyes. Thank you, thank you. What a few weeks you have had and what decisions have been made and continue to be a part of all your lives. I am still praying for all of you, believe me. Not a day goes by that I don't think of you. I am glad you are in Denver....I think that has to be so much better. I am also wondering about your Dad and how he is doing. I hope things are better..... Hopefully you are able to get some sleep; don't know how you do it. Take care and know that no matter if we do not hear from you for awhile, there are so many prayers still being offered daily. Annette
Dianne Rios
Thank you for your update on Eme. I'm sorry she's in the hospital again, but glad to hear she bounced back fairly quickly (for Eme). I'm sure that is due to your constant care and the plan you so thoughtfully drafted. Eme is lucky to have you. On another note, I loved seeing your whole family enjoying the beach together. I pray for many other moments like that in the near future. Hugs, Dianne
Annette W
Dear, Dear Erika, I just this morning was able to read your latest letter. I am so, so sorry for what has been a terrible time. I pray between the therapy and meds Eme will "calm down". You HAVE to get away occasionally. The nurses are certainly capable of handling Emerson. You have done more to help them than probably any other parent of a patient...ever! Go and watch some more comedies! It is good that there is some positive news; I agree you both need to "get out of there" if at all possible. I sure hope it is starting to happen right now because of a decent weekend. I am also thinking and wondering about your Dad. I hope things are going as well as they can for him. I pray the next letter comes out of Colorado. Thoughts and prayers always, Annette
Anne Dennon
Dear Erika, It is so hard not to have words to help you and at this point you are probably sick of having people just say they'll pray! (I say that, being as you know, a huge believer in the power of prayer.) Does it help to have me say "your emotions are totally understandable"? Please just know that lots of love is flowing your way wishing and hoping for the road to smooth out for you. Sometimes I think there just aren't answers to situations and rather than struggle, it's better just to "let go and let God". Thanks for "venting" so realistically with us all. Much love, Anne
Laurie and Shania
Hi Erika, I tried a couple of times to leave a message. I just wanted to let you know that Eme looked so adorable in her birthday outfit! She reminds me of a china doll! Belle fits her perfectly! Also saying extra prayers for your dad! To be living in the hospital for the last five years has to be so hard on everyone! I know that Eme can be very demanding, she's letting everyone know that she's not happy living at the hospital. I bet she misses her big brothers so much and just wants to be at home! Are you able to get her out of her room at all? Can you take her for walks at all? I remember Shania's pediatrician saying that most kids with chronic illness are brats, because parents are too afraid to disciplined them. She told me I did a good job, I've had my moments. When Shania had to be in isolation she acted out more, since she was stuck in her room. It's good when you can get away, doesn't make you a bad mom. If you don't get a break you'll drive yourself crazy! You have so much support and I know we all dreamed that Eme would be living a healthy life running around with her brothers at home! You have shown so much inspiration to everyone here! I've always admired your strength and courage! Hope all the boys are doing well! Praying that you can go home this week! I bet the best medicine for Eme is to go home! Stay strong don't give up Hope! (((HUGS)))  
Lauren Jones Dinsmore
Hi Erika-- Sorry it's been a tough week for you and Eme. You do an amazing job with her but it's clearly a hard reality to live with everyday. I'm hoping things will workout for discharge this coming week. We're thinking of your whole family right now! xoxo Lauren, Jason, & Logan
Sunshine
Happy Birthday Emerson. We are praying for you sweet girl! Erika, I am praying for your dad, you and your entire family. May God be so close to you right now that you can sense His presence and feel His arms as they hold you close. Sunshine
Annette W
HAPPY BIRTHDAY, DEAR SWEET EMERSON! You look so beautiful in your princess dress! What a fun day you deservedly had! Wow...five years old! Thank you, Erika, for the update. Your thoughts on statistics is a good reminder to never loose hope and to always be proactive and knowledgeable. Certainly Emerson is a perfect example of that. You have taught so many of us such wise things..... My heart is heavy with learning about your Dad. It is so hard to believe because I know what great shape he is in. Because he has taken care of himself any procedures, treatments, etc., will be more effective, I am sure. He WILL beat this!!! I know all your family must feel overwhelmed. Your poor mother.... I am wondering where he is having his treatment. Grand Rapids? We will certainly be saying prayers for him and all of you. Please take care... With thoughts and prayers, Annette
Ellen O'Connor
HAPPY BIRTHDAY EME! Erika, I hope the little princess had the best birthday ever! Thanks for sharing the pictures. As always, you and the family are in my thoughts and prayers. Hugs, Ellen
Anne Dennon
Wanting to wish Eme a VERY HAPPY BIRTHDAY. May the year ahead be filled with your best wishes. Tried to send wishes via Face Book but can't make it work. Sorry this is so late in the day. Thinking of you all the time with lots of love. Anne Dennon
Happy Birthday Princess!
Sending our love to the Birthday Princess! xoxo Robert, Ana and Savannah Anselmo
Laurie and Shania
Hi Erika, Hope things are going better! Always keeping all of you in our thoughts & prayers!  
kerin
What is Emerson's Facebook page? Praying still!
"Pray for Emerson" - if you type that into your search it should come up!
Sheila
Erika, Thank you for the update. Sorry but I am not on Facebook, so I am unable to follow your posting on how Emerson is doing. I am sorry to hear that you guys did not get to transfer to Denver but I always say things happen for a reason. We do not always know what they reason is unfortunately. When you can please update us on this site once in a while so that those of us who do not do Facebook can know how Em is doing. Over the years some of us have gotten to know you more and have fallen in love with Emerson. She is such a fighter and so precious. We also love you. You are a wonderful Mother to Emerson. Always remember you have done the very best for her. I know it is hard to be away from the rest of your family and honestly you have done a lot better than I would. However, unfortunately what is best for Emerson is what needs to be done now. Please update when you can. Love, Sheila
Jasmyn LLoyd
im soo sorry that this is all still happining.maybe someday very very soon this will all end. the pain and agony.@erica you have been the best mother i know. In and out with your daughter but still trying your best to be their with your sons. I try to get on here evryday to c how my little emmyis doing. she has had her ups and downs but yet everytime i get on here i seem to cry. i truely truely hopr things get better. God bless you andyour family. with all my heart i love you emmy,erica,jim, and the boys.! i will keeppraying and wishing you all the best ofluck.!! youmay thinkyou are getting weaker everyday erica but in reality you are being very strong. you have been holding it together since day 1. love always,Jasmyn LLoyd
Annette W
Thank you so very much for the update. You ladies have certainly been on my mind; I was so hoping you were in Denver. I guess I understand Denver's reasoning, but I know what a disappointment it is for you and the family. I can not express how impressed I am with what you are doing. The work, research, and ideas to put together the four month plan seem insurmountable. No wonder you are exhausted! You are doing what you need to do for both of you. How proud your family must be of you; you are truly one very special woman and mother (but so many of us laready knew that!). My prayers continue for hope, strength and help with decision-making. That sweet, sweet little girl..... Take care, Annette
sammy22
H I  PRAYING EVERYTHING WILL GO WELL SO YOUR  FAMILY CAN BE HOME  SOON
Laurie and Shania
Erika, I'm so sorry everything you have to go through. I'm glad that the team in NE are not ready to give up and willing to try your plan! I hope to God that your plan will work! Can't wait to hear that you both made it home! You all deserve to all be together for some fun family time! Especially for the last event of the summer! I love the picture of Eme!! She shows everyone not to give up HOPE! Always praying for your family! Hope it will be a better week!!
Shayne Frankel
Hi Erika - I think if it were necessary, you could come up with a plan to conquer the world -- and how very blessed Emerson is to have you championing for her. Sure sounds like the medical team wasn't ready to give up yet -- just needed a surge of "we can do" and "here's how!", which you infused each of them with at your meeting. Hugs and positive thoughts for a safe drive HOME!
Kathy Russell
How wonderful that you have reason for renewed hope! We will pray that the plan is successful and Emerson can be with you for a long time to come. It's wonderful that you will be going home this week. God bless you, Emerson, and your whole family.
trdubs
Erika, Thank you so much for the update. Well.....you have a plan. You sound more at peace with these decisions I think, than you have in a long time. I hope you realize truly, that you have and continue to do everything possible for that baby of yours. I'm still praying. Tammie
michelle l jordan
we will continue to keep yall in prayer and hope everything is still going good
Sheila
Erika, It has been a while since you have posted. Please post and let us know what is going on. This is worrying me big time for it is not like you not to post. Wish I had an email address for I would try to contact you that way. Please post when you can, for I am sure I am not the only one that is worrying over you guys. Love, Sheila
Teresa
HI, I hope this finds you both doing well and closer to home. Prayers continue for improved health and peace of mind.
Anne Dennon
Thinking of you all and want you to know the prayers continue. Love, Anne
wendi
I feel your pain in a different way-two years ago my husband had a kidney transplant(after being on dialysis) things started out well-then they went downhill very quickly he suffered a major stroke-was in and out of rehab for months with various infections -sepsis and it has been two very tough years-people will say "I get it" and the answer is no they do not.. I "lived" at the hospital and rehab while taking care of my two children. It is never easy and your entries brought tears to my eyes-I lost my husband, best friend and my children lost their dad when he had his stroke-no life will never be the same. Be strong it is sooo hard
kimhill1972
Your story was shared to me by a friend who knew how important organ donation is to me since I am a living kidney donor to my brother 4 years ago. I was very touched by this story and will continue to read the updates you share and pray that your precious angel will continue to win this battle. She is truly a fighter! Thank you for sharing! Kimberly, Cuba, Missouri
Sheila
You have not posted in over a week now. Just wondering if you guys were able to transfer and also how everything is going. When we do not have your wonderfully written updates it causes us to be very concerned for you and Emmie. When you can PLEASE write an update so we know what if going on. I am praying for you and Em all that time. Love, Sheila
Sara (sarajack from LF)
You should be a writer......you have an amazing way of putting all of this in words..... Hoping and praying you are home soon! Sara
Annette W
I was so happy to get your letter. That is so wonderful they have agreed to have Eme go to Denver (and I am happy they are "life-flighting" her....better for all!). I really, really think you all need to be together. That is why right now Eme is stable.....God is helping and knows your family needs to be with each other. Your words are so beautiful, Erika. You and Emerson have certainly reminded many, me included, as to what is important. Humans tend to get caught up with the small things that really do not matter. Your words remind us to appreciate all that we have...... Hopefully you get some breaks in the next days! You need them!!!! I am so happy there are some wonderful friends there to help you out. Take care.....
Rebecca Fleming
My babies are healthy and we are at home and I have had more then one time today where it got too much and I came off a touch grumpy (It is 9:27 AM). You are doing amazing, Erika. Prolonged Barney watching is enough to send any mother over the edge. I think it could prove to be a legal defense to murder, lol. I can't imagine the scene you described. I am so happy you will be closer to home. Even the strongest amongst us need a break. You have been such a hero for Emerson. You are a warrior for that sweet princess. I pray that being closer helps to perk Emerson up a little and that it does allow you time to get her home to make many many more precious memories (hopefully without the loathsome purple dinosaur!). Miss Emerson is a fighter and she obviously isn't done... she has fought too hard this time to be done. Im sure no one needs to remind you of what you went thru this admission... but to read back thru the blog and then see that she is leaving and that there is talk of trying to get her home... It is remarkable. It really is. With your dedication and her will to fight, I have no doubt you will get home! **PRAYING**
Carey in Larkspur
Continued prayers for Emerson, you & your family... and for the doctors to get some answers that will enable you to get home asap. My heart has grown from reading your posts over the years. Your strength has been an inspiration and I pray the Lord continues to give you ample amounts for each day of this journey. With love, prayers & hope!
Annette W
.....and HOPE is always in my heart for dear Eme. It sounds like it has been a rough week, and I pray next week is better. Eme has surprised everyone so much in the past! I also hope you are getting some rest. Thank you so much for the update. My prayers are with you.....
Dorothy
Hope and prayers! That is all I can say.
mstar04
Erika, I wish there was a, "magic pill" to make Eme better! The medicine I try to give you and Eme are prayers, and a lot of them! All of the unknowns that you have to face every day must be so hard. I continue to have hope that one day very soon, Eme will wake up and bounce back like she has in the past so you can go home and spend some time with Jim and the boys. I think of you every day and continue pray for you every night! God Bless. Love, Lori
trdubs
Erika, yes, the ups and downs that you have been through...You talked about all of us being here through all of these ups and downs.....Where else would we be? We love you both and just want the best for you. I don't leave too many messages anymore but just know that we are here, also, checking each and every post for any new info from you. There are so many that pray for you and think of you each and every day that you don't realize. Remember how much we all care and continue to strive for each new day for you to have as many of those moments with Emerson as possible. I was so thankful you were able to spend that time at the beach and take a few much needed deep breathes. We will continue to check on you every day! Love, Tammie and Vonn
Annette W
I am so, so glad some questions have been answered and there is forward movement. Yeah! What a difference a day can make....watching Barney...that is super! Dr. B sounds like he is certainly one of those special doctors and human beings who make such a marked difference in people's lives. I am so happy Eme "has" him. (and you, too!) I am hoping today brings even better news and more improvement for dear Eme. Thank you for the update. Prayers always, Annette
Shayne Frankel
Welcome back Emerson! Watching Barney and reciting ABC's - life doesn't get much better than that after the last several weeks. Hoping this all continues rapidly, so Emerson and Mom can get home, but quick! Hugs
Annette W
(Couldn't get to the computer until late this Fri eve) Yeah, that amazing, beautiful child is breathing on her own! One step at a time, and that is a big step. I know there is so much else to worry about, but at least there is some positive news. I pray today there was even more improvement. Prayers, prayers, prayers...always!
Lauren Jones Dinsmore
Erika, good news about Eme's breathing. Thanks for keeping us all updated. We think about you two and pray for you everyday. Hoping you both make it home to Denver soon!
Anne Dennon
And so the prayers will continue Erika. Thank God that there is evidence shown us all through the power of prayer. Never ever so well demonstrated for me as in Eme's journey. Praise be. Love, Anne
Annette W
Thurs morn I hope today does bring some answers. At least Eme seems to be resting peacefully; I hate when I read she is in bad pain. I hope you got some sleep last night. Thinking and praying for you.... Annette
Deanna Bingley
Erika, Your messages make me appreciate life like I never have. As my kids get older and they develop their own personalities (aka attitudes), you make me realize how lucky I am for all of it. On days when they are with their dad I miss them always, but tonight when I get them back, I will hug them a little tighter. When my 5 year old exasperates me again, I will again remember that I am so so lucky. Thank you for the gifts you've given us, even without realizing it. Deanna
That is the best compliment anyone can give me Deanna... there's not much I've been able to do the past 4 years, but if journaling helps others to better appreciate their lives maybe I've been able to make a positive impact somehow & maybe, just maybe Eme's battles have not been fought in vain.  Thank you.
Dianne Rios
Praying that Eme just needs some more time to rest and heal. She has surprised you so many times before, I pray she will do the same soon. One thing I know about Eme from reading your blog for so many years is she seems to do things on her own timeline :) I'm thankful to hear the bug is not so bad and have lots of HOPE that Eme will be up and going again after she has some rest. Hugs to you all. Dianne
Rachel Lenda
Praying that you are able to get that sweet baby home to Denver soon. Praying for her to get some rest on the ventilator and for peace for you and your hubby as you make decisions about her care. Hugs ad Prayers Rachel in TN PS The other night my 4 1/2 year old came into my room long after she should have been asleep asking to snuggle while I was reading your blog. Many times I have sent her back to her room but all I could think of was how much you would love to just have a good snuggle with your little Emme without tubes or wires or hospital beds and I enjoyed that precious moment cuddling with her. Please know that Emme's life impacts so many in so many ways.
Thank you for sharing that Rachel... it brought tears to a weary mom's eyes.  Soak up every snuggle you are blessed to have with your sweet little girl!
Emelie
  Erika,       I am praying that Eme does her little magic as she has always done, and feels better (the best she can) soon., so you can go home and as I have said before, "there is no place like home".   (((((((((HUGS)))))))))))))
Shayne Frankel
Hi Erika - So hoping that Eme stabilizes quickly so you can both be on your way HOME! Am sure Dad and brothers are hoping so even more than any of the rest of us. Wishing you a peaceful night! Hugs
Annette W
Tues eve I just read your letter from tonight. I am praying tomorrow brings some better news for you. I know how badly you want to get Eme back to Denver and home. Hope you are able to get some sleep tonight... Prayers, prayers, Annette W
Annette W
Of course my prayers and thoughts are for you and Eme in Omaha. Your ideas about Denver seem to be what would be best. It has to be so much better having Eme "home" in Colorado. I hope it works out soon. Your decision to get back to Omaha was certainly the correct one. As good as Children's Hospital is in Detroit, I am sure, as yu said, you are more comfortable with the hospital staff, etc., in Omaha. You sound so tired; I hope you are able to get some rest. Try to focus on those wonderful days at the lake house....some good memories there! Thank you for the update....prayers and thoughts....
Lisa Pramod, St. Louis, MO
Erica, I have been following your story from the get go, logging in almost daily to check on updates and praying for your entire family. I know there are many, many prayer vigils being held for beautiful miss Emerson. She is such a little princess but the diva in her has gotten her this far! Sassy, stubborn and running the show. You go girl!You have shown the world Erica, the power and strength of a woman and mother. You have redefined the phrase, any mother would do whatever it takes for her child. Such an inspiration you are! In addition, at least for me, the lessons you have taught me are endless. You have no idea what those lessons are and that is not what is important here. Just know that through your own pain and suffering, sharing that pain, has helped millions! As you know, Eme is running the show here. Take her lead. Lisa
Liz
Prayers and hugs for you!!! Omaha is the best place you can be. Liz Robb
Rachel Lenda
Praying for sweet Emerson and you to have a restful night. Praying for wisdom for the doctors and you and your husband. PRaying for God to make clear His plan for Emme and give you a peace about whatever that is. Praying for healing and more good times for your family. Hugs and Prayers Rachel in TN
mstar04
I was so happy to hear that Eme had an uneventful trip to Omaha. I was praying for her all night. I pray that they find out what is making her so sick so she can feel better ASAP. Love, Lori
Annette W
I was so happy to get your letter from Omaha and to learn the flight was uneventful...thank goodness! I am also glad that the decision was made, and it sure looks like it was the correct one! I pray Eme's numbers improve and that nasty infection can be wiped out or at least kept at bay. I hope, too, that you can get some much needed rest. I bet it does "seem like home" in Omaha with all the familiar faces. That has to comforting. Get some rest...thanks for the letter even though you are exhausted; we all appreciate it! Prayers always.....
Anne Dennon
Oh so happy to read your arrival message. What a relief. Sorry I don't do facebook so maybe I miss out on some of your quick updates, but I was so glad to get your message this morning. Thank you for taking the time and exhausted effort to let us hear from you. The power of prayer is so wonderful Erika. I will keep mine coming your way. Love, Anne
Kathy Pasveer
My heart goes out to you and your family. The strength it takes and the courage to proceed with a transplant is remarkable.. I have a 9 month old son who suffers from a Urea Cycle Disorder called Citrullinemia. The goal is to protect his brain.. but for how long until further complications? The talk of a transplant had been reviewed... I'm selfish to say I couldn't put Oliver through it.. And here I see Emerson's fight, and my goodness is she Ever a strong willed little girl.. The love and support you as a mother provide is so evident in Eme... The power of prayer is truly very strong... Emerson's support network spreads far out this way in Ontario, Manitoba and Alberta Canada. Thinking of all of you.... Each moment of everyday. Thank you for sharing your time, and your story... It's not easy juggling it all.. Yet that is what we mom's of extraordinary children do... We do it all.
Amanda Perry
You and your family along with eme are in my prayers forever...i could not imagine what u r going thru ....i have a 3yr old and i could not imagine what i owuld do if i had to go thru what u have to go thru...u r truley n my prayers.... Dear Lord, Please keep Eme and her Family safe and try n heal Eme because she deserves to enjoy her childhood...If there is a Fighting chance that she wil be ok lord i know you can take care of it..please in your name i pray.. Amen
Teresa
Hello, I have been reading since you moved to this site but just figured out how to post. Prayers going up for safe travel, improved health and answers. I will continue to check in often even if I do not post, know that I will be reading and praying.
Lauren Jones Dinsmore
Erika & Eme-- Safe travels to Omaha. We will be thinking of you all night. Wish you were enjoying more time on the beach. Praying for a safe flight and a better tomorrow for Emerson...coloring sounds good! xoxo Lauren
Liz
Hi Erika, you have no idea who I am, but I saw your link in Facebook through Alicia Barrett's post. You have touched my heart and I am praying for your family all the way from Montana. Bless you and your little girl. I cant imagine your journey.
Kathy Russell
Oh Erika. Please don't second guess yourself. Just keep doing what feels right at the time, and trust God with the rest. As long as you have strong feelings about what should be done each day, then believe that is God taking care of the decisions for you. He is with you every step of this journey, and He will not leave you. Let Him carry you when it seems too hard to take another step. Our prayers continue for your precious daughter.
Shayne Frankel
Dear Erika - Hopefully you can believe that yesterday you made the right decision for Emerson based on yesterday -- today you're making the right decision based on today. That crystal ball is just so very elusive. Hoping the transport goes smoothly for Emerson and you. Hugs and prayers!
Anne Dennon
Hang on Erika. I'm with you and praying for you both. Something told me to check my computer just now. Will visualize you both landing in Omaha ASAP. Praying hard for Eme to stabalize for the flight. Love, Anne
Annette W
I am praying that Eme gets to Omaha ASAP and tomorrow will be a better day. (It's 3pm Saturday now....hopefully you are on your way....) Thank you for letting us know what is happening. While your feelings and thoughts are so sad to read and make my heart ache for you, what you are saying is so understandable. Can't imagine how hard this is..... Do know there are still so many out here that are praying for all of you and that you are never far away in our thoughts.......
Dorothy
Praying that everything works out for the best.
jse107
You are an amazing mother--no decision you make will change that.  Wishing your whole family peace and understanding in the coming days.  My thoughts are with you and Emerson for improvement and comfort.
Dianne Rios
Praying...
Lou Ann
Praying, praying, praying. 
EMILY TAYLOR-WHITE
Praying that God WILL ease your mind & take the wheel!!!! xoxoxo!
Laura G
My prayers are with you and your family. Emerson has fought long and hard and all her good days are well deserved. I pray that God gives her more quality time on earth with her family. However, if that is not possible, I pray he takes her home. I am not a parent and do not know what it is like to have a child with a life threatening illness. I am just someone who loves and works with children with special needs. It was devestating to lose my grandmother to a terminal illness/pallaltive care situation in the home in 2009, but I've heard that nothing is comparable to a situation with your own child. Only you, Emerson, and God will know when the time to stop fighting is. -Laura
Stef in Maryland
Erika ~ I hope for a resolution that is both beneficial to Emerson and is one that puts your mind and heart at ease.  I hope that they are one in the same, and if they are not, that you will gather the same faith and wisdom that has always seen you through in order to make a decision. I remain in awe at your composure & eloquence despite the near unbearable stress, and feel deep down that your grace & dignity will be rewarded.  
aliceshea7735
I pray God will give you peace which passes all understanding.
Annette W
My prayers are for God to help take some of these heart-wrenching decisions out of your hands and into His. You are undoubtedly the strongest woman and mother I know. You have spent these last years making so many decisions and choices for dear Eme; none of these can be regretted or questioned. I pray that now He makes it so that it is easier for you to decide on next steps.....however and whatever that is. My prayers are for continued strength...for all of you. I am glad you feel better about Children's Hospital. They sound like they are doing all they can. Omaha's input would certainly be helpful, too. I hope you get some sleep tonight.... Prayers, prayers, prayers......
Sara (sarajack from Liver Families)
I don't even know what to say Erika......I won't even begin to try and imagine or understand what you are going through......all I can say is that you and Emerson are in my thoughts and prayers. When worry consumes me my mom always says, "Give it to God," as hard as that may be sometimes. I pray that you are able to come to a decision, and know that you will be supported with whatever decisions you make.... xoxo
princessellen1
Erika, I have asked friends and family to continue prayers for Eme, you and the family. Thanks you so much for your continual updates and the beautiful pictures you recently posted of a very happy Eme this summer! It was great to see the boys smiling too! Blessings to you all. xoxoxo, Ellen O'Connor
Anne Dennon
Have been thinking about you both constantly as usual. Kept Eme on the prayer list at church even though I hadn't heard recently. Will keep the prayers coming. Please know that I continue holding you both close to my heart. Keeping good thoughts going. Love from Bainbridge Island, Anne
Annette W
Yeah! You both got some rest...good news! Hope today there is even more improvement, and you get another night of sleep tonight! Prayers, Annette
Lorelei
Eme is one of the toughest little girls, I've ever read about. She simply amazes me!! I wish for her to get to her happy place again, so you can head back to your happy place!! No one will ever know what this journey has been for you, until they walk in your shoes. Your a tough Mama as well!! It's amazing the things you learn being with a critically ill loved one. May God Bless you Both!!
Kathy Russell
I've been checking in all summer. I'm so sorry Eme is back in the hospital, but hopefully she will be out soon and you can get back to the beach where you belong. I'm glad things are looking better today. Our prayers continue, as always.
Annette W
I so hope you were able to get some sleep..... Prayers...
Ana Anselmo
{{{{{Hugs}}}} and prayers! xoxo, Ana and Savannah
Emelie
 Erika,     sending prayers, (((((((HUGS)))))) your way.       Em  
Dianne Rios
I'm so sorry for the latest :( You guys were having such a good run of things! I hope that some antibiotics will do the trick and you'll be able to go back to the beach again. BTW, I am shocked that in this day and age parents are not allowed to sleep in children's rooms (even to nap!). I know it's the PICU, but I think it's pretty well established that children do better when they are with their parents. I hope you can get a good nights' sleep tonight and feel better rested. Prayers...
totally agree Dianne... I too was shocked! 
ShayneF
Dear Erika -  So hoping these doctors are able to get treatment started quickly, that Eme responds and you are OUT OF THERE and back to the beach!  Sending hugs and prayers.  Shayne
Diaz Family
Prayers being said for Eme and for you.
Annette W
I just now read your latest blog.(Thank you sooo much for writing.) Here I thought all of you were still having fun at the lake house. (Hang on to those beautiful memories:) I am so sorry that Eme is back at Children's Hospital. It sure does not sound like they are as accommodating as one would like. There's no place like Omaha, I bet. Just so Eme can get out of there and back to the beach..... I have never stopped praying for you and Eme (or thinking about you!), and certainly will continue these days. Hope, prayers, and hugs.....
Neil Connor
Emerson is going back into the hospital. Please check the Pray for Emerson Facebook site for Erika's postings.
Neva Field (Lucy's Oma)
I check your site pretty much every day and am so glad you've gone this long without posting. That tells me you're all enjoying your summer and things are going well!
Heather
Hey, so i see by the last comment in here that your photo session went well. i hope that you can get some of those pictures up soon. i would love to see Ms Emme playing with her brothers & cousins. i bet she is loving every minute of it.
Clare Johnson
It gave us such joy to watch your Whole Family enjoying one another.    Emerson had so much fun going through the 'carwash' (sprinkler).  Having observed your photo shoot  : ) .... the pictures should be wonderful! Love you, Marv and Clare
Elaine Michael Urrutia
Hi Erika and family. I was just checking in and read your most recent "beach house" post. So, so happy to see that. Have a wonderful summer.
Emelie
  Hi Erika,     Just checking in and hoping that you and your family are enjoying your summer and being home.     ((((((((((((((((HUGS))))))))))))))))   Em  
Maria
Erika, I love hearing the upbeat tone in your voice (words), and how seamlessly things sound to be falling into place at this time. I hope Jim's visit is a time filled with memory making, and I look forward to seeing the photo's captured by your photographer - pure, simple, life being lived :)
Robyne Birk
Erika, Thinking about you and hoping your ribs are feeling a little better! Robyne
Sven (from LF)
I am so happy to hear that your dream of a beautiful summer at the beach has come true. The right decision, for sure... I hope you will all continue to enjoy this beautiful family life - thank you for sharing some precious moments with us. I'm thrilled to hear how Emerson seems to have blossomed (language, mood, appetite - swallowing is obviously overrated :)).
patti
I am so happy to hear how you and your family are enjoying your summer. It truly is amazing to read that post. Enjoy, enjoy, enjoy! Thank you for keeping us in the loop. Wishing you many more weeks of family, fun, laughter and sunshine!
Annette W
I have tears of joy in my eyes reading your wonderful post. I am so, so happy you are in Michigan and having such a deserved good time. Emerson has to be tickled pink to be with everyone and being in such a beautiful environment. Enjoy, enjoy! And thank you for your wonderful words of wisdom to help remind everyone to enjoy every single day.......
Rebecca Kottman...
What a wonderful post! Having grown up in Michigan myself, I always think how like the ocean the great lakes are! So from the point of view of a child, it CAN be the ocean! Have a wonderful summer and thanks for letting us know how you're all doing! Truly, you are special special people! Rebecca
Mollie
I hope you are in Michigan enjoying some family time. Hang in there!
Laurie & Shania
Hope you all enjoyed the 4th of July holiday! You all deserve to have some good quality time together! Shania was at the hospital on Thursday for her yearly appt. So we must of just missed you guys. Shania is also volunteering over the summer! I hope that Eme is doing better! Hope you all have a great time in Michigan! Take care! We're always keeping all of you in our thoughts & prayers!
Robyne Birk
Thinking about you! Praying you are having a fun, enjoyable time in Michigan and that Emerson is doing as well as can be expected. Hugs!
Dianne Rios
I can tell you are at peace with your decisions. You put it so eloquently when you talked about giving her the chance to LIVE. I pray that God will continue to watch over Eme and guide you along the path you are on. And I pray that you will all have the chance to live life to its fullest as a family. God bless you.
Rachel Lenda
oops previous message was supposed to say "sweet memories" Rachel
Rachel Lenda
Praying for you all praying for sweet Emerson to make it safely to the beach and that you all are able to relax and make sweet as a family while you are there. Hugs and Prayers Rachel in
mh84160
Enjoy EVERY minute at the beach and know our thoughts are prayers are with you!
Mandi Becker
Erika, While I miss having you and Emerson a short drive away, I am so glad y'all are back in Colorado and have this time together as a family. Continued prayers as you head to the beach. God continues to bring me peace through His selected messangers, and it seems Aria's parents were His chosen messangers for you. He will never abandon you and will guide you along your way. Thinking of you and praying for you. Tell Eme her Mammie misses her.
Annette W
I am thinking about you and praying for an uneventful trip back to Michigan, whether by air or car. Thank you so much for posting. You are so wise, my dear Erika......
Trisha Kurtzhalz - Helen's Grandmother
God bless. Sending love and prayers.
Sven from LF
From the tone of your post I can sense that you have come to the right decision for Emerson at the present. I hope she will experience wonderful days at the beach with all her family surrounding her. Sending all my best wishes for your little girl and for you.
Brynn
Praying for you friend....hoping you get to spend some quality time with your family soon. Love you.
Kathy Russell
I'll be praying that God blesses you with a wonderful, memory-filled trip. Clearly He has his hand on Eme and is watching over her. Have a great time with your whole family!
Alice M Shea
Dear Erika, I pray That God will be your strength as you continue on this next step. I pray all the details will come together so the whole family can have a blessed time with enough memories to last a life time. Love and Blessings Alice
emily taylor-white
Please know that we are praying for you all!!! Praying for strength, clarity of mind, happiness, and precious wonderful summertime moments!!! SO want this trip to work out for you all!!! Continue the good fight!!!!
Ellen F
Erika, Your fierce determination and confidence remain so strong! It warms my heart to know that God answered your prayers yet again. Who knows what tomorrow brings for any of us; if only we all could live our lives with the clarity of purpose and alignment of priorities that you have found. May peace be with you and God's will be done. All my love and prayers are with you! You know where to find me if you need an "old" friend's support while you are in Michigan. I will drop everything for you. Ellen
janice hanna
what a wonderful thing that you and Aria's parents have been able to support each other and bring each other peace. Certain people do come into our lives for a reason it seems.
Clare Johnson
Erika,  We thought we would be seeing you and your family at the cottage this weekend.  Praying God will guide you and bless you.  We send our love to you, Jim, Collin, Bradley and Emerson.   Marv and Clare  
Trish Adams
Just wanted to share with you that we support your decisions no matter what. Joy, pain, smiles, and tears all well up inside of my heart as I read your entry. Quality of life. It is my hearts desire as well. I know without a doubt that giving her quality of life will ultimately bring peace to your hearts. The most precious memory of Eme comes to my mind as she played and played at Ashley Kate's birthday party last summer. I'll hold that image close to my heart for all of my life. Thank you for sharing her with us. It truly was a joy to see the world through her eyes during those moments. I love you my friend and pray our God blesses you and Jim and the boys and Eme wonderful days at the beach and precious memories. Sincerely, Trish
Ana Anselmo
I just hope you can feel the love that is being sent to you and your family. Always in our hearts! Ana and Savannah
Lauren
You're the parents, and you know what's best. May you make joyous memories and have peace in the days ahead. Come what may, I am praying for God to grant you, Jim and the boys clarity, serenity and the protection of His embrace.
Rebecca Stevens
As my sainted mother would say, may God rest her soul, "everything happens for a reason" or the current wisdom, there are no accidents, no coincidences... I truly believe that. And you are right...this was not your time to make any kind decision. Obviously, it was a divine intervention of the highest order. Exactly. The very fact that you were IN THE EMERGENCY ROOM? One of the miracles... Hang in there, say hello to my beloved Michigan and tell Jim howdy from Rebecca at Channel 12. Rebecca Stevens
Annette W
Your words were so wise about what just happened. I absolutely believe what you said about the "time" is so correct. I am saddened, though, that your trip has been delayed (and I am thinking delayed, not cancelled:). But I am happy about your positive visit with Aria's parents. They sound as special as you. Thank you for the update. I am still praying for all of you, of course. Take care of yourself, too.
Jennifer from Missouri
Gosh Erika, how do you do it? I have been keeping up on Emerson since day one of your blog, I have not put an entry in the book because I jsut didn't know what to say until today. You are so strong, I could not imagine a life without my children but when they have gone through so much in such little time its so hard to watch them suffer and knowing they will not suffer anymore when God decides to bring them home is a peaceful feeling. You are an inspiration to me and my family!! Please know that Emerson and your family are in our prayers!!
Maria Connely
Erika, I read your message with tears streaming and a smile forming, with the understanding that you and Aria's parents are able to come to a place where you can be at peace if/when it is time... The ability for Eme and you to be at home is built on priceless memories, and I am truly happy for your family for that time together. When you make it to the Michigan shores, if you have an afternoon, I would love to make the drive and see you all... Much love, Maria
Sven from LF
I am deeply in awe of the way you and Jim, and in a different way also Aria's parents, handle the immensely difficult situations you as a family are in. Thankful to hear that this was a day where the burden of decisions was taken from you - and much impressed by the sense of peace of mind that you seem to have found regarding the unsure future. I hope that the fluids and treatment will help Emerson to recover quickly enough for your family month at the beach! All the best.
Shital Patel
Hoping this is just a hiccup in your plans and you are able to spend time with your family at the beach. Lots of love and prayers :-)
Trisha Kurtzhalz - Helen's Grandmother
Wishing you wonderful days of sunshine and sand with your beautiful family. Sending prayers and love.
Sven from LF
Just wanted to let you know that all my best wishes are going out to Emerson and to you all as a family. Sven (from Liver Families)
Brian
Please tell Emerson hello for me. I miss you two! I'm happy that you can all be together as one at last! Hope you enjoy your time at the beach, and also hope you get some amazing photos!
Karen W
Thank you for your last post. Enjoy your little girl and your time as a family. I'm SO glad you're all together right now... Prayers and love to you all.
annette weiland
Annette W Oh, how happy I am today that I have finally been able read your blog!  Everyday these past few weeks I have been thinking about you (and worrying!).  I am soooo relieved you and dear Eme are at home.  As you said, exactly where you should be. Thank you for the long letter of today (the 23rd).  I certainly will say prayers for Aria and her family.  Of course prayers, too, for all of you to have some laughs and smiles together.  Take care of yourself.... Prayers, Annette
samanthas
Thank you for being Anita's special friend and confidant. I know she has admired you for a long time, well before arriving in Omaha. I'm sorry for you too, having to lose another beloved transplant friend. While we will be welcoming the Macdonalds back to NZ, I know you will be missing them. Emerson will always be in my thoughts and prayers. From one transplant mum, and friend of Anita's to another, x Samantha x
Thank you... I will miss them terribly. Anita reminded me just yesterday, tho, that we'll always be only a phone call apart :)
Joyce J from IL
Very sorry for Arika being on her way to the heaven that is very sad for her family and we will pray for their safe trip back to New Zealand. It is very hurt feeling to read her news. It is her mom who was very brave and accepted her death which I really can not do that myself if I have a sick child. Glad Emerson and Arika got to know each others and enjoyed playtime together, Glad you and her mother got to know each others and should keep in touch forever. Glad to hear that Eme is doing so good and Excited to pray for her to make it to go on family trip to the beach next week. I am sure she is excited to see her grandparents so much. We will pray for all of you for safe trip you will go on. Let us know how her visit at the Denver Hospital is going on. WE will pray for her!
Maria Connely
Just checking in on the beautiful White girls. Hoping you are spending quality time being HOME as a family :) You are never far from my thoughts and prayers. Hoping to see you all in Michigan in July.
Barbara Bynum
How do I find your blog. I've been praying for Eme for a while and would like to read updates. I will try FB. Love to you all for a time of health and happiness. Ashley Kate had a wonderful vacation. Trish has posted pics. Eme and Ash are 2 of the most amazingly strong kiddos I have ever seen. Have a great weekend!
Barbara... click on the word "Blogs" on the left hand side of this page. That will take you there :)
Jenn Y.
Your home! Just what you all need and I am sure it will be filled with many smiles. Always remember, I am checking in and prayer and hoping for all of you. Peace and love, Jenn Y.
Stephanie
I am again glad to hear your amazing family is all under one roof, and you are getting quality time with each other. I was trying to find you on facebook but unable to, can you email me at steppysemail@yahoo.com and let me know how I can follow updates on there also. Thanks, again your amazing daughter Emerson (The Miracle Fighting Angel) and family are in my prayers each day.
patti
Hope you are enjoying some family time together. Always in our thoughts and prayers.
Dawn
Erika - You are AMAZING!!!!! I have been following Eme's progress for a couple of years or more. Every day I check in to see how all of you are doing, and I marvel at the awesome mother that you are - all you've done for your sweet girl, and for your boys, too. And you do such hard things with such grace. I'm just so sorry that all of you have to deal with the things you are. Know that so many people are rooting for you each and every day.
Stephanie
I am glad to hear you made it home with your sweet Emerson. Your family is so amazing, and wish things were going another way then what it is. Your family is remembered in prayer day and night. I am sure Emerson is happy to be home, and wish the best for her. She is so a fighter, and always shows. She is so adorable, and I am glad you are all home together. I would like to find you on facebook, but I can't find you for some reason. Can you tell me what your name is on there? Praying day and night for your sweet family. Stephanie
emily taylor-white
SO SO glad your sweet family is all together in Colorado!!! Dorothy Gale said it best "There's no place like home!"
Maria Connely
Erika, I am sure it is not easy being home, and managing all Eme's cares on your own, but I cannot think of a better place for you all to be...  I am truly happy for you that you can spend your summer with all your boys and Eme.   Positive thoughts coming your way :)
Linda Alexander
   Erika, I am keeping you and your family in my thoughts.  Hope that you had a safe trip back to CO. Linda Alexander
mh84160
I am so glad you are back in CO.  I live in Kings Deer and I would *love* to drop some meals by your house to help you ease back into life at home.  If you are interested /*please */let me know. melissa  
Tracey Nies
Hoping you had a good weekend and that Eme is more comfortable. So glad to hear you all are HOME and TOGETHER! The boys and Jim must be so glad to see you! Keeping Eme is my thoughts. T  
Patti
Always in our thoughts and prayers....
Emelie
  I am so glad that you are all home and together.  As I have said before there is no place like home.  You can now enjoy your long awaited family time.  Have a wonderful summer.    I will continue checking in to see how things are.     Prayers and hugs to you all     Em
carol
I seached "pray for Emerson" on facebook, and it was the first listing--
sandra
thanks for the update. I would like to get FB updates but can,t find you there if someone has time can they tell me your full FB name etc thanks
Stephanie
Praying for Emerson, I too had a hard time finding new site and was/am very concerned! Hoping for an update soon but trusting the One who already knows what's going on. God grant them peace and rest and healing for sweet lil Emerson and her family, she is such a fighter!
Kate
I know things are probably crazy right now, but if someone could take a moment just to let us know if things are OK, it would be great.  It's difficult to read scary "crisis" posts followed by long silences . . .even a "Eme's holding her own and I'll post more later" would set many minds at ease.
Sue S from GA
Praying for little Eme. I too, was very worried by Stevers comment. Hoping someone can update us soon. Had trouble finding the new site. I had to contact COTA. The old one kept saying page not found. I am praying so hard and so often for the White family.
Heather Boznango
Thinking about you guys...if anyone has an update, it would really be appreciated.
Carmelita & Zach
Thinking about you guys.
carol
Could someone please update as to what is happening with Emerson...please?
nancy
Stevers comment has me worried, if anyone.could update that would be great. Praying for Emerson and her.family!!
Nancy213
I am a new nurse that has been following Emerson's story through the last year of nursing school. What a fighter she is! I'm still praying for your family! God Bless you all!
mollie
Hoping for an update today--- praying for Emerson!!
Cassandra
Thinking and praying for your family! You are obviously an amazing mother and have a very strong little girl! Keep fighting Emerson!
Lauren
Thank you, Melanie! I am relieved!
Lauren
What is going on? Is the site deleted? Is Eme okay?
No, the site was upgraded - you are on it. Erika's journal is under "Blog" - she'll be updating again soon.
keoafret
Love to all, will always continue to pray.  Will continue to check here for any news.  I'm a friend of Aiden in Fla.  Please know that we out here in the world will continue to lift you all up and support you in any way we can. Love, Kathy O'Neill
leslie
I saw in another blog you and Emerson may be home or on the way home. If so I wish youbthe best of luck! Still praying!!
Trisha Kurtzhalz - Helen's Grandmother
Thinking of you.... Sending love & prayers from Vermont.
poohlet10
I'm so sorry to hear Eme's liver is so sick. I hope they are able to do something soon. Is she able to be on the medicine that Ashley Kate is on? Lots of prayers for you all to be home soon so Eme can see her brothers and Daddy and her sweet Bella. - Lisa
Mollie
Hoping and praying for Emerson. Praying that her liver is improving. Update when you can--- Praying!
Mary Lou
So sorry that your blog isn't working. I check it every day to see how dear sweet Emerson is doing. God bless you all.
Sandra
praying for your family, missing your blog but appreciate that sometimes you just need to focus on you and yours Sandra, New Zealand
Teresa
I continue to pray for Eme and your family. I hope that you are getting some answers that will allow you to head home soon.
Sherri
I wanted to let you know I am praying for Emerson. I have followed your story for almost three years now, and I hope that the blog being down is just a temporary thing. She is a beautiful little girl and it breaks my heart for you all that there have been so many complications. I pray that you are able to bring her home soon!
Jennifer
Been checking, and checking. I won't stop praying!
DanielleD
As ever you are in my thoughts and prayers.  I hope this week brings better news.   Danielle
Missing Emerson's blog...
I hope you put it back up soon, we miss that beautiful face...
Dianne Rios
I'm sorry you weren't able to go home as planned :( Hoping Eme's labs start to look better and you will be on your way home soon. Continues prayers...
Christine Bonac...
Continued prayers for Eme!!
sandee mcminn
Hi. Thought I had lost your blog. I'm assuming you changed it. I've been praying for Emerson for a long time and will continue to pray for you and your family too.  She's a precious child.
joancat1
Okay, a different look.  Gotta figure my way around.  I am praying her liver is starting to behave.  Sending lots of love.  Joan and Kylie
crystaltigerlily
Sending lots and love and prayers from Tigerlily(liverfamilies) and Crystal(mom).
Stef in Maryland
/We are saying our "FIFI", Find It ~ Fix It, prayer for Eme.  /
Sara Magera
Sending lots of prayers that you will get home soon!
dove437
Hoping the sun is shining for you guys in Omaha and sending lots of love and prayers!   ~Tifanny, Denver
Ginnie
So sorry to hear that E's liver numbers are not looking good. I was also sorry to see that you took down your blog. Hope you can share it again with us soon. We pray for E.
Joyce J from IL
That is very sad to hear that you did not make it to go home as a discharge yet. I bet Jim was upset again. Hope they can find a way to fix the liver or to straighten meds out... Maybe without meds, she should feel more better...Hope labs will show better by tomorrow (Wednesday)...Hope Emerson will not survive with the mess up again. WE will PRAY for her and YOU, Erika!! Hugs, the Jackson Family PS Rummage and Flea Markets turned out real good & very crowded and now we have two more ice cream socials by end of this month and next month before the church will send the money out to your hospital. Thanks!!
Julie
So sorry your weekend plans were changed. Hoping & praying for improved labs this week and that you will be able to head home soon.
Someone who cares...
Having liver issues in my own family, I hope the doctors will watch her ammonia levels closely, if they rise too high, it causes encepholopathy and can make you go comatose. High doses of acetametaphin (Tylenol) can cause liver damage, and eventually cirrhosis. I pray your little one improves...she's absolutely beautiful. You've done an amazing job as her Mother, Erika. Hang in there!!
Sven (from LF)
Iam so sorry to read of Eme's sick liver. Even though this is certainly not the most important aspect, would blood infusions help with the low platlets? (I assume they are the culprits for the bruises, blood blisters and nose bleeds.) All my best wishes going out for Eme - that her liver improves and she can leave the hospital with you soon.
Emelie
Erika, I am so sorry. I knew how excited everyone was to go home. I hope everything works out for you and Eme on Wedsnesday. Her picture is soo adorable. Hugs, & prayers, Em
Annette W
How so disappointed to read you are still in Omaha. I am sorry. Here I was wondering how you were doing at home.... Thank you for the photo of the dear sweet pea. Prayers for her...and you. I hope Wednesday will give some answers. Always thinking of you, Annette W
Sue S
Oh, Erika! I am so sorry it did not work out! Sorry for Eme, you, Jim and the boys! I will pray for answers on Wednesday.
Lisa & Rhyleigh
Tons of prayers for Eme. Oh I can see the smiles from here!
Candice Behm
I pray Emerson will surprise us all! Safe travels. My thoughts & prayers are with your whole family.
Anne Dennon
Thinking of you all under one roof. It's a very happy thought. Just want to send lots of love your way. Know that you remain close to my heart and that prayers continue. Anne
Sean, Chelle and Carter Cates
Sunday evening late and checking in one more time for heading to bed. Always in my prayers. Good night precious Eme. Kisses and hugs from Texas. Love, Sean
Brian
Thinking of you all. I hope the best in the future!
Carmelita & Zach
As always, prayers for Emerson and your family. You are always on my mind and will forever be in my heart.
Lori from CO
I am hoping not to see any post for a long time- because you are enjoying your time with your whole family under one roof . Much love from our family to yours, Prayers continue.
Jean Griesan
Hi Erika, Jim, Eme, Collin, and Bradley! I hope that you are having a fun Saturday at home, and are finding a way to have some quality of life. Even playing in the mud is "quality of life" at our house. Enjoy! Hugs, Jean
Molly
Sending my love, hope & continued prayers!
Brenda Grose
I am so happy that you and your family will be together. I have followed your story for quite sometime and although hard I think your decision to reunite your family is at the best interest of all. God Bless you and your beautiful family.
rebecca stevens
I too look forward to pics from my two favourite places, Colorado and Michigan! Kisses to all...especially JIM...only 'cause we actually MET...and Amy too of course...I'm taking a job in Cheyenne, WY and am hoping to figure out a way to introduce the good people of Wyoming to Erika and her family....you are ALWAYS with me in my heart and prayers...
Beth
sending you lots of hope, strength and love for your journey home to reunite with your family, what a feeling that will be. god bless
B. Dobbins
Praying for safe travel as you head home and enjoy your family!!!!
Laurie & Shania
Hi Erika, I just want to wish you all a safe travel home! Praying that you all can enjoy the summer! You guys deserve a good summer time with your whole family! That's probably the best medicine for Eme to be home with her family!! Love ya guys!!
Ty and Caite's Mom
Thinking of you all and wishing you many happy memories to be made at home. Safe travels.....
Sue S
Praying for you all today - that you will be showered with God's peace, love and grace as you travel home. I am praying that angels will be surrounding your vehicle as you travel making the way smooth. God bless the entire White family! With love, Sue
Colleen McQueen
Praying for ALL of you!! Their is no other family that deserves a summer break.. then you guys!!!!!!!!! Hugs from NY Colleen
Dorothy
Home! That is a wonderful word.
Julie
Thinking of you all this weekend and praying for a smooth drive home!
Janice
Home with your family! What a joyous thing! I know you made the right decision and Emerson will be with all those that love her most. Wishing you a home filled with Love, and good Summer times with ALL of your babies!
moirasmom
Know that my heart, as a mom, and prayers go with you and your family as you continue this journey at home. Wishing lots of hugs and smiles for all of you.
Cindy Dreifort
Erika, I haven't written in a long time, but after reading your last post I had to say that I know where little Eme gets her great strength, she gets it from her Mom. Erika you are the strongest woman I have had the pleasure of encountering, and I have known a lot of strong women. You and Eme are Amazing and I think you have a pretty wonderful family too. You are Always in my thoughts and prayers.
Kerin
I can only imagine what you are going through. Praying everything gets worked out and you and Emerson will be home where yall belong! I have been following Emerson and Ashley for a while. I pray for both girls and check on their status each day. The strength you have shown is AMAZING!! Go home and be a family.
Beth Mintle Lines
I am so happy you and Emerson are coming home to Colorado! Enjoy every momment of each and every day. Your family is continually in my thoughts and prayers. Give Eme a hug from me! Safe travels.
Nicole from MI
I am so happy for you and Emerson that you can go home and enjoy some time as a family. May you all have a wonderful summer and enjoy each day together. You are an amazing Mom and Emerson is an amazing girl! God bless you all.
Maria Connely
I know none of the decisions you have made have been easy, and I commend you on yours and Jim's ability to have made them all. I am looking forward to seeing photo's of the family, in your yard, doing everyday things together, living life to the fullest... Much love always...
Tracey Hill Nies
HOME! Yeah! I am so glad to hear this! I will be keeping you all close to me heart. Praying for a summer filled with happy memories (and many pictures to be posted-hint, hint)! I'm glad you are at peace with your decision. You have proven time and time again, that you know what's best for Eme. Enjoy this time. xoxo T
Mindy Eubanks
Just a mom saying a prayer for another MOM. You have loved your child with everything you are. God bless you and your family. I wish you much quality time.
Emelie
Erika & family, So so very happy that you are heading home and being a family again. Home is the best place to be. Enjoy your summer!! God Bless You. Em
linda cerreto
Good luck sweetheart. Im so proud of you. God bless.
Clare Johnson
Looking forward to seeing all of you 'on the Beach in Michigan' in July. Love and Prayers,
Lori from CO
Sherry put it well- she said what I was thinking (((((hugs))))
Sherry Boyle
Praying that your family gets to enjoy some quality time this summer with your beautiful daughter. May you experience a deep sense of peace with this decision and be secure in the knowledge that He will never leave you or forsake you.
Anne
WOW! You'll be in my prayers..that God's Will be done and that you enjoy that sweet little girl~
Molly grounds
May GOD watch over your family and continue to keep Eme safe. Praying for you always. You are one AMAZING lady Erika. Safe travels home :) Molly
Elizabeth
Praying for you all.
Peg O.
My heart and prayers go with you. Have a blessed and beautiful summer. Peg
Eileen
Been following your lovely daughters journey for quite awhile now. Your love and dedication to her has always been so strong. I pray for your daughter and family regularly. Your Eme is such a strong little girl and I believe your family will have special stars in your heavenly crowns after enduring such times of hurt and pain. Your journey has inspired me. Enjoy your June and July. My praying for all of you will continue. With God all things are possible. She is a special girl and what a blessing she has been to you and you to her.
Dianne Rios
Praying the days ahead are full of precious memories, hugs, and special moments. God bless you all.
Patricia
God speed, Erika and Eme!!!! Wishing you safe and happy travels, beautiful memories of sun, summer, and being together. So grateful, Erika, that you are finding peace with the decision to give Eme all the time you can with her family, her puppy, and wrapped in all the love she so deserves!! Be happy and well!!
Bonnie Branim
Our prayers continue for you daily. I hope and pray you will have time at home and with grandparents in the coming months. God bless you in the journey.
Phyllis Eberl
I have followed your journal for 2 years. My heart goes out to you and Eme and your family. This has been a very trying time for all of you. God bless all of you, I will keep you in my prayers. Hope you get to fullfill all your summer plans. Have a safe trip home.
Tammie Dubs
Along with everyone else, we wish you the most wonderful times with your family in the coming months. We will definitely assume "no news is good news" and look forward to NOT hearing from you for quite some time! Just enjoy each other, home and the wonders of the beach. Kiss Eme for us. Love to you.
Lauren Jones Dinsmore
Have safe travels home to Colorado. Tough decisions you've had to make for Eme and your family. Hope your family enjoys this summer! Cross our fingers that we see you at the lake in July. xoxo
Noelle Krimm (LF)
Hoping to hear very little from you all happy, sunny, brother and doggy-filled, sitting-by-the-lake and splashin summer!!
Crystal
Have a safe and happy trip home and I look forward to checking the blog daily and finding no news! May it be a beautiful time at home full of memories and pictures of all. Hugs
Amy Hillis
I just found your journal and I had to say, I agree with the sentiment - you will know when it's the right time. My son passed away in January.I had to tell the doctors enough and let him go. Your journey has not been easy but through everything your little girl knows she's loved more than life itself - sometimes that's all we can give our children. I hope this summer is full of beautiful memories for you and your family. Peace and Love to you all.
Alice (Boston)
There are always more questions than answers but I hope and pray that you and your family can take a brake from all that and spend the summer just living together and making special memiors. Love and Blessings
Toni
The post before mine expresses exactly what I wish to express. Erika, my heart weeps with you, rejoices with you, and prays for you. May you make some beautiful summer memories together as a family, and even without answers, trust that a great God goes where we cannot, in any life journey, and even into the most hidden corners of our hearts and minds. Prayers for Emerson andfor all of you. Blessings, Toni
Thinking of you always...
Wishing all of you the most beautiful summer ever. I continue to wonder how you do this, and am in constant awe that you do. What an inspiration you've been to so many of us! Emerson is just as blessed to have her family, as her family is to have her. Together, you're all a phenomenal team. May God bless you all with endless giggles and precious moments to last a lifetime. Have a wonderful summer.
Tifanny (denver)
Wrapping you guys in Hugs! Praying for a safe and uneventful drive back home, and the plan goes as intended. Fingers crossed for Michigan beaches, and lots of love for you and Jim and the boys.
Amy - IL
Praying for uneventful travels home and to Michigan this summer, praying for the best health possible for Eme so that she can enjoy it and praying for you, your husband and boys for the most wonderful summer ever. Hoping not to see any updates unless they are photos of fantastic summer adventures!
Blair (LF)
((HUGS))) Eme will love your forever for taking her home for the summer. I am going to pray louder than ever before that it is the best summer ever for you and your family and also that healing will begin outside of those hospital walls. ♥♥♥LOTS OF LOVE♥♥♥ Blair & Xander
Maggie
Good for you Erika..Have a wonderful summer. You are her mom and mommies always know....Always praying for you guys.
Jen Ehlers
Wishing you all the best as you start the next step of your journey. Make as many memories as you can and take lots of pictures. Have a wonderful summer.
Kristie
My heart breaks for you and your family. BUT I know that Eme is a fighter and our God is amazing and will surprise us at times! My husband and I will continue to pray for your sweet girl and family. We pray you have a blessed summer full of lots of memories!
Diaz Family
Praying for some wonderful memories to be made this summer. God Bless you all
Janna
I've been reading for months but have never posted. You're the Mom and I have no doubt that you know what is right for your child! I applaud your devotion to quality of life. I will be praying that all of you are able to enjoy your time together, away from any hospital. God bless you!
jb
Nothing like home and hugs from family for the summer. Wishing you all a fun summer TOGETHER! Keeping all the family in prayers.
Patti
That's great news! I wish you, Eme and the rest of your family a wonderful Summer. It is long overdue. We are always here praying for you and thinking of you. I hope we don't hear from you for a long time (no offense but I like the no news is good news approach :o) Safe travels.....
Michelle Lindemann
Always praying.....I wish you all a wonderful Summer of all things good, and tons of happy memories for the future! Eme is a fighter and has a strong will to live, she has proven that so I have nothing but positive thoughts and prayers coming your way. Thanks for keeping us posted! Michelle (Weston's Mom on LF)
Robin
Erika, Just know that those of us that have been with you since the beginning of this blog will be here praying always. Have a great summer with your entire family. Eme is loved and will always be by all of us out here. Blessings to all the White's, Robin
Sarah Knight
Loving you and praying for many good days ahead for Eme! Our prayers will continue! Sarah Knight
Annette W
I am so, so happy that Eme is out of that hospital room and both of you will head home this weekend. I couldn't agree with you more on all you said. Eme does need some quality of life...and home is the place for that. A trip to Michigan would be medicinal, too...for both of you!!! Prayers for a safe, uneventful trip to Colorado, and of course for strength and healing.... Annette W
Julie B
Erika, I'll be praying for safe travels for you all this weekend and that you have a great summer enjoying your family! Julie
Michelle M.
Erika, You are an amazing Mom and I know Eme and your boys are so lucky to have you. Please know we are all always praying for your sweet girl, and praying for support for you and your family. We only wish the best and hope to hear and see pictures of a family reunited. ((Hugs)) Michelle
Mary NZ
You truly are an amazing person Trish. My wish and prayer for you, Eme and your family is that you will have a wonderful summer as a family, and that you can have some recovery time yourself.
susan
great news that you and Eme are headed back home! Praying for a safe and uneventful trip and a long, lovely summer and everyone being at home when school begins again. Many prayers for the days to come.
Kim M., St. Louis, Mo
You and Jim are doing the right thing for Emerson, and for your boys, Erika. Continued thoughts, prayers, and abundant HOPE. Enjoy your time as a family.
Trisha Kurtzhalz - Helen's Grandmother
God bless. I am so happy to hear that you are heading home and hope NOT to hear from you all summer!!!! I will think of Emerson playing at home with her brothers (and daddy) and sitting on the beach with the sun on her face and sand between her toes. Sending prayers and love from Vermont. ENJOY!!!!
Kim p
With eme, I've learned to never try and predict anything! Enjoy every minute with miss sassy pants! :) give her a big hug for me and good luck with the move back home! Love you guys!
Sven (from LF)
I'm hoping you can take as long a break from this blog as you feel you'd like to - fingers tightly crossed for no news is good news to go for a long time. This must be more difficult than I could imagine. Still, it gives Emerson a chance to live with her brothers and parents outside the hospital, and I'm sending all my best wishes out to this sweet and tough little girl that she indeed will suprise us all, doctors included, immensely. May you have a beautiful summer with as few medical interventions as possible.
Sam (fairenuff)
There's always hope. Sending oodles of love. Sam Xxx
Lorie M of Missouri
Dear Erika, I have followed your blog for a year now, I have never left a comment because I don't personally know you or Emerson. But I do know this from the journal readings. You are caring, passionate, loving, and you a mother like most with a chronically ill child, you have Hope! Some might not understand your fight for a your child, but they don't need to understand it. You fight because it's all you know and like you've said Emerson is the one who fights back and survives you're her cheerleader and that's a mothers first instinct is. I don't know how you do it but you are doing a great job!! I don't know what the future holds for Emerson and you but I hope and pray it works out for the best! Welcome Home Emerson and Erika, Welcome Home!!!! Best wishes sent!
Maria Connely
Hi Beautiful girls - just wanted to say I am thinking of you :) Little Ms. Eme, I plan to see you at the cottage this summer, my little Elly wants to meet you too!!! HOPING things are improving and those 48 hours grow to many, many days spent outside the hospital with your family :)
Patti
Thinking of you. Hoping you had a quiet weekend (or as quiet as it can be). Thoughts and prayers are always with you.
Dr. Jenn Berman
Thinking of you and Emerson... wishing for a miracle. Your amazing strength inspires me as does your beautiful way with words.
Lori from Co
Just checking in looking for updates and praying for innovative ideas and plans that make a miraculous difference for Emerson.
Annette W
Thinking of you...
tracey Hill Nies
Hoping Eme is doing well and that you are enjoying a quiet (well as quiet as can be) weekend together. Happy Memorial Day.
Sven (from LF)
Wishing so hard for Emerson and for her friends...
Lucetta
Prayers always. xxx
Kristi Cole
Erika, Your last entry was spot on. We do live in a different world that most will never understand. We do find ourselves VERY attached to many of the kids, and hurt when they struggle and mourn when they pass. The boys and I continue to pray for Eme. Praying they can figure out what is going on with her so that you can ultimately get home and she will feel better. Prayers, Kristi Cole www.brodysdream.org-(New website in honor of Brody)
Trisha Kurtzhalz - Helen's Grandmother
Praying that yesterday was a better day and that today will be even better still. Sending love & prayers from Vermont.
Laurie & Shania
Hi Erika, Hope today is a better day! Shania ended up talking to PM to help her deal with her pain she went through. Some of the advice was to try playing a game or distract her, that was easier said than done. The doctors use to think Shania was faking her pain. So you have to use your mommy's instincts! Hope Eme's pain goes away soon! Always keeping all of you in our thoughts and prayers!!
Stefanie
Erika, Once again, your eloquence and ability to see beyond your pain and stress is admirable and motivating. From experience, when our daughter was just a bit older than Eme is now, we found that calling in the pain management team was very helpful. As parents, it gave us the option to "vent" about her pain without implicating the GI/Transplant/PICU team. The PM team is, in a sense, more neutral. Ultimately, we wound up using a morphine pump with maximum settings based on her age/weight, but she was allowed extra pushes which didn't deliver extra med yet gave her the illusion of some control over the situation. We found the fentanyl patch to be helpful as well. Sending you love and strength through cyberspace.
Trish Adams
Your words...so true...so honest...so real. Honored to know you. Hurting for those in our community and all the struggles that accompany the joys we experience with our precious children in between. Praying for Emerson tonight. Sincerely, Trish
Theresa N.
I have followed Emerson's story since she was featured on MACS. I think about her and your family often, and pray for her recovery. “I think a hero is an ordinary individual who finds strength to persevere and endure in spite of overwhelming obstacles.” Christopher Reeve
Wanda Vermeer
Just read your blog about knowing if Emerson's pain is ral or bahavioral. Yars ago when my son "lived in a hospital' as much as Em does, tho for different reasons, I had had it with nurses who wouldn't give him the meds I knew he needed to keep him breathing because"it wasn't time for them". When the doctor made rounds and saw how he was laboring to breathe he asked me why they hadn't administered the adrenolin he needed and I told them. He immediately told the nurses "This is this child's mother. SHE knows him better than we do. if she says he needs it, give it!!" Hang in there and go with your gut feeling. She is your daughter and you know her better than they do about things like that.
Annette W
I just read today's post (it's Fri afternoon). What touching words you wrote. They certainly brought a tear. I can't begin to imagine what you and other "transplant" parents have gone through in this journey. But your posts have certainly helped the rest of us appreciate life and re-think what we always thought was important. Boy, that saying "don't sweat the small stuff" is so applicable; one just has to realize how much of our life IS the small stuff and focus more on what is truly important....and be thankful for what we have, most especially the people in our lives. I am sorry for the frustration with some of medical help. Most of all I am sorry for the pain poor Eme has. I can not imagine her "faking" it!!! I so hope those meds help! Thank you for posting again today. Praying for better evening and a better tomorrow..... Annette W
Rhonda Pruitt
As I read each and everyone of your post I learn so much from you. I think back almost a year ago when my "Little" Eli was in the NICU on the vent fighting for his life and how much you helped me cope. I wish I could repay it to you. Eli is growing strong and has gone from his birth weight of 13.10 to almost 25 pounds. He has been released from all the docs and is doing well. I hope you know that what you and your family have done by sharing your story and allowing us to walk with you helps in ways you could never imagne. We love you and Eme so much, even all the way here in Tahlequah, OK. Hope you have a great day...Lov
Dianne Rios
I am so glad you made it 48 hours. Praying they figure out what's going on quickly so you can try for 48 more. Thank you for the reminder that yours is not the only story in those hospital walls... so many are struggling in ways most of us cannot comprehend. I will continue to pray for Eme as well as your extended "family" in Omaha.
Annette W
Oh, geez!!! I am sorry to read what transpired yesterday. But hopefully since they caught it early, Eme can get "back on track". Not the way you wanted to spend the holiday weekend, I know. Prayers are being continued along with hope.... Thinking of you and Eme....Annette W
Trisha Kurtzhalz - Helen's Grandmother
Definite progress - healing is often 2 steps forward and 1 step back. Focus on those good days. Praying hard that you will be back in your rooms preparing to head home to Colorado very soon. Sending lots of love and always praying.
Mona
Darn! Not the post I wanted to see tonight. I am sorry to read the latest. I am thinking about you and hoping for good news. Can't wait to see you both next week. I hope you have some answers soon and can move forward. Take care and know that I am saying lots and lots of prayers!
Joan and Kylie
Praying as always!! Now we are hoping for 48+48+48 . Love ya.
Krystena
Thank God for those 48 hours. You both needed and deserved it. And a non emergent admit?? Wow, is this the first ever? Technically though, most of "us" would consider it an emergency :) Just goes to show what you have become accustomed to :( Hopefully, this will be past Eme soon and you can reach your goal if going H. Soon! Love
Colleen McQueen
Thinking of you... just checking in!!! DO NOT... blame yourself or even look in your direction.. You are trying to do the impossible!! ALL BY YOURSELF!!!! no husband, no family, no old faithful friends, maybe with just a few newer friends.. We have NEVER!!! and I mean NEVER!!! even have come close to having everything you have going on.. and I have sat and cried and wondered how can I do this!!! and I have years!!! of PICU experience and my husband is one of those PICU doctors... you know the ones you'd like to strangle every now and then.. HA!! ;) You are doing an AMAZING job!!! hold your head up high and keep your vision!!!!! HUGS!!! from NY Colleen
Erin, Emily, Taylor-Jo
We love u 2 & its not u! U rock! Dont doubt urself!
judy
Prayers for little Emerson..........so wish you could have stayed out of the hospital for longer than 48 hours. Know your both in my thoughts...........
Trish Adams
Smiling. Can't stop. I'm just so happy your guys made it out again and have a "plan" for getting home soon. Thinking of you today as you figure out your new routine. I know without a doubt that you are doing everything that needs to be done exactly as it is supposed to be. No one can or will take better care of Emerson than you. I know this. Deep breaths when it seems overwhelming. One moment at a time. Love you my friend, Trish
Candice Behm
You continue to amaze me! Praying for Emerson. Hoping you will all be home together sooner vs later. Take care & thank you for sharing your little girl with us. She is a blessing & a treasure to so, so many!
Barbara
I'm sure you are doing EVERYTHING right, and then some. Probably even more carefully and with complete love. Praying that you and Eme find comfort, strength and peace as you work your way towards home
Jennifer B
So happy you are out! You and Eme deserve this time. I check for updates and think of you all so often. Even though you don't know me, like so many others, I am praying for you and Eme all the time! With love from Florida, Jennifer
Cindy LF
Hugs,Love and Prayers.....for all your thoughts and prayers to be answered and to be revealed soon.... blessings to you all! Love the Coopers
Trisha Kurtzhalz - Helen's Grandmother
Wahoo! That was whispered - don't want to tempt fate but was thrilled to read your post. Especially the part about the "h" word!!!! Sending lots of love & prayers!!!!!
Kathy Russell
Wonderful news! Our prayers will continue. I'm sure Collin, Bradley and Bella will be the best "medicine" for her!
Ellen F
You go girls!! All our love and prayers, Ellen
us
p.s. maybe emerson also holds it together for so long in-patient that when she gets out, she releases physically.
dais and joey
my gosh erika! wonderful news! my first instinct about emerson's elevated temp and output is that it could be emotionally related. perhaps she and her body remember the last discharge, maybe leaving the 'comfort' of the hospital causes her sweet little body to react. of course, as always, we will pray tonight and every night for emerson. may each day, strung together like little precious pearls, bring healing and HOME. love us
maybe... she has been asking to go back to the hospital all day :(
Annette W
I was so happy to read your letter. That is great Eme is "out". I pray that her temp, etc., is better by now or at least tomorrow. As hard as it is with all the meds and care (and you ARE doing a great job!!!), I know both of you have to be so glad to be out of that hospital room. As you said, fingers crossed for a good week and being able to have the best, best medicine.....home and the rest of the family. Fingers and toes crossed! And of course, prayers, prayers, Annette W
moirasmom
Always praying. hoping for Eme to get home soon...you are right siblings are such good medicine! Thanks for the update.
EMILY TAYLOR-WHITE
Praying that things go smoothly & you'll be home with the boys next week!!!
Tammie Dubs
Erika, how dare you be so critical of yourself! You are doing as you have done all along and that is the very best you can do! Give yourself a little credit for even attempting ALL of her meds and needs! We will pray for a return soon to Colorado for her to get recharged!
Sally
I'm so happy you are *out*! maybe things change with output because of a physiological reaction to stress? maybe you aren't doing anything wrong....
Joyce J from IL
Yay!! we pray that you both will make it successfully during outpatient to stay at Lied room... We will pray for both of you to go home in Colorado that weekend after Dr visit on Thursday! Cross fingers all times!
Valerie
Praying that the baby steps will all continue as planned! You do a great job Erika! It's probably just the stress on her little body to be in a new place and all that goes with getting discharged! And of course she is Emerson. Always has made her "own" path that keeps everyone guessing! :) I think of you and Eme multiple times a day and pray often!!! Keep up the strong work!!! Love Always~ Valerie
Joan and Kylie
Fingers crossed for you.
Emelie
Just checking in. Hope all is going well ((((((HUGS)))))) Em
Allyson L.
Hope you are having an unevevntful week! Saying prayers for your family!
judy
Thinking of E & E this morning.........prayers!
Trisha Kurtzhalz - Helen's Grandmother
Thinking of you ladies - praying for uneventful days where you can rest and Emerson (minus the tooth!) can heal and get ready to go home and be with those big brothers and her daddy. Sending lots of love, prayers and faith from Vermont!
Annette W
Just thinking about you.....with prayers. Annette W
emily taylor-white
Thinking about you guys today & sending happy thoughts & good vibes!!!!
Valerie
Just stopping to say hi! I hope things are going in the right direction after her scary episode! Thinking and praying for you all! :) Love Valerie
Ty and Caite's Mom
Just stopping by with some good thoughts on this Monday afternoon and hoping and praying it finds you and Eme well.
leslie Irons
I hope your feeling well today. The tooth fairy must really love you, but who wouldn't! ;-) just wanted to say we are still praying for you in Illinois!
Jill from Calhan, CO
Praying today brings you and Eme good news, good health, smiles, and HOPE....:)
Dianne Rios
Praying things are continuing to improve and Eme is enjoying her new baby doll toys. Her pictures were precious.
Trisha Kurtzhalz - Helen's Grandmother
Thinking of you ladies - hoping you had a good weekend. Sending love & prayers.
Ellen F
It's a new week so I am renewing my best wishes for Eme and her mommy! I hope that patience have paid off with all of last weeks developments and this is a new week of answers and action! All our love and prayers! Ellen
Tracey Hill Nies
Wow! That is quite a fancy tooth fairy! I hope you girls are both doing well and that you had a restful weekend! Thinking of you! T
Jessica Hilliard
Erika, we are hoping for you and praying that this next attempt will be "the one" for you and Em! We know what it is like to have a child who literally cannot leave the hospital without likely dying in a few hours/days, and of course we hope that this is not the reality for Emerson. I know Em is not on the same path as Eithene, but I am here if you ever want to talk.
Annette W
Thinking of you and hoping all of you are having a good weekend! Prayers, Annette W
Krystena
I love it! way too cute. Her little piggy tails never get old :) Love, Me
Cindy LF
Hugs to you Erika and Jim.....Congratulations on the tooth fairy action for Eme! What fun! You do have amazing nurses and staff in your PICU! Continued prayers for Eme, your family and the staff who care for her. Love, Cindy and family
Clare Johnson
Celebrating the Good Days with you! What a special group of people in Eme's PICU, Wow! Love and Prayers,
Lauren Jones Dinsmore
Fun news about the tooth fairy...love the pictures! Tough journey your family is on for sure but you always make decisions in Emerson's best interest and that is all you can do. We all have hope for Emerson, she is truly amazing! Thanks for sharing. Think of you both often. xoxo Lauren
Joyce J from IL
We changed the sale dates from this weekend to next weekend because so many graduates are conflicting this coming weekend.
Joyce J from IL
Wonderfully heard that you lost your first tooth that is real cool, Emerson! We are very busy with flea market and rummage sale to start next weekend. There will be very huge things/stuffs and also handmade furnitures that we really like that our friends are working on so hopefully they can finish by earlier next week. WE will keep praying for you, Emerson and your mommy, too! Hugs and God Bless all of you, the White Family!! The Jackson Family
that is so awesome Joyce... thank you!!! :)
Molly
The tooth fairy pictures and story melted my heart and brought me to happy tears!! Wow...Thank you PICU tooth fairy...you are the best!! So happy to hear such happy news.
Annette W
Way to go, Emerson!! How exciting for her, and how wonderful the PICU nurses are! Thank you so much for the pics. I am so thankful you are having some good days and some smiles. Another great word to add to "HOPE"...."BELIEVE". I love the way you are thinking! You have some great thoughts. I know I believe! Give that lost tooth sweetheart a big hug.... Prayers always, Annette W
Tammie Dubs
Erika, How do we forget but it IS that simple (and yes, complicated) just BEING, taking your dolls temp, clapping those precious little hands and walking down the hall. I'm teary just thinking of her beautiful face and hoping and praying that you both have more and more moments like these. They are what life is all about, aren't they? Hug her for us and yourself. Love, Tammie and Vonn
dais and joey
wow emerson!!!!!! your first tooth?! BIG BIG DEAL! sounds like your incredible nurses and fabulous mommy helped you celebrate in style... erika, i happen to know that kids can lose their first tooth at four because dais (ok, we) used to listen ad nauseum to an arthur cd where arthur loses his first tooth. 'between the ages of 4 and 7,' his dentist said, 'children start to lose their deciduous, or baby, teeth...' and prayers as always for healing! love us
Noelle Krimm (LF)
Congrats, Miss Eme! Losing a tooth is a super big deal!!! Erika - despite the fact that you probably often feel lost and afraid, your posts inspire me all the time. You display great strength even when you yourself don't feel strong. You show everyone what it looks like when a mom would truly do anything ANYTHING for her little girl. That's one of the reasons why the PICU nurses were so awesome. I think you are definitely on to something and I, too, think Eme will get out of those hospital walls and feel sunshine on her face and play with her brothers and her puppies and stick her feel in the lake. Absolutely.
Kat and Zoe in C.Springs
What an exciting day for Eme! Those nurses are awesome! My oldest lost a tooth really young too. I spent about 5 minutes hyperventilating because I though he had knocked it out. Our dentist must have thought I was crazy when I called him. I had no idea they could loose them that early either!
Krystena
I had the most beautiful dream about Eme last night. She had on a pink dress with flowers in her hair. Walking down the isle of a church. It seemed like a baptism. She was so happy and we all were taken aback by how great she was doing. I clearly remember her Big smile and brown eyes. I don't remember much after that. I just know it was the most refreshing dream I've had in a long time. I believe too Erika. I can't wait for you to tell us that's she's on full feeds, no line and infection free! It's coming.... ;)
Patti
Awww...how great is that....first tooth loss and a whole lot of fun! Exactly what you both needed for a change. You, Erika, are truly the reason there is so much love and excitement around Emerson. I am so glad you are her mom. Not many others could brighten up just about any situation. Hugs to you both. Enjoy the good days! Prayers are with you always.
Maria Connely
Erika, What a fun filled visit from the tooth fairy! Live in each day, and live it to the fullest - that is all you can do. I agree, after all she has pulled through, I am holding out HOPE Em and you will get to experience more days at home with Jim & the boys.
Emelie
I was soooo happy to see that beautiful smiling face. She's very proud to have lost that tooth :). Loved to hear that she was playing with her "babies" and singing. Emerson is one tough cookie. Prayers and ((((((((HUGS))))))) Em
Trisha Kurtzhalz - Helen's Grandmother
What a wonderful post - you've made my day. What an amazing world of love you have built around dear Emerson. Today IS a good day and I am thrilled to see that beautiful, toothless grin! I too believe that Emerson has a future outside of the hospital at home with her brothers, daddy and Bella. If any child can defy all odds it is Emerson!!!! Sending love & prayers.
Sven (from LF)
I love this post, despite it's share of worrying news re the development of the infections. But Emerson has had a great day, and I am here right beside you hoping and believing that she will have her chance to live outpatient and deny all statistics. Go, lovely, strong, tough Emerson!!
Ellen F
Beautiful. Emerson is adorable. Your words are beautiful. I am so happy you have found a place of mental peace (at least for now!!). May today be another good day. All our love and prayers, Ellen
Trish Adams
So happy the PICU Tooth Fairy made her visit. Absolutely precious! Ash has lost 6 teeth now. Currently has neither of her front teeth. Crazy, crazy what happens to our transplant kiddos. She lost her first one at four as well. She looks good. Your right about that. I also think you are right to believe that she was meant to live outside of a hospital. She's going to get there. I believe she will. You sound good in your writing. I'm praying you are. Take care my friend. I know how hard that can be when taking up residence in the PICU. Love you, Trish
Robin
Hoping no news is good news. Still praying for a miracle!
emily taylor-white
Sending love and prayers to you both today!!!!!!!!
Ty and Caite's Mom
Just stopping by to see how things are going. Wishing and hoping and praying that today finds Eme doing better.
Dianne Rios
I'm glad Eme seems more back to herself. Still hoping and praying...
connie
God bless you and Eme..You are the best mommy in the world..
Kristi Cole
Erika, I know you aren't feeling very happy on your birthday today, so I will just say I am thinking of you on this special day and know your heart longs to be somewhere/anywhere else. I was so sad when I logged on today to read what had happened when Emerson finally got her chance to be outpatient. Your description of Eme and the near code situation sounds just like the Sunday am that Brody woke up so sick. The difference is that we were 45 min from the hospital and thus he couldn't recover. I would have given anything to have been within minutes of the hospital. Erika, I don't know what is going to happen with this Klebsiella and what the chances are that Emerson will be allowed to go outpatient again. What I do know is that her mom will be by her side regardless, and whatever decisions you as a family make, they will be made with the strongest of love for Emerson and the desire only to do what is in Emerson's best interests. Prayers for you all- Kristi Cole
Dearest Kristi - you lived my greatest fear in moving home as we, too, are an hour from the hospital... ((hugs)) & prayers...
Rebecca Stevens
You and Eme are a couple of strong ladies...hang in there...good vibes, prayers on their way.
Annette W
Just thinking about you....
Patti
Happy Belated. I'm thinking of you and Eme and hoping and praying this gets better....and quickly. Love and hugs to both of you. hang in there, Erika. I know you always do!
Alison Stanley
Happy Belated Birthday Erika. Thinking about you and Eme. Sending love...
Trisha Kurtzhalz - Helen's Grandmother
Just checking in - praying that the baby steps forward continue. Sending love & prayers.
Bill and Marilyn Crane
Good morning Erica, We continue to lift you and your beautiful family in our prayers. Your brave journey has rewards for all time. Keep the faith, stay the course, hold tight. We all walk the journey with you. Lovingly, your friends the Cranes
Ellen F
Erika, Still praying that answers are coming and that Eme's health is improving. The White family deserves peace and happiness. All our love and prayers, Ellen
Sherri
Haven't checked in on you girls for a while. Praying she pulls through this one. She is one tough little girl!!! Love and hugs your way...
Heather
Praying and hoping....for miracles big and small.
Jill Laurello
Checking in on you and Emerson. Praying she's feeling better and better.
Tracey Hill Nies
Checking in on you ladies. Hoping Eme continues to feel better!
Tara Smith
Happy birthday! I hope that you got to take a little break yesterday and at least enjoy a birthday cupcake from the cafeteria. I am sure that your original birthday plans involved a little party with Emerson, away from all this. I am sorry about that. Hang in there. Wishing you a much better birthday next year...
Jenn Y.
Checking in on you as I do everyday, and finally posting. Sometimes the words I want to say seem meaningless and I don't say anything... I am happy to hear that on Saturday Eme was feeling a bit better - hope that has been the case these last few days. Been praying for you all and especially for Emerson, as she needs it the most.
Maria Connely
Hoping for answers, sleep for you both, and balance...
Brian
Hoping that today finds Emerson feeling better than she has in a while!
Cindy LF
Hugs to you Erika and family! Many prayers for you all and especially Eme! Cindy
Mandi Becker
Where Hope Grows Miracles Blossom!Happy Happy Birthday friend! =]
Peter Thies
Praying every day for you. Thank you for opening your experiences to us. We stand with you in hope.
Joyce J from IL
Our prayers must be answered to make Emerson feel little better that means we need to pray together in the world so harder and every minutes until Emerson is able to be normal again! PRAY is very important to send messages to God who is sending fairies and angels fly around Emerson who could feel them in her body and knowing she is fighting all times to feel better again. Keep praying all times, please! Amen! I hope you, Erika feel relaxed and sleep better again! The rummage sale and flea market are scheduled May 19th through 21st from 7 am til 3 pm..Friday 20 and Sat 21 will open from 7 am til 5 PM Special evening also will be on Friday from 7 pm til 9 pm I pray it will turn out good crowds.
Rebecca Terrell
Emerson I always check on you and mama. I am keeping you all in my thoughts and prayers. Love you little one.
Kathi Hines
As always, checking in on Emerson and praying for you both.
eileen facinelli
Happy Birthday Erika. We are praying for a little miracle for Eme on YOUR special day! Lots of love and prayers. Eileen and Family
Erin and Emily
Birthday Wishes, Erika! Love you
Trisha Kurtzhalz - Helen's Grandmother
Such good news - thanks for the post. You must be exhausted. Sending love & prayers.
Annette W
I am so glad Saturday was better...little steps, but as long as they are positive ones..... Hope you got some sleep or will get some today. Prayers, Annette W
Sven (from LF)
Emerson is in my thoughts and prayers.
Tammi Klusewitz
Erica, I don't think I've ever commented before but I've been following for a long time and just wanted to let you know i pray for Emerson and all of you often. God bless.
The Jacksons (CSS)
we are thinking of you guys & praying for you.
Dianne Rios
I don't have any words, but I want you to know I'm still praying and hoping. Please try to get some sleep for yourself and for Emerson.
Annette W
Pleeaasszzz, try to get some sleep! You can't do this to yourself. Ask for a Tylenol PM, sleeping pill or whatever to get a good, solid sleep for 6-8 hours. You need your strength for yourself and for Emerson. I am so, so sorry and sad to hear about what has been happening these last days. Poor, dear, little girl. Thank you for writing; it has to be tough to put some of those words down.... Prayers, prayers, thoughts and hope...Annette W
caylie m
Praying for you guys with love caylie
Stephanie J
praying thats all i can say
Joyce J from IL
Very sorry to hear more problems so we, all the world, must please pray for Emerson's strength again and your strength to fight for Emerson's health that is most concerned. Please PRAY very big times daily! God Bless both of you!
Heather
Please know that you have a lot of extra prayers going up this weekend, prayers for wisdom, answers, sleep, but most importantly, prayers for strength. Thank you for sharing your beautiful daughter with us!
Krystena
So heartbreaking. I'm so glad you were able to at least try... I don't know what to say but I'm so sorry and I wish I could take it all away. My heart is with you and I pray for you always. Love, Krystena
Marlena Field
Just need you to know that we are with you--even if I am speechless. Wish I could do something more powerful and meaningful to ease your pain than offer love, encouragement, and prayers.
Chelle Cates
Our heart is breaking for you guys. There really aren't words good enough. But what I do want to say that is that we support you. We pray everyday for both of you and we know God has a plan. I know so many people who would do anything to help ease your burden. Please know we are always here listening and praying and supporting! If anyone can do this- it's your daughter!!! I think we all have learned that! She is one tough little beauty! And if anyone can support her through this- it's you! One amazing mom with neverending love and HOPE! Try and get some rest... I wish we could do more to ease your pain. love you guys! the cates
Leah Wells
Praying... Thinking of you often ~ Much love, Leah
Dorothy
Praying because there are no words I can say.
Anne
Wishing I had some miracle to offer. Praying for Emerson, and for your family.
Barbara
Praying. For strength, healing, wisdom, and especially peace
Karin Fowler
Prayers, prayers and more prayers - as always.
Amy - IL
Oh no, was hoping for more positive news in a new post. Will continue to pray for you both and hope that you can find a way for Eme to get comfortable tonight and for you to get some sleep.
Elizabeth
Thinking of you and Emerson and hoping and praying that things calm down, that you get some sleep and that the team is able to help Emerson.
Mitzi in Maine
You are just running on pure adrenalin. I seriously wish so much I could be there to help you (even though you don't know me). It would be an honor! I hope Emerson's mental status improves asap and praying for her constantly.
Cindy T.
Oh my heart is breaking for you Erika. As a mom, I know how hard it is to watch your child suffer. We moms always want to take any pain away for our children. May God continue to give you strength, hope and a miracle for Eme. You are in my prayers.
Dianne Rios
It's hard to find any words that match the magnitude of what you are going through right now. My heart aches for you and your family.
Stephanie Olivieri (Analiese's mom from LF)
Erica, I just read your update; I am so heartbroken for you. I can't even imagine the things that you are going through and the decisions that you have/had to make. Emerson is a lucky little girl to have such a dedicated mommy. Hugs to you and your beautiful little girl.
bridget ormond
thinking about you all.....everyday.
Melanie
I have never met you, but have followed your story for a long time. You are an amazing and strong women who fights so hard for your precious little girl. I couldn't imagine facing the decision that you make on a daily bacis and pray for strength and wisdom in your upcoming days.
Ty and Caite's Mom
I am so very sorry to hear this....my heart breaks for you and your sweet Eme. Keeping you in my thoughts and prayers, Robin
Danielle
Like so many others I know there are no words. But I HOPE with you and ache for you. I will continue to hope and pray and send positive healing energy.
Brenda W.
I am so sorry. There are no words. I just pray for God to give you some peace and comfort in the midst of all this anguish. You sound so weary...I pray you can find a time of rest.
Michelle M.
Erika, My heart is breaking for you, Eme and your family. I just want you to know we are always thinking of you all, and keeping all of you in our prayers. ((Hugs))
Mickie
OH! My heart is breaking for you. I pray for you and Eme and your family daily. Know that you have touched my life, all of you.
Erin and Emily
WE LOVE YOU TWO! WE LOVE YOU, Erika! WE LOVE YOU, Emerson!
Noelle Krimm (LF)
I am so sorry. There are no words to say. ((HUGS))
Ruth Turner
Hi Erika, My prayers (and those of my church family) are with you, Eme, your family and the health professionals who are so desperately trying to make Eme's life better. May God continue holding you in His warm embrace, as you struggle to find the answers you are seeking. HUGS! Love, Ruth
Carolyn O'Cain
My heart is breaking for all of you and I am praying... Sending my love...
Pat Biksacky Orland Park illinois
I'm so sorry. My prayers are with you today. Love, Pat
Candice Behm
No words come after reading that just prayers & HOPE!
Belinda (LF - Aus)
((((HUGS)))) xxx
Sue S
My heart is breaking for both you and Eme. Saying prayers.
Lisa & Rhyleigh
and I am very very very sad for you as well...but will never stop praying for a miracle. Lisa
Laurie & Shania
Oh Erika I'm so sorry to hear this. How scary for you, thank God you were close to the doctors & nurses! This just breaks my heart that she finally gets to leave hospital and ends back so soon. Neither one of you even got a break. Eme is your little trooper! May God continue to give you strength! Hope you get some rest tonight! Praying for wisdom, hope and faith. Always praying for your family! (((HUGS)))
Alicia
I'm so sorry, Erika. It seems like some people just have everything go wrong and you wonder why it has to be them yet again and why can't they have just one good week where everything goes right. It's hard to hold onto your faith sometimes. That's how I feel watching one that I love suffer - and your loved one is a sweet little girl that suffers so much. I am praying for both of you tonight. Hope in Christ. One day all will be well and this will make sense and it will all be okay with us. Until then, may much mercy and grace be poured out on your family.
joey and daisy
Oh Erika, I am SO SO sorry you both endured that nightmare. Unfathomable. Not surprising is that Emerson survived. Once again. Her indomitable spirit won. HOPE! Love, Us
Carey - Larkspur
Continued prayers for you, your entire family and Emerson's doctors. May God comfort your brokeness and grant you a peaceful sleep tonight. Bless you on your search for the answers only you can determine...praying for wisdom from above to guide you.
Amy in VA
Eme sure does have her Mom's strength. Sending love, hugs and hope for you and your family's heart.
Cathy
My heart break for you. You inspire me with your strenght and the love you have for sweet Emerson. It is obvious you want only the best. Prayers to all you will go through.
Teresa
I am sorry for where you find yourself tonight. Prayers for both of you. Take care and rest when you can.
Anne Dennon
Erika, I'm with you in tears. My only wisdom (having lost Elizabeth) is that tomorrow the checkers can move and change things. I will keep praying. I feel your pain and you express it so well. My love to you. Anne
Vito and Ladea Dante
Sending prayers of Hope, Healing, Strength and Courage. Keeping you close in our hearts. God Bless You All.
Sherry Boyle
My heart breaks for Emerson and your family, but I won't stop praying. May God grant you wisdom and peace of mind.
Amy - IL
Praying for Eme, praying for you and your husband when you are faced with such difficult questions, praying that you find answers that give you some peace somehow. Prayers continue for you all.
dede K
God bless your big, beautiful, tender, brave, heart! What an impossible position you are put in every day! I pray for your strength!
Trudy
Sending lots of love, prayers and hugs to you both... With HOPE, Trudy
Heather Snyder
Hugs to you and hugs to the Princess. I would give anything, anything in the world to fix this. To fix all of this. I'm so sorry.
maggie
Erika, im so sorry to read all of this...those are your questions to answer, yes, and I pray that god will help you along the way. Prayers for you and eme, she is a strong willed young lady and has made it through so much, you both have. Xoxo, maggie
Anne
Ericka, no words/answers...just prayers for you and Eme. BOTH of you are absolutely amazing...I can see where that little angel gets her fortitude:)
Annalise
Erika I'm so sorry to read this last entry. I'm sorry for you having to be the one that sits in such a tough seat and for Emerson who is clearly as you said understanding more and more what is going on around her. That she wants to experience a life outside of the hospital and the question is how? But I think hope is still there. I think hope that something will come forward that hasn't come forward as of yet that will give Emerson the ability to live outside hospital walls. She is such a fighter, such a trooper and your such an amazing mom. prayers for you girls tonight.
Deanna Bingley
Erika, I sat in my car near tears of frustration from three children who wouldn't quit bickering. All I wanted them to do was stop. We get home and I check your blog and I find perspective. Perspective that bickering is minor, gratefulness for my kids, even when bickering. The tears that flow now are for you and your family. I pray (actually begging and pleading) to God to heal Emerson. To reward that fighting spirit. Constantly on my mind, Deanna
Sarah Knight
Erika, We are sending you so much love and hugs and prayers. I know exactly where you are right now. Cooper's spirit and drive to live and love every moment of life was enormous, but his little body was too sick to keep that spirit in the end. I will not kid you and say that it is easy or that things get better. We put off our decision over and over again and it came down to Cooper turning into more machine than boy. He wasn't living anymore. He was so sad to be too weak to get out of bed or even sit up. He was angry about it when we brought him home. I don't know if we made the right decision. I would do anything in the world to have my boy back. The only thing that keeps me going now is the knowledge that Cooper is finally free from his sick and fragile body. Whatever decisions you come to will be the right ones because you are doing everything you can with love and hope for Eme. One of our doctors in the PICU drove it home very well for us when we were in the beginnings of making decisions. He said we had to start to think about whether we were doing things FOR Cooper or TO Cooper because at some point, it all sort of blurs together and what you have is a child who cannot survive an hour without a gazillion interventions going on at every second. Oh how I wish I was there to hug you and hold your hand right now. Call me anytime, if you want to. Sarah Knight
Lisa and Aiden
You are a wonderful mother. I just love you. Praying daily.
Kristie
My prayers are with you and precious Emerson!!!!
moirasmom
Massive hugs for you. Lots of prayers lots of hope for you and eme.
Jenny K
I'm so sorry. Hugs and hope to you both.
Mitzi in Maine
I am so sorry and heartbroken for you and Eme. She is still such a trooper. I pray and hope she can recover and you can take your girl out of the hospital again. Never lose hope!
Elizabeth
I am so very sorry. I love that you have hope and that you keep trying...what else can you do? I wish I knew. Please know that we are saying prayers for you and Emerson every day.
Tracey Hill Nies
Keeping you both close to my heart.
Joyce J from IL
We will always keep praying for you both everyday! I know Emerson will always fight for her life because she loves you so much and thinks you are the best mother to her! Hugs!! God Bless both of you!
Anne
Praying for you all.
Christy A.
Praying for your answers and Eme !
David T
O Erika.... Words cannot take away the pain or sadness you feel. Instead, our words are directed to God. Please know that we are praying for Eme, for you, and for your family. Only He knows what lies in store for Eme as He has a plan for her. I won't pretend to have the answers or any insight whatsoever - just know that together we will raise a din in His presence as we ask for healing for Eme. Dave and Carina
Trisha Kurtzhalz - Helen's Grandmother
Wrapping my arms around you both and praying so hard for Emerson and her wish to go home. God bless you both. Sending much love.
Annette W
I know there are no answers anyone can give to your heart-wrenching questions, but while you are answering them know that so, so many are thinking about you and Emerson and keeping both of you in our prayers daily. I am so very sorry about the last 24 hours. How tired you have to be...physically and mentally. What a roller coaster of emotions you have been on....there are not many who could do it. I so hope tomorrow is a better day. With prayers, Annette W
Sven (from LF)
I don't know what to say, but I do know what I feel - sadness and grief for Emerson and you, admiration for all of you, and some hope that won't vanish for some change for a better life for Eme... I'm thinking of you.
Erika Lyn Smith
Angels all around you and Emerson!
kris
So so sorry. Just wanted you to know I am praying for all of you. You are an amazing mother with an amazing daughter (and sons).
Kathleen
Erika, I wish I could say something wonderful to make you smile. All I have is that you are an impossibly incredible mother and woman, and I wish to GOD she could wake up tomorrow perfectly healthy and all of this be a nightmare. Lots of love from Tallahassee. the brown-blakes
Sarah H.
Oh Erika, I am so so sorry! I have been following you and Emerson's story for a long time now, and have been rooting like crazy for her, ya'll have overcome SOOOO much! Please know I am another person that is praying like mad for her and you and the rest of your sweet family!! Lots of love, hugs and prayers!!
Kat and Zoe in C.Springs
Hugs and prayers from the springs.
Diaz Family
SO very very sorry. My heart breaks for you and your family. We will continou to hold all of you in our prayers.
Jen Ehlers
I'm just so sad to read your update today. Just know I read every journal update and send positive thoughts to you. Hang in there.
Annette W
Thinking of you.... Annette W
Valerie
SO GREAT TO HEAR THE GOOD NEWS! That is just amazing! I'm praying for more and more miracles to happen for Emerson and your whole family!!!! Sending you hugs! ~Valerie
The Pruitt's
I just wanted to let you know that the Pruitt's are always thinking of you and that we admire your family. I still don't know how you guys have done this for almost 5 years. My short 22 days in the NICU about did me in. I am speechless. Emerson is such a sweet girl with such a great sprit. You guys are awesome. Love yall lots Rhonda, Chris, Collin, Bradley, Alexander, Parker and Eli Pruitt
Shayne Frankel
It does seem that Emerson has plans for this world and she's not about to be deterred. Her first plan is to prove everyone wrong -- and then make her wonderfully silly faces! Hopefully you know, and somehow feel, all the cheering her virtual friends are doing for each of you -- and special wishes you get home to the rest of the family very soon!
Erika Perry
Eme looks so good! Your positive attitude and optimism through everything make all the difference in the world!! Love you girls and cant wait to see you!!!!
emily taylor-white
Wonderful! Fabulous! Divine NEWS!!!!! I always pray for peace for you both & it sounds like you have it!!!!!! XOXO!
Tammie Dubs
Erika, I meant to tell you Happy Mother's Day on my last post. Things have been pretty crazy around here with graduation and all. Hope you had a good day.
Candice Behm
I thought of you a lot on Mother's Day. Never give up HOPE is a wonderful lesson to be learned. I am happy that things are moving in a positive direction. I am not being naive & thinking all is rosey, but all things are possible & I truly believe I will be reading what is going on in Emerson's life many, many years from now! What a wonderful thing that will be when you are back home with Emerson!
Emelie
What a great Mother's Day Gift that was for you!!! So glad to hear that things are moving in a positive direction. I can't wait for you and Eme to return home!!! Sending ((((((((HUGS)))))))) Em
JOSUA
Great things are working,congratulations but seems like its not enough for you Erica,the healing process has to be step by step,thinking on benefits and consecuences of any decision made,believe me always thinking on Emerson's health and well being.
Kammy from LF
What great news to read! Sending good vibes and prayers your way! Go Eme!
Clare Johnson
Now that's a Mother's Day Gift...."Emerson is doing well." God Bless You. Do enjoy each moment. With Prayers Filled with Hope.
Annette W
What wonderful news! I am soooo happy! What a great Mother's Day gift for you...... Everyday she WILL get stronger and closer to going home to Colorado. That is wonderful! Prayers and hope still and always continuing...Annette W
Jessica Hilliard
Great Mother's Day gift. I'm praying every day on the "outside" is a beautiful one! Love and hugs! www.fromthebanksofjordan.blogspot.com
Tammie Dubs
Yaaaaaaa! Positive news!!! We are so thankful this is working. We'll keep watching and praying for you to be headed home in no time. Hugs to you both.
Stephanie
Great news, there is a song that Rascal Flatts sings and everytime I hear it I think of Erica and Eme "I won't let go". Erica you are an amazing person and mother, Eme couldn't ask for anything greater then a mom that wouldn't let go and continue to fight for her daughter. I will continue to keep you in our prayers.
Amber (dylans_mom)
Eme is such an amazing fighter! I am so happy to read that the goal has finally been reached. Thank God! I am hoping that you both get to be outside those four walls for a long time.
Dianne Rios
I'm so happy to hear the news! That is big! Will keep praying that she stays outpatient and you are Home soon!
Joyce J from IL
Glad Emerson is improving very slowly and we will pray for you both to be discharged from that hospital around June 1st, maybe memorial day weekend, I hope so! Emerson, please take it easy so she could go home play with her brothers through the summer months and school months forever! I hope so!! We will continue having some activities and events to earn fundraisers for Emerson this month and next month, we are so busy arranging lots of things! Will place announcements in four cities newspapers next week or two, I can not remember! So many things in my mind! Hugs... the Jackson family
Peter Thies
Praise God! I am so thrilled for you to read the good news! :-D
Maria Connely
Erika, What an achievement! Thrilled for you and your entire family! Hoping you and Eme got to enjoy some time outside on Mothers Day! Optimistic for the "H" journey!!!
Krystena
Wow!!!! ;)
Cindy LF
What an awesome Mother's Day report! I'm so happy for Eme! Continuing to Believe, Hope and Pray for Emerson and your family! Love, Cindy and family!
Erin & Emily
Right on, sister! HOPE prevails once again. We love you two and miss you.
Kim M., St Louis, MO
H*O*P*E and H*O*M*E are the focus. Happy Monday. Happy Week!
Beth
POWER OF PRAYER IS AMAZING! KEEP UP THE GOOD WORK EME!!! GLAD TO HEAR SHE IS DOING BETTER. HOPE YOU ARE HOME SOON. GOD BLESS!
Linda
Wow! I am so happy for you and Emerson and your family. As a pediatric intensivist I have learned a lot from your blog. I am so impressed with your ability to advocate for Emerson and yet work with the team in what seems like a non-confrontational way all around. I know from experience that parents of kids with chronic illness know so much about their kids and what they need. I hope this does not sound patronizing because I don't mean it that way. It is a reminder to me to listen closely to patients and families. Good luck!
Annalise
Amazing, great news and sounds like you had a great Mother's day!!!!
Lindy
Wow, great news and a perfect Mother's Day gift for you! I'll continue to pray that this all holds and that you'll be home with your family in a few weeks. Good for you for not giving up, ever!
Patti
Love it! Happy Mother's Day. Always in our thoughts and prayers!
moirasmom
Happy Mother's Day! Many prayers for moving forward...happy hugs! Emerson is amazing.
susan
wow. what an amazing spirit - both of you! what an amaazing God! Hope you had a great Mother's day.
Trisha Kurtzhalz - Helen's Grandmother
Yahoo!!!! What fabulous news!!!!! You ladies (and all you wonderful doctors, nurses and support staff) ROCK!!! Thanks for the post - you really made my day. Sending LOVE and prayers!
Linda Brazel
What a wonderful Mother's Day!! So excited to read your update this morning, what a blessing. You are both such fighters with great HOPE and courage. Praying without ceacing for all of you. Blessings, Linda
Ellen F
Happy Mother's Day indeed!! One more lesson from my perspective on this end of the journal: bold steps, breaking the norm, and shaking it up can work! Well, that and patience as always. What a journey. I sure am praying hard for you to make it all the back to Colorado!! Thank you for the perfect ending to my Mother's Day. All our love and prayers, Ellen
Dianne Rios
Happy Mother's Day to one of the best moms I know!!
Jenn Y.
Happy Mommy's Day Erika... I pray and hope that you had an amazing day and that Emerson is doing better and better all the time!
Erika Lyn Smith
Happy Mother's Day to you!
Jenn Stacey
Happy Mother's Day Erika! You go above and beyond what most people expect a mom to do for their child. Hope you were able to enjoy a day with a bit less stress than usual. You and Emerson are always in my thoughts and prayers. Love, Jenn Northern Kentucky
Trisha Kurtzhalz - Helen's Grandmother
Happy Mother's Day - hope you ladies are having a good day. Sending lots of love and prayers.
Sara (sarajack from LF)
Happy Mother's Day to one of the most amazing mom's I know....
Colleen McQueen
Hoping and Praying you are having a terrific Mother's Day!! No one deserves it more then you!!!
Cheryl P.
I think this quote was written about you, Erika! "A mother is she who can take the place of all others, but whose place no one else can take." Someday your kiddos will realize how true this is. Hugs, Cheryl
Valerie
Happy Mother's day to a wondeful mother!!
Tracey Hill Nies
Happy Mother's Day, Erika! You are truly amazing! Hope you have a wonderful day! T
Joan/NE
Good Morning Erika. Happy Mother's Day to a very special Mother! Arms around you, Joan
Jen G
HAPPY MOTHER'S DAY!! I hope your day is full of silly faces and laughter!
Lindy
Happy Mother's Day Erika. I know you're not where you want to be on this day but I hope it's a good one for you. Hope all is working out with the new plan! God bless you and Eme.
Kim M., St. Louis, MO
Happy Mother's Day to a Mom so deserving! Hope the plan is working!
Pam Crawn
Happy Mother's Day, Erika! I pray your day is blessed!
mary (toronto Canada)
Happy Mother's Day Erika :)
Molly
Happy Mother's Day Erika!! You are in my prayers!
Noelle Krimm (LF)
Happy Mother's Day!
Lori from CO
happy mother's day !!!!! love the pictures of your adorable girl :-) Praying that the new plan is working.
tracey Nies
Thinking of you this Mother's Day weekend. Hoping you and Eme are doing well and that you get some free MOMMY time! T
Emelie
Have a Wonderful Mothers Day!!! ((((((((((((((((HUGS)))))))))))))))))))) Em
Colleen McQueen
Hope all is going well... You can not post that type of new and NOT give us progress reports. I am hoping and praying that things are going so well you have no time to type!!! Happy Mother's Day.. I don't believe their is another mother out that that deserves it more then you!!!!!!!!! Hugs from NY Colleen
Bre
Since I will not be on the computer I will say it now, HAPPY MOTHERS' DAY to a wonderful mom. You deserve a Mother of the Year award. Praying everything is working out for you ALL.
Dianne Rios
Hoping and praying those feeds are working! I LOVED those pictures of Eme.. she has such spirit!
Annette W
Just want to send greetings to one of the most awesome, exceptional mothers ever! Happy Mother's Day, Erika! I pray it truly is a special day for you and also for all of your family. Prayers and hugs, Annette W
Trisha Kurtzhalz - Helen's Grandmother
I wasn't expecting an update this morning - just had to start my day checking out silly faces. I just love those pictures!!! Thinking of you both this sunny (finally) Friday. Sending love & prayers from Vermont.
Lauren Jones Dinsmore
Love the new photos! Hope all is going well for Emerson with the new plan. Looking forward to a good update this weekend!
Tracey Nies
HOPING all goes well! You're Emerson's best advocate, so I know it will go well!
Lauren
HOPE HOPE HOPE!!! I am so excited to hear this news of a new plan! Eme and Ericka are so strong...HOPE and pray for things to work out. The new pictures of Emerson are beautiful!! Thanks for posting Ericka :)
Krystena
Dd we hear the chatter of an advancing feeding pump today!? Hoping and Praying for the new plan to work. I am super excited to see if this will get Eme the nutrition she needs and ultimately HOME! Love Love, Krystena
Clare Johnson
So nice to see Emerson alert and smiling. I'm sure Mimi and Pappa and Emerson are enjoying one another. Give your wonderful folks my love. With prayers of Hope.
linda cerreto
She's beautiful :-)
Lee Farrow
Praying that this new plan for her is such a brilliant one that it works.
Laura
that is what im praying for! Emm looks fantastic.
Lucetta.
I have HOPE with you. ~ you're never alone in that. xxx Luce.
Molly
Hoping & praying with you tonight!! Loved the pics too. Thanks for sharing them with us!!
Annalise
These are wonderful, wonderful pictures and show the magical that lies in Emerson!!! Amazing little girl, praying and hope that this plan works all the way HOME!
Carleen Gerjevic
OMG!! It's so good to see Eme looking so happy and with no tubes on her cute little face. I'm praying that all goes well.
Anne Dennon
Thank you Erika for your strength and positive forward thinking. Hope is what we all have and what we shall continue to focus with as we pray for this progress to happen. Love from Bainbridge Anne
Trisha Kurtzhalz - Helen's Grandmother
You have made my day!!! Those pictures are absolutely priceless. The plan is brilliant and LOVE the H word. Sending lots of love and will be praying like crazy!
Trisha Kurtzhalz - Helen's Grandmother
You have made my day!!! Those pictures are absolutely priceless. The plan is brilliant and LOVE the H word. Sending lots of love and will be praying like crazy!
Emelie
LOVE, LOVE seeing that beautiful smiling face. Keeping you in my thoughts and prayers that things will work YOUR way, and on your way home. Because......."there is no place like home" hugs to you both. Em Em
Cindy LF
Hoping, believing and praying with you for your hopes and dream of outpatient and home to come true! Love, Cindy
Anne
May God bless and keep you all!
Kelley
She is such a strong kid! If anyone can do this its Emerson! Glad she's been able to spend sometime playing and making faces! Praying for everything to go well.
Cindy in MO
Eme looks so good, what wonder a little faith, love, and prayers will do. I am happy that they have finally listened to you. Will keep you and your family in my thoughts and prayers. I seldom post, but I read all the time. Feel like you and your family are part of mine. :)
Kim M. St Louis, MO
Love, love, love the pictures, and the silly faces. Those are the pictures I shall keep in my heart, along with H*O*P*E! It's time to get yo0u both home with your family!
Teresa in NC
I have only one thing to write and the word that I will be thinking of when I think of Eme all this week HOPE... you have and we will all have it! Teresa in NC
Joyce J from IL
In Emerson's photos, she sure was in good hands and was happy someone visited to cheer her up, that is very good news! Papa needs to come often to enjoy making silly faces with Emerson. That would be much fun! I love these photos here and Eme must get out of shower because of her hair being wetted, right?
Joyce J from IL
WE support you 110% and let you make your own decision and wait and see how Eme will react without the lines. I hope it will work out. I know it will be a risk but just test her what you think it would work or not. WE will pray it will work so well to make Emerson feel more better like Kylie and Ashley Kate.. WE must pray so harder! I know you and Emerson want to spend the whole summer at home with the boys and Jim again! Hugs!!
Maria Connely
Your strength and determination amaze me. I have HOPE as well, that your plan has merit, and am confident that having a plan, in and of itself, is always the best course of action. Here's to HOPE :)
janice hanna
having a "plan" is sometimes all it takes to bring back confidence and strength. I think your plan to have a "plan" is outstanding!!! much luck and prayers for great results!
Annette W
Oh, my gosh, it was so wonderful seeing those darling, happy pics. Thank you! And I am so happy there is a "plan"! Yeah! Extra prayers will be said this week that by Friday Eme will be line-free. And hope, hope, hope for eventual outpatient status and home! Praying, wishing, and hoping for good, good results, Annette W
Joan and Kylie
It is nice to see silly faces. Praying for the hope and we will just put it in all of our minds that intestine will work!!!!! Love ya. Thinking all of you. Love from Louisiana.
Amy - IL
Hoping and praying for lots of good stuff in the next 24 hours....
Dianne Rios
HOPE!!!! We will be hoping and praying along with you!!
Maggie
Lets get that girl to the beach!! Erika, I can tell in your entry that there is hope. I can feel it, even though its only typed words on the screen. You guys continue to amaze me. Push through this Eme, there is a whole world waiting for you!!
Erin and Emily
Rock on girls! Love the pictures! Look at the HOPE there! HOPE it is and HOPE there will be! We love you!
Patti
Just thinking of you
Trisha Kurtzhalz - Helen's Grandmother
Thinking of you ladies - so glad to hear that you had company last week - very nice for both of you. Sending lots of love & prayers.
Ellen F
Erika, It is heartening to hear that you had good company for the latest round of twists and turns in Eme's recovery. Your family remains in my prayers. All our love and prayers, Ellen
Annette W
Just thinking of you both... Annette
Joyce J from IL
Glad to hear Collin to spend his most time being with you and Eme.. Wonderful to have their grandparents around until tomorrow! That gives you more time to sleep and to rest before their departing for home again! I am sure you expect to have some of your relative and friends to help out to sit with your baby so you can spend more time with your boys and Jim again. Pray for Emerson to recover slowly!!
Laurie & Shania
I'm glad that Collin was able to spend some time with you and your parents! I love hearing that Eme has that fighting spirit, even if she's ornery! Hoping it's a good week! We're always keeping your family in our prayers!
Erin and Emily
We love you Erika and Emerson! Glad some more family could be there to distract you all! Happy Belated May Day!
Sean, Chelle and Carter Cates
You know we don't like the silence as that means things are brewing. Gosh - why and why and why!?!?! Emerson is such a fighter. Praying these drains stay put, work and don't cause Eme continued issues. As you say, "ai-yi-ya"! Always in our daily prayers. Give the big girl a kiss for us. Hope you enjoy your parents visit and Collin did last week. Love, The Cates Family Sean, Chelle and Carter
Amy - IL
Still praying for Eme, you and the rest of the family. I hope you are getting a little rest while family is there and that Eme is able to enjoy her visitors.
dais and joey
i am so happy your family is-was here! and that emerson is holding her own :D one boring day for you all, that's what i will pray for...
Annette W
I am so happy your folks are there with you; I know it was great for you to have Collin there, too. Your well-explained letter certainly had a mix of encouraging news and serious news. I pray this week brings some answers and also some needed healing. We all know Eme has the right to be ornery, and we understand it, but I know it does not make it easier for you! Poor, sweet pea. Prayers, prayers that she can at least be well enough soon so she can enjoy some spring days. Hope you are getting some much derserved/needed sleep while your parents are there. And I hope the weather is nicer there than here....geez, what happened to spring in Michigan??? Thinking of you...Annette W
Krystena
Hey Erika, just checking on you. Hope you are able to get a peek at the sun this weekend.
Tammie Dubs
Checking up on you guys early this morning. Keeping you all in our thoughts, of course, each and every day.
Shayne Frankel
Thinking of each of you - hoping Emerson has a peaceful weekend. Enough of this drain popping!!! Good luck with studying rock and capitols (hope Collin is better at memorizing them than I ever was)! Sending hugs - and some California sunshine to brighten your weekend.
Annette W
Thinking of you and Eme.... Prayers, Annette W
Molly
Thinking of you & sending more love, hugs, and prayers of Hope. The joy of school projects and study guides. I'm glad Collin was able to visit. We are never too young or old to learn something new each day! Take Care!
Joan and Kylie
I hope all is going okay. Hope things have calmed down a bit. Love joan and kylie
Erin and Emily
Missing you! Glad you got a change of pace with Collin there! I bet he has enjoyed one on one Mommy time, too! Anxious to hear how today's events go with Emerson! Hugs and Smiles- Erin and Emily
Patti
Glad she is doing a bit better. Give Collin our best and enjoy your time with him. Always in our thoughts and prayers!
Alison Stanley
May the graces of the Easter Season abound! Much love...
Maria Connely
Hey Erika, Sorry to hear about the rough patch, hopefully the trip to the OR on Friday will put her back on track, allowing her bowel to heal and getting you both home to Colorado. What a nice change of pace for you to have Collin to spend time with as well, and focus on school projects :) Glad to hear your parents are coming for a visit - please give them my best. Still planning on visiting you all up at the cottage this summer! I know Eme probably loves the sand between her toes like the rest of us! Much love, Maria
Dianne Rios
I'm sorry to hear things were rough for a bit, but happy Eme seems to be turning around. I will pray that her next OR visit goes well and she bounces back quickly. Enjoy your visit with family!!
Annette W
I was so very happy to get your letter from last night. That is so hopeful the doctor's were able to do some good, and I bet they will be successful Friday. How great that Collin is coming, along with your wonderful folks. I laughed when I read about you yourself learning about rocks and the capitols. Remember in fifth grade when I had the kids learn the capitols along with the spellings, etc? I bet it comes back to you! Have a good weekend with your family. Say "hi" to your parents for me. Prayers always, Annette W
Krystena
((((Hugs))) Sending my love and prayers.
Annette W
Thinking of you and praying all is well..... Annette W
Tracy
Hope all is well. Kylie's mom has updated and said Eme went back to PICU and OR. Sending prayers your way.
Marla Dreher
Hi Erika, We met once at the Bruekens' Halloween party last year (2009). I recently received this website from Melanie, and had a chance to read everything today. Just wanted you to know we are thinking about you and wish your family all the best in Emerson's recovery. She is such a beautiful child! Prayers for you and Emerson~ Bert and Marla Dreher
emily taylor-white
Thinking of you both today & sending lots of love!
Patti
Hope all is okay...thinking of you and praying for you.
Sean, Chelle and Carter Cates
Always praying daily for Eme, you and your family. Read Joan's prayer request on Kylie's CB site, and hope nothing new is happening. May God grant Eme and you the continued strength to get through the trials. Love and prayers from Texas. Sean, Chelle and Carter Cates
Julie Balke
Praying for you all. Hoping all is ok!
Colleen McQueen
Wondering & Praying!!! Hugs from NY Colleen
Carolyn O'Cain
Praying hard for Emerson, you and the rest of your family. Peace and grace to you all. In His mighty love...
Erin and Emily
We love you! Renewed energy and good karma being sent your way everyday in spirit of this Spring season! Hugs, Kisses and Smiles- Erin -n- Emily
Kate
Is everything OK? Kylee's mom posted yesterday that Emerson had to go the OR yesterday morning!!! Praying here and hoping to hear that all went well.
Sue S
Praying so often for endurance, stamina and God' s refreshing spirit to encourage you. Blessings to you and Eme.
Kim p
Thinking about you! Praying that you are ok.
Amy - IL
Still praying for Emerson, you and the rest of the family. Praying for the doctors, nurses and all of the care team for wisdom and vision to find a way to get the two of you home sooner than expected.
Ellen F
Good morning after Easter Eme and Erika, Wishing you a renewed spirit for the year to come. May God reveal himself to you in new, inspirational ways in the year to come. Praying for lots of "h" words in your world ... HOME and HOPE! All our love and prayers, Ellen
Mona
Happy Easter to you and Emerson! I hope Eme is having a good day. Been thinking about you so much and would love to see you both. Glad you were able to slip away last weekend. Give Eme a big hug!
Tracey Hill Nies
Happy Easter, Erika. Sorry it's been a hard week. Hoping tomorrow will be the start of better days! Hugs, T
Judy
Happy Easter E & E!!! Perfect day to celebrate the love and laughter of a child.
Leah Wells
We pray every day for you all. Happy Easter! This is a day that we celebrate hope...so appropriate! Love, Leah & family
Valerie
Happy Easter to two beautiful girls as well as the 3 handsome men in your lives! Hope today is filled with smiles and joys!! Love, Valerie
Annette W
I was so happy to see your post this Easter morning, but saddened at the rough time both you and Eme are having. I am sorry. And the poor family of Aria...so sad. I pray God gives them strength to face the days ahead. In church this morning the priest reminded us that Easter is a time for renewal of many things, one of them being HOPE. That is what we all have for dear, dear Eme. You are correct....Eme is here to do something special......as you are, Erika. You have already done so much for so many; you are as special as they come. I hope some good weather and some sunshine will help lift your spirits. (And, of course, some better pathology reports!) Take care. With love on this blessed day....Annette W
Trish Adams
My heart is crushed to read your words about sweet Aria. Simply crushed remembering how devastating it is to receive that PTLD diagnosis. Still this Easter morning, my hope is renewed. Renewed because we serve a risen Savior Who was crushed and yet LIVES today. I know in my heart that this Jesus, the very same one, holds our sweet girls, all of them close to His heart. Oh how He loves them each of them. The pain, the struggle, the meaning of it all I will never understand, but I'm praying for you and Emerson today and for sweet Aria, and our precious Kylie, and my Ashley Kate. Its the only place I can put my trust. My faith does not reside with transplant but it does reside in Him. Happy Easter my dear friend. Through the tears I wish you a very blessed day. Sincerely, Trish
Jenn Y.
Happy Easter Erika and Emerson... May the blessings of today, and everyday, follow you and bring you joy! Love, Jenn Y.
DeAnn
May you and Eme and the entire family Have a blessed and quiet Easter.Sending Happy Easter blessings and prayers to you all.
Heather
Happy Easter to you, Erika, and to the whole family. I pray that the day brings renewed hope and an abundance of peace, miracles and answered prayers. Heather
Karin
Wishing you Easter blessings!
Trisha Kurtzhalz - Helen's Grandmother
Thinking of you ladies and wishing you & your family a holiday filled with happiness & hope. Sending love & prayers.
JWN
Thinking about you and hoping the White's have a nice easter, sending a prayer your way as well
Annette W
Thinking about you and wishing all of you a Happy Easter.....I pray you receive some blessings.... Annette W
Candice Behm
So glad you were able to sneak home for the weekend! I just keep in my daily prayers when all of you can be at home together. Happy Easter weekend Emerson to you & your whole family! XXX's
Emelie
Have a Blessed Easter. Hope all goes well and the Easter Bunny brings blessings. Em
Barbara
Happy Good Friday Hope this weekend of miracles brings some to the White's. Hope you have a fabulous Easter
Tracey Hill Nies
Glad you were able get home. Hope you had a wonderful time. Hope Eme is still on full feeds (YEAH!) and fever-free! Happy Good Friday!
Sara
Thinking of you and your family. Always praying. Expect miracles.
Dianne Rios
So glad to hear Eme is on nearly full feeds! That is amazing news. Sending prayers for continued baby steps in the right direction, and relief from the infections/fevers.
Marisa form LiverFamilies
Sending many prayers. Glad you got home for a weekend.
Molly
Sending Prayers & Hugs of Hope!
Patti
Just thinking of you.
Jean Griesan
Hi Erika! What amazing news that the feeds are going so well! I have to say that I have been feeling a little silly, but I have been praying and praying and praying for Emerson's bowel to start working. I'm so hoping that it is and that it will continue to heal and work. I'm so glad that you got home for the weekend. Good for you for doing that! Hugs, Jean
Cindy LF
I'm thankful for your weekend with your men! Huge faith and prayers continue for Eme and your family! Love, Cindy
Deb UK
What a beautiful poem, it brought a tear to my eye. I have 2 children that are healthy and I picture my 5 year old daughter in Emmersons situation and only hope that I too, would have the grace , patience, wisdom and everything else that you Erika, has to deal with it the same way you have, she is blessed to have you and likewise, you are blessed to have Eme x
Laurie & Shania
Erika, I'm so happy to hear that you were able to go home for the weekend! You deserve more breaks like that! I bet all the boys just love when you're home! I'm glad that Eme did good while you were gone. Praying they can figure out why she keeps getting fevers. That's good news on her feeds! We continue to pray for more baby steps!
Carri
Hello, I have been following Emerson's blog for a long time. I am a 22 year old student from the St. Louis area and Emerson has been a large reason for my career choice. I am currently going to school to be an occupational therapist and want to work with kids like Emerson. In class the other day, we were read a poem titled "Welcome to Holland". I'm not sure if you have heard of it but I thought it was amazing and I'd share it. We are praying for you and hope Emerson improves soon! WELCOME TO HOLLAND by Emily Perl Kingsley. c1987 by Emily Perl Kingsley. All rights reserved I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this...... When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting. After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland." "Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy." But there's been a change in the flight plan. They've landed in Holland and there you must stay. The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place. So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met. It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts. But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned." And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss. But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.
Ellen F
Go miracle baby go! All our love and prayers, Ellen
Annette W
Oh, I was so happy to read you got home for the weekend! That is great and hopefully you will doing it again soon as Eme impoves. Great news about the "full feeds"....and I am sure they will figure out that temp and get it under control. I am glad you had such a nice, few days away. You sure desrve it! Pryares and thoughts, Annette W
Clare Johnson
So happy you were able to go "home" to celebrate with Jim and Collin. It's great that you got to participate in some of your guys' activities. How nice Emerson was stable while you were gone. Love and Prayers for your ongoing journey.
Colleen McQueen
I had a feeling you were MIA!!! GOOD!!!! for you... NO ONE IN THE WORD DESERVES IT MORE!!!! I am happy you got to spend time being a "normal" mom!!! I am sure the boys were thrilled!!!!!! and I am sure you had to drag yourself back to your NOT so normal way of living... NOT to Eme of course but to the situation! Praying that one of these days you will all be together under one roof called home!!! Hugs from NY Colleen
Molly
Way to go! So glad you got to make a trip to see the rest of your family. Praying for your family to be together soon! I would also like to thank your helpers who weed through the "not so nice" messages for you. What a blessing to have friends who love you and will fight that battle for you. Keep holding on to that faith, hope and love!
Rebecca
Happy Birthday to two of the boys...and Happy Easter/Passover, Spring Eqyeuinox for all!!!!!
Patti
Yeah! Glad you were able to spend time with Jim and the boys! Great news on the feeds...hoping for more positivity! Always in our thoughts and prayers.
Maria Connely
Erika, I am so thrilled to hear you were able to sneak away for a wonderfully busy weekend! You needed it, and so did the boys :) A double birthday celebration sounds ideal. It also sounds mostly positive for Eme, so we'll take a couple of days of silence, when you have good stuff to report :) Hope you get to open the curtains and let some sunshine in soon!
Deanna Bingley
So glad you were able to make it home! Happy birthday to both Jim and Collin! Good news on the feeds - that's a step in the right direction. Continual prayers!
Krystena
Just checking in on ya'll. Hope you have been able to get some fresh air. Love, Krystena
Annette W
just thinking about you and Eme.....
Valerie
Wow...seeing how old Collin just turned really put into perspective how long you have been on this journey! I hope that things are improving each day! Sending you lots of hugs! You should definitely take some time for yourself! The spring weather is blooming! Love always~ Valerie
Glenda Wilson
Miss Erika America!!!! Love It!!!!! :-)
Ellen F
Hello Miss Erika America! I knew there is a title suitable to all of your immense wisdom, talents, and PATIENCE!!!! I hope you found some zen time over the weekend... that or just a break for a refreshing walk and a long, long sleep! Good news about Eme's (slow) physical progress is the perfect way for me to sign out tonight. Man, a 4 year old in withdrawal. It really can't get tougher than that. All our love and prayers, Ellen
Deb UK
Still hoping and praying for your sweet darling little girl. Her will to live and enjoy the life she has been given is amazing, I don't know you but I have nothing but admiration for you Erika. Thinking of you all, night night, God bless.
Cassandra from Wy
Thinking of your family:) hope things are going well!
Tara Smith
So, you are short on smiles and laughter? My mom brought me an old box of school papers when she came to visit this weekend. Just a few moments ago, I found a book of poetry by Mrs. Kuhn's second grade class... Here is a little limerick, written by Erika Scott... There once was a girl named Erika, Who was chosen to be Miss America. She flew to Atlantic City To sing a little ditty And returned as Miss Erika America! I hope that made you crack up just a little! Thinking of you all...
Clare Johnson
HAPPY 12th BIRTHDAY, COLLIN! You are a loving, caring young man and a Super Hockey Player! May God Bless you all year long. That Friday Photo of a Smiling Emerson did my heart good! Today marks Two Long Years since Eme's second set of transplants. God Bless Your Whole Family. With Love and Continued Prayers of Hope, The Entire Johnson Family
Trudy
Happy Birthday to Collin from the snow covered sandhills!!!!! Glad it is melting quickly!!! Just know that I am still praying and sending good vibes your way...Love and hugs to you both!!!
Molly
Happy 12th birthday Collin! I hope you had a nice day. Best wishes to you in the year ahead!
Jennifer Wallace
Happy Birthday Collin!!! Hope you have a GREAT day!!! Eme, we continue to hold you close to our hearts and pray for you daily! Erika, you are amazing! Hang in there and know you are also in my prayers daily! {{{HUGS}}} Jennifer & Brooke Wallace =-)
Cindy LF
HAPPY BIRTHDAY COLLIN!!!!!!!!
McLay family
Dear White family, Firstly happy birthday Colin...we trust you've had a special day with whatever it brings along. As you head into this year may you learn more about God's love for you. To the family...we have been following you're blog for a few weeks now and just wanted to let you know that we are praying for you...being so far away in a different country, that's all we can do but we know that it opens the biggest and best store house of all...all of Heaven. As you continue walking this journey that God has called you to, we pray that you'll grow closer to Him and that you'll continue being a testimony for HIM and that souls may be saved as a result. Thank you for what you share on your blogspot...mainly no doubt for those closest to you but with technology for the world to see. As you share may you know God's healing and strength along the way...our thoughts and prayers continue to be with you along the way. With greetings from NZ McLay family
Joan and Kylie
Happy birthday, Collin!!! On our way soon to see you!!! Love from Louisiana.
Anne Dennon
HOPE IT'S BEEN A GREAT DAY COLLIN. HAPPY 12TH BIRTHDAY FROM BAINBRIDGE ISLAND, WASHINGTON.
Laurie & Shania
Love hearing that Eme is making baby-steps! I can't believe you almost have a teenager! Hope Collin had a great day! HAPPY 12TH BIRTHDAY COLLIN!! :o)
leslie Irons
Happy birthday Collin! One more year and your officially a teenager! Sending birthday wishes from Illinois. :-)
Lori Marquez
HAPPY BIRTHDAY COLLIN! God Bless all of the beautiful White children and their parents. Love, Lori
Christy A.
Happy Birthday Colin.... I still remember my aunt's passing him around my baby shower thinking it was my step-sisters baby. You looked like they were all losing their ever loving minds, and they were... lol Still praying for Eme !
Michelle, NY
My sister is the assistant secretary to Oprah in the studio and I am looking into possibly getting with you to air Emerson's story on Oprah. I will get with you when it happens but something is brewing.
WOW... That would be amazing! I'm speechless!! Thank you soooo much :)
Joyce J from IL
All of us, my family, wish HAPPY 12TH BIRTHDAY, COLLIN WHITE!! Of course, you, Collin will have very good chance to see more of your mom and sister, probably very sooner til forever, we hope your sister stays so better daily... Help take care of her and your mom, too.. Tell your brother, Bradley hi and your Dad, hi, too! God Bless all of you, the White Family! Hugs!!
Patti
Happy Birthday Collin!!!!
Krystena
Happy Birthday Collin!!
former UNMC worker
Hello Erica looks like averyhring its going better and better,i like it.I also want to mention,the update before collin's b-day,shows you a very energetic,worried but happy, not complaining,the attitude brings to you more blessings because you are thankful with every step done to take care of your precious Emerson.I know you have ups and downs.I pray for you and all your family.
Tammie
Erika, eventhough I know that you are doing what is needed now, I can imagine how it must be being away from Collin today. I'm sorry that it is the way it is. I'll pray for you to have some peace of some kind, some way, today. Hugs as always to you and Eme.
Deanna Bingley
HAPPY BIRTHDAY COLLIN!!!! It's quite obvious what an amazing boy you are and how proud your parents are of you :)
Cindy LF
Praise the Lord for friends offering support and ideas! I'm thankful the antibiotics are working on this nasty bug! We're praying for Eme's continued healing, mood and pain relief and for your strength to endure Erika! Hugs and Love, Cindy and Mike
Julie
You are awesome to be Emerson's "slave"! She's lucky to have you. Give that poor baby ANYTHING she wants - she deserves it!
Joyce J from IL
We spoke at secretary office with her and pastors...that will work out but won't happen until end of May we will run community rummage sale and flea market, all moneys will go to Emerson's fund. Ice Cream Social and Circus will happen in mid July, this summer. Most moneys will go to Emerson's fund, also. Ok with you, Erika!? Hugs God bless all of you!!
WOW... That's amazing Joyce - Thank You!! :)
Annette W
I love to hear about steps forward, even if they are baby steps. That is is good! And yes, absolutely, you need to go outside for a nice walk on a nice day! You need to be refreshed! I am so happy about all the positive responses for funding, etc. But I certainly am not surprised! You are special people! That is great. Take that walk! Prayers and thoughts, Annette W
Bart Bartholomew
If Eme still wants the room dark, maybe one of those hats with lights built in that they use in Alaska for depression (seasonal sumpin disorder) would help. Eme might accept one because it is cool and different; you might benefit from wearing one, too.
Sheryl from LF
Just thinking of you guys this morning. Praying for a great day for you guys!
Ellen F
I am so glad to hear that Eme has left the PICU and hope that gives you a little more freedom too! The COTA donate tab is so easy to use, especially with the ability to post a request to Facebook. Hopefully this simple fundraising tool will be used by others. All our love and prayers, Ellen
Jan
Can you mention in your next blog whether P.O. Box 31366, Omaha(neede zip) is still in effect? I've been on this journey with all of you for a long time and you are always in my prayers. I feel you and Jim are 2 of the strongest people alive!!
Cathy S. in KY
I "met" you and Emerson through a high school friend of yours who lives here in KY. I have been reading your journal for several weeks now and have been so moved by your story. Emerson has a strong determination and you are an amazing mother! Happy to make a donation and will try to get my employer to do something as well. Our family is keeping your family in our prayers.
Lori Altman
I am so glad things are looking up! The picture is precious and Im sure much needed on your part! Ems is such a strong little girl... wonder where she got that? Prayers for more sunny days and lots of smiles!!! God is so good!
Jill from Calhan, CO
Thank you for asking Erika, we are happy to help in any way we can! My husband and I own wholesale salon professional product stores in Colorado Springs and Castle Rock and we would be happy to donate sizable gift baskets if a silent auction is put together. I can probably round up some local hairstylists/nail techs to offer services as well. Guestbook followers: If anyone is thinking of putting together an auction event, or something similar, please let me know where I can donate these services/items. You can contact me at: State8601@statebeauty.net Hugs-n-healing :)
Phyllis E.
I have followed your journal for 2 years, my heart goes out to you and your family. Keeping Eme and you in my prayers and also for your family so far away. Eme is a courages little girl, what a fighter. She has a wonderful and a very courages mother too. Sent a donation and will try and find some way to get some sort of fun raising going. Prayers and hugs.
Christy A.
I filled out a request for help on www.ellentv.com . Super easy and if everyone that follows Eme's story filled out a request in Eme's name maybe they will take notice. Good luck !
Laura
We sold custom silicone bracelets to help with funds here. We then the next year silicone keychains. they sold at $5.00 total including shipping. I do advice you to charge a $1.00 extra for shipping. we shipped alot and pretty much ate about 1/3 of the funds. Just an idea. Hope it helps. Eme is always in our prayers. we lived 5 months away from home the end of 2010 to 2011. It was a very difficult task. And are still trying to recover, nto really sure if one ever does. Our daughter is on her second transplant. My thoughts and prayers are with you. it is nto easy to watch your shild struggle and be in pain. T
Donna Russell
I read Emerson's story a few weeks ago thru a link a liver mom shared on facebook. This morning I woke up thinking about Emerson, had to remember her name, which mom posted it and scroll thru quite a few weeks to find. I will be praying for your precious daughter. She is such a trooper. My grandaughter has biliary atresia, yet remains perfectly healthy. I will continue to read Emerson's story and continue praying for her.
Lisa & Rhyleigh
Could a group page be started on facebook to spread awareness of Emerson and her needs? I know there is one for prayers but I am not sure who is in charge of it. If we can create a new one for the purpose of fundraising then we could share the page and spread the word. Let me know if you need help with that I would be happy to create and take care of a page like that. My email is Poohlet10@aol.com Lisa
J James
SO happy to hear that Emerson is out of PICU So happy that you shared a way for all of us who don't know you personally to help. I will also help spread the word Emerson is so lucky to have an amazing mother like you.
Cindy LF
What wonderful news! Eme is out of PICU and still fever free! Prayers are being answered! We will consider how we can be of help through COTA. Prayers continue for Eme's healing, strength for each of you and peace and comfort only our Lord can bring to each day. Love, Hugs, and Prayers, Cindy and Mike Cooper
Julie
YAY for Emerson getting moved out of the PICU! I bet she'll be able to rest more comfortably knowing that her Mommy is by her side at all times. When my son was in the PICU I HATED that I wasn't able to be with him all day and night. At a time when our kids are most critical is when they ask us to leave for the night. I was so thankful to be put back on the floor so that I never had to leave. And my son did so much better too. I remember asking why the visiting rules were so awful in the PICU and someone said, "don't worry about it...its good for you to get away and get some rest." These people must not have children!!! If my son wasn't allowed to get a break then neither should I!!! We spent 2 straight years in the hosptial - only one discharge that lasted less than 48 hours and then we were back in. I feel your pain Erika. Glad things are moving in the right direction!
Joyce J from IL
I just got off the phone talking with my friends from our church suggesting any idea so we might ask the church to give permission to be used for community yard sale for Emerson next month or two that we can collect money and have our church office secretary mail to COTA by their check... I will update you later this week. And, we will ask again for Ice Cream Social fundraiser, too!! Hugs!!
Michelle Horton
So glad you shared how I can help! Praying for you and Emerson (and your whole family) tonight!
Tracey Hill Nies
Hoping it's been a few more good days! T
Annette W
Thinking of you..... Prayers, Annette
Trisha Kurtzhalz - Helen's Grandmother
No one deserves a good day more than you and Emerson. I hope it has stretched out to a good weekend - the first of many, many more to come. What a beautiful picture - she is precious beyond words. Sending lots of love and prayers to you both.
Sara from LF
She looks so good......that picture of her is absolutely beautiful. What a wonderful feeling it must have been to walk in and see that....
Cindy LF
Holding you in my thoughts and prayers as we head to church this morning. Giving thanks for small victories and continuing to believe and pray for more bringing Good Days for Eme!! Sending you hugs and love! Cindy and Mike.
Amanda Noble
I give you soooo much credit for your strength. Eme is such a little fighter. I don't know how you do it and have been doing it for so long?? I recently experienced caring for my mom who was in extreme pain from cancer and it is the most awful thing in the world when you cannot take their pain away. You have been going through this for years and I cannot imagine the sacrifice and toll it has taken on you. My experience only lasted months and I kept thinking I don't know how people do this for years?? I wish you & your family the best! Bless you & stay strong!
linda cerreto
Looks like you needed the little overnight break ;) mommas gotta take care of herself too:) im excited about your renewed bit of strength ;).
Heather
LOVE LOVE LOVE that smile! She is so cute sandwiched in-between her twins. Praying for continued good news and healing, rest for you both and that the pain fully abates. Always hopeful! All the best to you from here in Colorado.
Jessica Hilliard
Hooray for a good day! So glad to hear about the smile. I hate hate hate the pain. We deal with it non-stop, and it is really heartbreaking. I hope that Em's team finds a good combo of meds to keep it under control for her! Interesting about the CRKP- I looked it up, and it definitely sounds pretty nasty. Eithene has CRPA (carbapenum resistant pseudomonas aurginosa) and ESBL KP (extended spectrum beta-lactamase producing klebsiella pneumonia), the latter of which usually includes the carbapenums, but in her case (for now) she can still have meropenum for it. She's on "contact precautions for life" too, but not to the degree that Em is- I don't have to gown/glove- just everyone else. I hate that Em may not be able to meet with friends anymore, and that you might not be able to meet with other families- that is VERY hard when you are stuck in a hospital and the only social life you have comes from the parents of kids who are as sick as yours. I hope that someone can figure out a method for you to be able to have SOME form of interaction with other families! Anyway, I am thinking about you and thanking God for a good day, and praying for healing. Jessica www.fromthebanksofjordan.blogspot.com
Eme had ESBL KP too, for a long time... it's morphed now into CRKP :(
Emelie
ok, that was suppose to be a heart and then Awesome. Not sure why it didn't post. anyway, very happy for you. Em
Tammy
The smile says it all!
Brian
What a great smile! :)
Joyce J from IL
Very Good Picture of Emerson~!! She looked like she did lose some pounds off...She looks real beautiful doll.. Sorry you had to leave and I can imagine how hurt you felt leaving poor baby behind. Hope she made it through the night without you! Hugs!!
Candice Behm
The picture of Emerson smiling has me grinning from ear to ear! What a welcome sight for you to be greeted with this morning! She is one very amazing child!
Michelle J Browne
I know there is no way you could possibly read all of the guestbook entries, but I had to comment today. A mutual friend introduced me to your site and situation a year or so ago and I have been following your courageous journey. I am amazed at the strength that you, your little girl and your family posses! I can't imagine being in your shoes but you are such a fantastic person and I known that somehow great good will come out of all of this. Emerson looks amazing and you sound upbeat and positive. I too have a little girl and I am happy to see yours smiling through everything she is enduring. You are doing an outstanding job, Erica.
Lauren Jones Dinsmore
Love her picture! And happy for you to have some good news at the end of the week. Here's hoping for a fever-free weekend! xoxo
Leah Wells
Praying & thinking of you often ~
Shayne Frankel
Hi Erika - Sending hugs and wishes that Eme continues to be fever free, and greatly pain reduced -- and that the healing continues. Eme will be very good as a dramatic actress when she gets older after all the drama her body is putting her through right now. May you too have a good weekend - filled with sunshine and smiles (and lots of hand touching Eme)! Hugs
Kathy Russell
What a darling picture of Eme! She looks like she is feeling really good! I'm so happy to hear you had a GOOD day for a change. You have had way too many bad days recently and you definitely deserve a break. Here's HOPING and PRAYING that the GOOD days become the norm.
Jill from Calhan, CO
Dear Erika, My heart is so happy for you, the sunshine is pouring into Eme's hospital room, God is present with her....and your soul:) Sending great big hugs from Colorado, and more prayers coming your way for healing, strength, and so much more HOPEful time :) God Bless, Jill
Crystal
LOVE the picture. Such a beautiful little girl!
Laurie
I've been following your blog for awhile and haven't commented before. Been praying for Emerson, I was so excited to see the picture of her smiling face today! We will keep on praying!
EMILY TAYLOR-WHITE
So glad Eme is feeling better today!!!! Hoping this will be the first of many good days!!!! XOXO!
Deb
Wow! She looks so beautiful... And happy. I've tears rolling down my face as I look at her. She is one special little girl. Sending you all big hugs and thinking and praying for you x
joey and Dais
WOnderful!!! Emerson looks fantastic! TGIF...here's to a matching night and weekend and... XOXO Us
Dianne Rios
What a smile!! She is beautiful. You can see her strong spirit and drive just looking at her. She reminds me a lot of my youngest. She's my most spirited and she has pushed through her early health challenges with such determination. We, her parents, just followed. So I can relate to yours and Jim's posts. These amazing, spirited children show us the way...
Rachel
So glad to see that beautiful little girl smile!! She is so sweet!!
Annalise
If anyone dares question what you and Jim are doing only have to look at Friday's picture to receive their answer. So glad that she had a good day and with that you had a good day too. Always thinking of Emerson and your family.
Aimee
Friday's pic brought me to tears... How I LOVE that smile!!!!!!! I'm just oh so happy to see her enjoying her day!!!! Please give her a BIG hug and kiss from me! I have to correct my note from the other day. I said " Mou Choo Choo" but it was "Mou Go" that it took me forever to figure out. Not sure why I had to tell you, but I have been thinking about it since I wrote last. Hoping for many, many more good days!!! All my love, Aimee(TCH)
Sven (from LF)
She is so sweet, bless her. And this smile shows how much she wants to live her life! You go, Emerson - keep up your GREAT fight, sending best wishes for more better and better days!
Amy - IL
Yay for the smile! Praying for more smiles all weekend and for more little bits of good news.
Deanna Bingley
Now that is the way to start my weekend! What a beautiful smile and the sparkle in her eye is just awesome. Here's hoping that each day starts with that smile! Hugs from Michigan!
Janice Terry (Hanna)
wow. her picture is sooooooooooo beautiful and HAPPY!
Molly
Erika, Seeing Eme's beautiful, sweet smile has filled my heart with love & hope! I am so happy she greeted you with such a special suprise this morning. Best wishes for another good day. You are in my prayers!!
Trish Adams
Oh, Erika, I love her soooo much! Her smile is the most beautiful thing I've seen. Thank you for sharing her with me. With all of us. Love you my friend. Trish
"Maama" Kathi
Erika, it's so great to hear you upbeat and even more wonderful to see Eme's beautiful smile! We will believe for continued progress and smiles... :) (((((HUGS)))))
Michelle
That is one precious smile! Many prayers for continued blessings!
maria connely
Victories, no matter how small are worth celebrating! Draining is good, at least it is.progress ;) wishing you both a quiet weekend, with more victories!!!
Julie lasota
She looks wonderful! So nice to see her smile. Continued prayers!
Dianne Rios
So glad you get to ditch the gloves! Good negotiating :) Hope Eme continuous to stay the course and just keeps getting better with time. After reading your blog for years, I know that Eme often has her own timeline and has an amazing history of bouncing back. I will continue the prayers.
Cindy LF
Good Morning Erika and Eme....Yeah for glove free! I know this will be more comfortable for you! Holding your family in our hearts! Sending you love and hugs! The Cooper family
Annette W
Let's hear it for no gloves!! Yeah!! Boy, they sure mean business, though! But better safe than sorry. Hope both YOU and EME are getting some rest. Prayers and thinking of you, Annette W
Maureen
Erika, My computer has a virus (it must run in the family) so i have to keep in touch this way for now...We all said prayers and sent positive thoughts your way this weekend. Missed you all. Nanny had a great 100th birthday..tell you all the details when you have hours !!! Am glad you won the glove battle..even if it is avery small step. Much love and hugs, all the White family
Vicky - Allie's mom
I want to thank you for sharing your story and Eme's journey with us. Your family will be forever in our hearts and prayers.
Beth
still praying
Trisha Kurtzhalz - Helen's Grandmother
So happy you are now sans gloves - nice that the hospital is willing to be at least a little flexible. Glad little miss had a good morning - this is always a tough time of the day - if you are going to feel punky this is the time for it. Sending blue skies, sunshine and lots of love and continued prayers.
Jessica Hilliard
SO glad the gloves are gone! I have been thinking of you like that for days on end- and knowing how awful it would be! Glad for a "mommy" victory on that one. Praying Em heals and gets back to the zoo! She obviously gets her will to live from you- your will to fight for her and hope for her is incredible! Thinking of all of you! Jessica www.fromthebanksofjordan.blogspot.com
Emelie
Thinking of you and Eme. Very happy that they allowed you to have your hands "free" to touch that beautiful girl. ((((((((HUGS)))))))) and prayers Em
Brian
Hoping all is well!
Molly
Sending more hugs and hope filled prayers! Thinking of you all.
Patti
Glove free...good for you!!! Baby steps...again! Thinking of you!
Candice Behm
Just stopping in to check on Emerson & say hi.
Erin and Emily
Well, we are of course, totally bumbed that we can't see you two! Skype here we come! But- I am glad you can be free of gloves as long as you do those tasks- which really is easy! Darn straight people should be written up. This isn't a choice- it is a necessity and for a member of the hospital staff to go against it is ludicrous! We love you! Hugs and smiles
Beth Weaver- DenimsMom on LF
Praying and believing in MIRACLES for Eme!
Colleen McQueen
Praying for you ALL!! Think about you constantly!!! Hugs from NY!! Colleen
Molly
Thinking of you this morning-sending prayers & hugs!!
Theresa
I have been following Emerson and your family since she was featured on the "MACS" website. I will continue to pray for improvement, and better days to come. "THE BEND IN THE ROAD" Sometimes we come to life’s crossroads, And we view what we think is the end. But God has a much wider Vision, And He knows it’s only a bend. The road will go on and get smoother And after we’ve stopped for a rest, The path that lies hidden beyond us Is often the past that is best. So rest and relax and grow stronger, Let go and let God share your load And have faith in a brighter tomorrow, You’ve just come to a bend in the road. By: Helen Steiner Rice
Ty and Caite's Mom
You made me cry with your post the other day about why you blog. You are....I don't know. Words fail me right now, but suffice it to say, I bow to you. And to your sweet girl. Praying for a qiuet night for you all...
Susan in Kansas
Just wanted to say what a good person you are Erika; what a good mom. Praying for Eme and you.
Belinda (LF-Aus)
Hey Jim .............. you ROCK! :D xxx
Annette W
Erika, you have to be the most well-spoken lady I have ever known! The way you tell what is happening and express your ideas and thoughts is astounding. I am in awe of you! I also am in awe of that special little girl, Eme, and how she is fighting so hard. She has, in her own special way, what we all have....hope. There are so, so many out here in "cyber-land" who also have hope and are praying always for all of you. It is a special circle of friends...and a special prayer group. I hope today was a better day...and continue my heart-felt prayers.....Annette
Samantha Sutherland, NZ LF
Erika, thank you for always sharing life as it is for you. You are always so real, so human and so precious. My heart breaks that any other human being could want to manipulate your journey in any way. No one but you can know how this is and to be honest I could never do anything but fight for my children too (and I say this as a fellow hospital mum)until my own very last breath. Eme is such a gift in so many ways and I know you make the most of every precious moment with her. Sending you lots of love from New Zealand.
Kristen
I have been praying for you and your family daily, you are so strong! Some of the comments here are coming from people that are scared and weak in there lives. It's very shocking to me that anyone thinks they can judge you and your situation. We all take our own paths in life, sometimes we make good decisions and some are bad. You have to make some of the hardest dessions anyone will have to make! I pray for your daughters strength and wellness. I'm glad you write this journal for yourself and for anyone else that reads your journal and feels less self pity. Good luck to you and your family:)
Wendy
Hi. We don't know each other (I came across your blog through the "Praying for Noah" blog), but I just wanted to let you know that I'm praying for you and your family. I think you are an amazing person!
Tricia Best
Hello, Jon & I are still thinking about all of you. We send out our prayers. We hope Eme heals & is okay. We have Eme & all of you in our hearts. Our hearts bleed when the news is bad & jumps for joy when it's good. We hope a lot more joy comes your way than bad & we H.O.P.E. for Eme along with all of you too. God Bless! Love, The Best’s :O)
Molly
Ditto Michelle. Go Eme Go! Gimme an H...O...P...E! Sending my love & prayers to you tonight!!
Michelle M.
Just sending you a note to let you know we are absolutley "Team Eme!" and know that your daughter and boys will know what an amazing Mom you are throughout all of this. You give all of us courage and hope. ((Hugs))
Brenda Cartwright Grose
So glad that you have such great friends that protect you against nasty comments... I can't even believe that anyone would be nothing but supportive toward your family with the life that has been dealt you and struggles with Eme's health. No one knows until they've walked a mile in your shoes... God bless you and your beautiful family..
Maria Connely
Erika, I love that Jim's words echo your own... You both write so eloquently, and honestly. Eme is an inspiration to your family, and to so many others. Hoping she lets you open the windows and get some sunlight in soon - she definitely has a mind of her own ;)
Lori Marquez
Dear Erika and Precious Eme, it makes me so sad to hear that things aren't going too great lately. I so wish I could be there to give you a hug and some comfort. Please know that I continue to think of you every day and pray for you every night. I hope your beautiful b aby girl feels better and is on the mend very soon. God bless all of the wonderful doctors and nurses who take care of her. Love, Lori
Tammie
Erika, Vonn and I and his Aunt Trudy had to chuckle at the remarks you made about Emerson not doing her breathing treatment with the mask. She definitely is a beautiful little girl in the fight for her life but she also is definitely a defient 4 year old too! We could just picture her shaking her head and not doing this. Made Vonn smile for sure! Hoping she is letting in a little sunshine on your cave today! Take care.
Wow!
I'm really touched by what Jim posted. I'm a Phil Long employee. You don't know me, but I sure keep up with your blog. Jim is so right in that Emerson is the driving force here. All you can do as her parents is be behind her all the way, and love her unconditionally, just as you would if this was not your journey. I really can't come up with anything to say that hasn't already been said. God bless your family, and we ALL love Emerson!
Dana
Hi Erika, Dont know if you remember me, but i wrote you on FB about 6 months ago. I still follow Eme's page daily, and my heart feels joy and pain for you with each up and down. I don't understand how people think they have the right to say hurtful things, or even suspect what they might do in your situation. You and Jim do the best you can for Eme, and I could only hope that if i were in the same situation with my kids that I would have the same wisdom you do. God Bless you all, and please know that my family prays for you all daily. Love, Dana, Drew and Mikey Kmec in NJ
Sandy Steele
I have followed Emerson's story since my granddaughter had a liver transplant 2 years ago. My thoughts and prayers go out for you daily. I wish ya'll were closer so that I could physically help you during these trying times. You are an excellent mother and advocate for not only Emerson, but transplant patients everywhere. Sending blessings and happy, cheerful days for Emerson!
Kristin
Jim's letter brought tears to my eyes. Eme fights so hard because she has such a FANTASTIC support system in her Mom, Dad and Brothers. The sacrifices made by your family show the tremendous love you have for your daughter. You all have my upmost respect! Hope for Eme's continued recovery!
Aimee
Aww!!! Mickey Mouse Clubhouse! The first time I took care of Eme I had to figure out what Mou Choo Choo meant. It took awhile, but I figured it out. I sure do miss you girls!!!! I was so lucky to dream of Eme yesterday. I got to see that cute face... I'm sure I was smiling in my sleep. Sending all my love your way! Please give Eme a BIG hug for me!! XOXO Aimee (TCH)
Cindy T - Omaha
Though I have never met you or Eme, I know that God has given you the strength, patience and love to see your daughter through this long, straining health condition. Continue to count on HIM, because he is always with you, your beautiful little girl and your family. My group prays for you all everyday and we pray that God will create a miracle in Eme's little body.
Debra Snow
Erika, I read daily and talk to your Mother as often as we are able. I have not written for some time. I am not able to express myself in writing as others do so well. Please know David & I pray & hope for Emerson & your family every day. Much love to you all.
Kim M., St. Louis, MO
Thinking of you. Hope you are experiencing the warmth of sunshine, blue skies, and birds chirping as we are here in St. Louis. I've got a feeling...it's gonna be a good day for Eme and her medical team. PS Thanks, Jim, for your entry. Brought tears to my eyes, but I think the comments and perspective from you was appreciated by many, including me!
Patti
Praying for you every day....want you to enjoy the sunshine outside of that room. That is my prayer today....always in our thoughts....always on our minds and always in our hearts!
kris dowler
So sorry you get negative comments! The strength and determination of Eme and her entire family amazes me. Keep on fighting, praying for you guys.
Melissa
The fact that someone has the gall to comment with negativity makes me so mad,and I am am so sorry. No one has the right to question the decisions that you, Em's parents make. I have a child with mito, and I know that every decision has the potential to have consequences. I am in NO WAY comparing situations, but do know the anguish of those decisions. Storming Heaven for you all. May God bring you all peace as a family, and know that you are loved.
Deanna Bingley
Jim, I think about you every day and the situation your family has been faced with. What I come away with every time is that your children have the most AMAZING Mother AND Father. The burden you bear and the journey you face together makes me have hope that marriages do stay together even through the toughest of times. You and Erika are an inspiration to me in that way too. Thank you to you both! Deanna
Kim TN
Have been following your journey for only a short time. Just know that I think of you all often and send prayers daily. It hurts that people would post negative comments! Who would not fight for their child! That is why we have been trusted with such a precious life. Keep fighting for your daughter. Hope you see improvement daily as it will be a long journey as you k ow. Praying every day for your family.
mc
Hi Erika. I've hesitated to write since I don't know you, but i've been following your blog. Just wanted to let you know you have somewhat of a "kindred spirit" somewhere reading about you. I have at least a minute idea of what you are going through: My son was born with a heart defect 15 years ago and I spent many months in hospital rooms, PICU's, procedure waiting rooms, pacing hospital hallways, eating hospital food, etc. My son's circumstance was vastly different from yours, and I am NOT comparing it in any way, but I feel some of your pain and frustration. Ugh, the weekend staff? Don't get me started. Getting the "crappy nurse"? Well, I guess I'm not sleeping tonight! The smell of the ICU coffee maker....puke! The list is endless, right? I never want to see the site of another doctor coming out of the door with "news" for me... Anyhow, I'm thinking about you..someday you'll get back to life...hang on.... M
Kim p.
Thinking about you and eme and wishing I could lift some of the heartache and burden. Take care of yourself Erika!
Jennifer Wallace
Eme has the most amazing parents!! So glad she has you fighting and being her advocate!! Way to go Erika and Jim!! You have touched my heart in so many ways! Your strength and courage and love keeps me going day to day! As a transplant mom I get what you mean, of course Brooke does not have the same journey but similar. I continue to keep you all in my prayers and God is in control! Hugs and love to you all! Keep fighting Eme, you are absolutely AMAZING!! {{{HUGS}}}} Jennifer Wallace <3
Cindy LF
Way to go Jim! You and Erika are very loving and strong parents! We hold Eme and you both in our prayers daily. Erika....this is your blog, enough said! You say it all anyway you feel you need to. That's what you are supposed to do. We are supposed to support and pray! Keep healing and fighting Eme! We believe in your heart and spirit! Thinking of the five of you! Holding you in our hearts, thoughts and prayers! Love, The Coopers Cindy, Mike, Matt and Tyler
Deb UK
I have been following this brave little girls story only a short while but her will to live amazes me. She has been in my thoughts ever since and I have found myself praying for her and her family at every opportunity. My thoughts and prayers are with you, sending big hugs and lots of love and HOPE xxxxx
Belinda McKay (Jett's Mummy)
Erika, Jim & Emerson, Erika we think about Eme every day, Jett talks about Eme's Journey often in our home, You are inspirational and you show us all the light in which we should follow when faced with the difficult situation the White family is following. I know you have asked how is it possible people are still following Eme's journey, Its simple Erika, Eme is loved all over the world even down here in our little corner. Much love Erika, I pray that Eme can rest and recover and that theres some awesome Coffee and a shower somewhere close so you can refreshen as well. All our love. XXXXXX
Genii
That people are callous enough to be critical of you and your family as ou battle for Emerson is sad. However, others can , will and do PRAY. my prayers are for strength,comfort and LOVE for you all. HOPE always
Toni
Spoken like a loving father! Yay, Em's daddy. The vast majority (absolute vast!) are in Em's corner, Erika's corner, your corner. And while we can't pretend to understand what it's like to stand in your shoes, we CAN relate to the love and determination of a parent in fighting for his or her child. That's why, I believe, we read. That's why we hope. That's why we pray. That's why we CARE. Anyone who asserts what they would or would not do in your shoes must literally stand in them first to know. And I have no doubt you would never wish your difficult "shoes" on anyone, ever. One can only hope that those who cannot find it in themselves to support and encourage your family, could at least find it in themselves to compassionately be silent. TEAM EMERSON HERE! Again, I'm guessing the absolute vast majority on very much on her team. May God continue to strengthen your precious family with the very strength He has given to Em all along. You all inspire me beyond words. Blessings, Toni
JIM
I don't comment often... perhaps some people wonder if Erika makes all these decisions by her self, without thought, whithout input, without considration for Eme, or without prayer. We anguish over Eme's journey every day...often questioning our decision to pursue a cure/positive outcome for our daughter, sister, inspiration. Ironically i had a conversation today with someone i respect for her insight, and it was almost as if she had the answers before i spoke. Hind sight is 20/20, and if we thought we would harm our daughter, inflict pain, or interfear with God's will, I assure you we would have stepped back. Many have questioned our motivation for continuing her recovery/treatment, some even the cost of her treatment, and the burden society/the tax payer has. I assure you, not a week has passed where her mother or I haven't had the same thoughts. All i can say is that at the most dire moments...when everything has been at it's most critical point, when even the doctors feel helpless, Eme asks/wills/drives us to continue this fight for her, and recovers. You have to know her to understand...and I hope everyone reading this gets that chance. Thank you everyone for your support, thank you Erika for being there every moment for our daughter, and thank God for your kindness! her biggest fan, and the most proud father on the planet...Dad and her brothers
Jenny - New Zealand
To Erika Emmerson and the people that support you I send you all love prayers and kind wishes. I know there is hope and Emmerson can fight this. You are the most amazing mother Erika and I am thankful that you share this journey with us. You and Emmerson are inspirational.
Amber Levy (dylans_mom)
Erika, Sending nothing but support, love and prayers for continued hope. I too hold out for for little Eme and have been reading your blog for years. Thank you for sharing your life with us all. You are an inspiration to me.
Chelle
I saw this on one of Carter's PICU nurses facebook wall today... I thought of you~ "When you feel like giving up, remember why you held on for so long in the first place." ~ Unknown all I can say my friend is that SHE is worth it! Always praying and sending hope your way!
Brynn
I'm praying hard for you friend. You are the STRONGEST woman I know. I can't even begin to imagine what you go through daily. Don't listen to dumb people on here that don't know what they are talking about. Remember that God is the great physician and through HIM all things are possible. Never give up faith. xoxo
Janna
Sending extra prayers and love your way! You continue to inspire me and for what it's worth, I will always support your decisions. I will pray hard for healing for Eme, and strength for you. I love y'all with all my heart. <3
Karen
Prayers and continued HOPE for Emerson's healing. Prayers for STRENGTH and COURAGE for you Erika and for your guys. Prayers for WISDOM for the medical staff. Only positive thoughts for a determined and resilient little girl and her family. Karen
Candice Behm
That zoo trip photo has me grinning from ear to ear! Keeping you all in my daily thoughts & prayers. Sending you a lot of love!
Lee Farrow
Emerson is your child and you are best equipped to decide what is best for her. This is your blog and you say what you feel. I only pray for the best for her and your family.
Sara
Expect Miracles.
Dorothy
Thanks to those of you who have told Jeff off--you have said what I wanted to say---my words would not have been printable however. Prayers coming from Oregon!
Kate
Another Mom you do not know who checks on you and Eme every day....hugs and HOPE and LOVE to you all. When Eme is having a tough time....I look at your photo album....what a cutie she is-Collin and Bradley too. Helps me focus on YOUR FAMILY.....Love from FL...
Shawna and Addi
Erika im praying for you guys! Jeff, have you ever sat beside your sick childs bed and watch them fight a hard battle? Well I have. Dont comment on here unless you have something nice to say. Your not walking in her shoes! She doesnt need to hear from heartless people like you!
Lisa Stidham
I faithfully check your blog each day and think of your family often. I'm glad there is some encouragement at this time. The not-willing-to-breathe episode cracked me up! My grandmother did things like that. There were so few things she could control in her life during her last months, and breathing was sometimes one of the battles she picked - also putting her fingers in her ears when I tried to speak. To the people who check the guestbook: Thank you so much for doing such a powerfully kind thing for your friend. Maybe you will be allowed a little bit of sunlight tomorrow :-)
Annalise
Jeff- I hope that you never have to deal with issues like what Erika has dealt with when it comes to Emerson. If you had you would never in a million years write something so distastful. As the age old saying goes, if you have nothing to say that is good than don't say anything at all....To Erika, I look on your blog, because I know your child is a fighter and full of miracles and has taught me a tons when it comes to life. Emerson is a wonderful daughter with a huge amount of strenght and has the ability to do so many things beyond what anyone can imagine..So sorry people aren't more heartfelt on the things they write. Prayers as always.
Noelle Krimm (LF)
I can remember days in the PICU post-transplant when the only non-medical conact I had with the outside world was the messages in the guestbook. Of course you need this blog and the good comments more than outweigh the bad. Jeff - your comment is one that should be made over beers with your friends who, unlike Erika and many of her friends and fans, have never been in this type of situation and never will be. Count yourself lucky and raise a glass, snarkily comment aboutr how you would do things differently (as if you ca even imagine for a moment what it is to be in Erika's shoes) but do not lie to yourself and tell yourself you are doing a service by revealing some hard truth. You are purposely setting out to hurt someone and are doing so as a coward - in an anonomous, faceless way. Shame on you. My brother-in-law once took a photo of my son - yellow and swollen in the hospital - because he believed with all his heart that it was the last time he would ever see my son alive. I'm glad he took the photo. My son can take it to show-and-tell one day. It ain't over til it's over.
Trudy
Bless you both on this very WINDY day in Western NE!!! Erika...YOU ROCK!!! You are an inspiration to us all...along with Jim, Collin, Bradley and Emerson. You are truly a beautiful family that I have learned so much from. Once again, Thank You for letting us tag along with you on this journey and know that there are so many that send good vibes your way. For those of you that can't seem to do that (Jeff) please refrain from posting or even reading this blog...It is not necessary nor is it appropriate. Love and Big Hugs from the Sandhills!!!!
Ellen
Praying for you and Eme. I am sorry people resort to angry comments when they don't agree with you. None of us out here can possibly "get it." Your strength and determination are admirable. I can't imagine... God bless little Emerson.
Jules Badger - Sammamish WA
Hi Erika, Just wanted to say we're continuing to pray for you. Praying for strength and steadfastness. Praying for Emerson to fight with everything she's got. Praying for everyone else to hold their tongue, none of us have the right to judge your journey. No one has stood in your shoes and had to make the choices you've had to make for you, for Eme, and for your family. You take care of you. We'll take care of the inconsiderate folks who dare to question your experience and choices. Get some rest if you can and feel free to be all out cranky! Praying for all of you, Jules
Trisha Kurtzhalz - Helen's Grandmother
I love that Miss Emerson is being so feisty! You can't be such a fighter without a bit of sass! When my granddaughter was post-transplant and the team would come in to do rounds they'd ask if they could see her incision. She'd very politely tell them, "No fanks, maybe tomorrow." We won't talk about how she was when one of the med students would ask her. Sending you all sorts of love and, by all means, be cranky!!!!!! You are among friends here. This is your journey and I count myself blessed that you have allowed me to join you along the way.
Emelie
I am so glad to hear that Eme is feeling a little better. She is a strong little girl with the will to fight. hugs to you and Eme ((((((((((((((HUGS))))))))))))))))) Em
Clare Johnson
God Bless You. :D
Nebraska
The Lord is my strength and my shield; my heart trusts in him and he helps me. Psalm 28:7 So many fo us are praying for Eme and her family.
Joyce J from IL
Wow... Emerson is a little more alert when she was awaken. That means it shows she can do anything to fight beating any problems she has with. Fever needs to go away! I hope this week will turn out more better without going back to O.R. again! Pray for that, too!! Tell Emerson there is a Big bunny coming very sooner so she better keeps getting better everyday... The boys and her Dad will be ready to see her without wearing gowns and gloves, huh duh!! WE will Pray for all of you to get together again to cheer Emerson up again. Hugs!!
Tracy
Now I see where Emerson gets her fighting spirit from. Go Mom!!!! you have every right to be tired and cranky. You are amazing and even though your boys may not see it now..they will one day realize how difficult the choices you make are. They and Eme are so lucky to have you as a parent. Stay strong and don't change the tone of your blog for anyone.
sandra - New Zealand
i read your blog every day- sometimes more than once a day...and am always amazed at your strength your determination and above all your bravery in "putting it all out there" for all of us to read. NOBODY has the right to comment on the decisions you make for your family. NOBODY who hasn't been in your situation can possibly know or understand how you feel, so I am pleased that you have such dear friend to weed out the rubbish and negative comments from those who think they know best. I am constantly amazed by you and your family and by Emersons strength. stay strong and know that there are many of us out here hoping praying and supporting you and your family
Lori (Jadensmom from liverfamilies)
Just want to send my prayers, love and give you a big (((((((((hug)))))))))!!! I check your journal every day and I have lots of HOPE for Emerson!
Lisa and Aiden
OK so I am commenting twice in 24 hours. I just want to say, I shall be borrowing what you just wrote for the event I need them on Aiden's page.(which I will) There are days when the critism comes and the 'advice' isn't welcomed and I just want to throw in the towel and get rid of the page. I can't describe WHY though, it is something I need. I need to be able to be real, to put on paper, to share and know what happened. Because somedays, I think if I don't get it out.... every horrible image, might just get stuck. Stuck in my head, stuck in a place that I need room for the HOPE. Erika, I come to your page daily. Not always replying but always reading. When I see your words, I feel like kindred souls. Your girl has faced so much. One day at a time, we have faith. We love you guys! We are believing in her full healing and recovery. It will come. xo
Christi & Caden
Erika, I have to say that your last two post brought a smile to my face, strange..yes I know but, I can hear/read how determined you are to do what's right for Emerson and that's a great place to be and to HECK with anyone else! Keep up the great work, Erica...You are doing a great job and every child should be so lucky as to have a parent just like you! Sending our love and prayers from many miles away right to You and Mrs. Emerson! :)
Liz-
strength, and courage...something that you and your entire family have in unbelieveable amounts! as a mom, I hope that when crisis arises, I am able to do as well as you have done. I have been reading this blog for a very long time, and when the times get tough, Erika, you always amaze me. you are an inspiration as is Emerson~ sending you blessings and prayers!
moirasmom
continued prayers. hugs Erika. Sending thoughts of Hope!
Stephanie
Praying for your little fighter! I found out about Emerson through Ashley's story several years ago and have prayed for both little girls every since. I know you dont know me but I check both blogs daily and pray daily that they will win this battle!! One thing I've seen over and over is these two little ones have alot to teach us about never giving up! Praying for renewed strength and healing!
Amy - IL
So happy to "hear" you sounding a bit more up today. Prayers continue as always and never giving up hope that the next time you post it will be with all sorts of positive news for you and Eme.
Wendy Parker
I found y'all a while back thru Ashley Kate. I pray for both little girls and your families. I hope our thoughts and prayers are a comfort. The outpouring of love and prayers is amazing. As for the negative stuff I have one word I learned from Mary Kay, NEXT! Best wishes and love to you.
Danielle
I am so glad to read that you have friends who delete negative messages. It makes ME so upset and angry to read those, I can only imagine how your friends feel or how you would feel reading them. I check the journal every day, and it isn't always easy for me to hit enter because of my anxiety over what I might read. To be in your position is just about unimaginable and like so many on here have said many times you are a hero to me. For your advocacy of your daughter, your strength, your love, your endurance. I too still have HOPE and will be here "with" you and Eme no matter what. I'm sending prayers and positive healing energy and strength your way. Danielle
Laurie & Shania
Hi Erika, I sent you a long message last night and it didn't go through. I admire you so much what you've had to endure the last few years. I can't even imagine how uncomfortable and tired you are spending your days in a hospital room day after day. You have always made Eme feel like she's at home by fixing up the room and decorating it so that your both comfortable! You have every right to get crabby you have to be so uncomfortable wearing gowns & gloves. Hopefully not too much longer! Eme is your fighter as long as she continues to fight, then we will always continue to fight with you! Eme has shown everyone what determination and fight is all about! She's your little Miracle Trooper!! We're praying that Eme starts turning the corner and starts healing! You have an amazing family so keep up the faith! Just ignore the negative comments. Until they've walked in your footsteps, they'll never understand! I wish I had a majic wand to make things perfect and take your pain away. So I'll continued to pray for knowledge and expertise for the doctors and nurses that are treating Eme! Your family is always in our prayers! We continue to pray for HOPE & HEALING!!(((HUGS)))
Mickie
Praying for you daily. No judgments here, just love.
Tracey Hill Nies
I have some choice words for those with negative comments, but will keep them to myself. Erika, you know Eme better than anyone. Eme has proven time and time again how much will she has. You as her advocate have helped her fight and prove she can overcome HUGE hurdles. Don't let them get you down. You know in your heart you are right. Stay strong, Eme! Stay strong, mommy! XO, T
cristina ogle (emily Whites sister)
Erika-I read often but rarely write-it seems my feelings are usually stated better by many of your other readers...but my family-my daughter Taylor and husband Eric and I keep you all in our prayers constantly. We pray for strength for all of you-eme,you,the boys and Jim and the Doctors to have the wisdom to heal Eme.....I wish that we could do more but know that you all are in many peoples prayers down here in jax!!!!
Tifanny from Denver
Sending you lots of Hugs and prayers Erika! And of course to precious Eme too :) <3
Valerie Reinhard
Erika, I'm not entirely sure how I ended up here at your blog, but I just wanted to let you know that I'm praying for your sweet girl and your family! I check in daily now, and am continually amazed by the strength of your daughter, you and your family. Emerson is such a cutie! Know that prayers from Oregon are continually coming your way. ~Valerie Reinhard
Deanna Bingley
Erika, I'm so grateful you rarely have to read any negativity on this blog (a big thank you to those friends in Colorado who make sure of it). I find myself fiercely protective of you and Emerson and it makes me so angry to read insensitivities. I once walked a 5 day path of medical crises with my daughter and I'm truly amazed at your ability to overcome, persevere and smile. I know every day is not easy, but like you said today is a new day. I have many children's DVD's that are no longer watched and would love to send you some "new material" :). What are Eme's favorites these days? Sending Many Hugs and Prayers, Deanna
Amy from NJ
I have been following your blog for a long time, but have never left a comment before, but today I feel compelled to do so. My heart aches for you and your family. I can not even imagine how hard this is for your whole family. I can not believe there are people out there that feel the need to say negative and hurtful things, that is just unbelievable. (Although I certainly believe it.) I am so happy to read that you have friends that keep tabs on the comments, what a wonderful thing for them to do! I bet there are many, many more people out there that are like me and read regularly but never comment....and we are routing for you and Emerson, and cheering you on. I think of you often during the day, and just pray Emerson is feeling better each day. Hang in there! I am just so in awe of what a wonderful mom you are! Your strength and perserverance are inspiring!
maggie
Nothing but love and hope from south florida.. xoxoxo
Maria
ERICKA I keep you and your family always on my prayers,ignore those negative comments because you are a great, great, mother who has to split your full of love heart,you are @ the right place. God bless you all your family and supportive friends.
Lori from CO
Always thinking about and praying for Emerson, for you and for Jim and the boys as well as all those who are supporting you- for continued strength, hope and courage. Even though we haven't been through transplant yet my short gut/CVID/PSC/HHT/FAP mom self can understand all the technical info and relate to quite a bit of it- so I for one appreciate all the technical info- helps me to pray for specifics and that is my own way of feeling like I can do something for you. I pray that when you are home in CO I can do something more for you.
Just sayin'
You don't know me, Erika, but I've been following since the beginning. I ADMIRE you so much. Lord knows no parent should have to endure what you and your family have. Emerson keeps the fight going. What a precious gift of life she is for all of us, especially her family. God knew you would support and fight for her no matter what. You're a blessing to her and so many others. Thinking of you always, and hoping you get Eme to the zoo soon!
Kristel
Hi Erika, I have been following your blog for quite some time now. You and your family have found a way into my heart. I think of you often. Everytime I read your blogs I am taken back by the amount of love and patience that fills these pages. You are a wonderful mother, and an even more amazing woman. I keep you in my prayers daily. Sending you and Emerson hope, prayers, and positive thoughts from Chicago. Get well SOON Emerson you have lots of people rooting for you! Sincerely Kristel
James Cains
Bravo, Erika, bravo. As the father of a little girl who had a liver transplant when she was a baby, I have always thought that people who have never gone through something like this will never truly understand what it's like. And while our journey through transplant hasn't been nearly as trying and difficult as yours, I understand the desire and the need to fight for the life of your child, to do anything you can to save her. As parents, this is what we do. Emerson, you, and the rest of your family remain in our thoughts and prayers always.
Brenda Cartwright Grose
I feel your stress in your blog.. Bless your heart I can't imagine how hard this must be. I can imagine that it would be difficult to go throught his day in and out. I am praying and praying for all of you. What a tough time however if it's worth anything I admire your strength. God Bless, Brenda Cartwright Grose
Carolyn O'Cain
I'm so thankful for the privilege of "knowing" you and your family. My prayers are fervent and from my heart. I will gladly storm the gates of Heaven for each of you. I will gladly help bear your burdens. My heart and prayers are with you always. In His great and mighty love...
Rebecca Fleming
I'd be cranky too. Either that or sitting in the corner talking to myself... with one of those ever so fashionable jackets that fasten in the back that trap your hands on the inside. :o) From the outside looking in, you are remarkable. Strong. Praying today is looking better. I pray Emerson is feeling better. I pray for some sign of improvement. You guys have been hit down time and time again as of late. Just a little good news is bound to lift everyone's spirits! Im praying for that today. Im so sorry. It is horrible when bad things happen to us... but when they happen to our children... it is just unbearable.
Gwen
Erika- I'm thinking of you and your family and sending lots of prayers up for all of you. Hang in there. I can't imagine what you are going through right now, but I hope brighter days are right around the corner for all of you.
Tifanny
***HUGS*** Never giving up HOPE!
dais and joey
erika, you are fabulous in every way. your honesty is beautiful. you are real. what a model... today is sunny, warming up (again), birds are chirping (again). i pray that the external world will be a reflection of emerson's internal world. love us
Trish Adams
You my dear friend are the example that all mothers should aspire to be. Kind, Selfless, Solid, Encouraging, Dependable, Loving, Strong. I could continue describing who you are, but there is no need. YOU know who you are. Emerson knows who you are. Those who love you know who you are. As always, you have our full support. Erika, "they" will never get it. I pray to God that "they" never have to get it. Its only by His grace that "they" are not sitting where you are. I so wish "they" could realized that. If "they" did "they" would humbly offer words of encouragement and wouldn't dare utter one criticism. May God give you rest today, strength for what lies ahead, and hope for Emerson's tomorrows. Sincerely, Trish
Sue S
Praying that you were able to get some rest. Praying for Eme to begin healing. Praying for Eme, you, Jim and the boys to be very aware of God's peace and presence. PS I have been a RN for 34 years and can NOT imagine how miserable it would be to live in a yellow gown and gloves. Bless your heart. Not to mention, not to be able to feel your baby's skin. Praying so hard for all of you!
cindi albrightson
Erica, I am a daily reader, but not commenter. Hang in there! Do not let others slow you down. They are not in your shoes nor do they know what is best for you! Praying in OK Cindi
janice terry (hanna)
You deserve nothing but love and support. The rest doesn't matter.
Maria Connely
Erika, When we bring our children into the world, they become our priority, everything else is secondary. You are living proof of the extremes we go to for our children. I have only hope and encouragement for you, you both deserve to be home, and god speed you will be when Eme is ready :)
Jenny K
Not even sure what to say except you are loved and Eme is loved and just praying for answers from a Lord that loves Eme even more than you (as hard as that is to believe). You are an amazing woman. Accept that.
Kris ( Palmdale, CA)
Sending my thoughts & prayers for the strength for you Erika & Em. This is a very rought road for your whole family and I wish only the best for you all. She's in good hands and you have been an amazing mother to her.You guys have been on my minds since day one and I have followed you through this journey since her first transplant. I'm so sorry for what your going through and my heart goes out to Em & you as I do believe & still have Hope. God Bless you & the White Family and God's healing hand is upon Em lil body. She is an amazing little girl and such a fighter. Hang in there!
Mitzi in Maine
I am so sorry you and Em and your family has to go through this. I can't imagine, I can only pray for her. She is just so amazing. I don't blame you for your eyes burning, or being tired. Don't be so hard on yourself, what you go through is sheer unbelievable, and really unexplainable ( although you do a great job writing). That pumpkin of yours is in for the long battle and I wish I could help you more.
Sara (sarajack from LF)
I have no idea who posted/said what....but know Erika, that the majority support you and Emerson. I would be fighting for my child no differently. Until "they" are ready.......I would keep going just the same. I check in multiple times a day....I don't always get a chance to post here, but wanted you to know that you are in my thoughts and prayers. I have so much respect and admiration for you...I honestly I don't know how you do it....but every day you keep going. Sending as many **positive vibes** as I can... xoxo Sara
Michelle Lindemann
Just want you to know I still have HOPE....right along with you, Erika! Praying hard everyday and feeling so bad that it's all I can do. Hang in there! Big hugs and extra goodvibes being sent your way. ;-)
Jenn Y.
All I am sending you today is lots of love... there is nothing I can say or nothing I can do to ease this for you or for Eme. I can and will continue to pray and have hope, but tonight, am sending just love.
leslie
Erika I am praying that your night went smoothly. I am still praying and still have HOPE!
Jamie Nobles
Praying for you and for Emerson.
Lynn in St.Louis
I am so sorry to hear of the events of the last 24 hours. I sure hope today is a better day and Emerson's little body can start healing itself. I pray for strength and healing for her today. Try to take care of yourself too, Erika. I really don't see how you do what you do. You are SUPERWOMAN for sure! Thank you so much for sharing your life with us. You are your family are amazing!
Vito and Ladea Dante
Our thoughts and prayers are with you. Don't ever feel like you have to justify anything to anyone. You have opened your heart to us all. Your heart is safe with us. We are here to support you 100%. You are the best mother in the world. You have made every decision with Emerson's best interest in mind. We are full of HOPE for Emerson and for your family. God Bless You All.
Jennifer
Prayers for Emerson are going up from Birmingham, AL. May all my guardian angels be at her side right now as she continues to fight!
Michelle
I read every entry and I'm sorry I don't comment often. I pray for you both all the time. I simply cannot imagine the life this has put you in. I am praying today for comfort and a peace for both you and Emerson that only God can give. Hang in there. We know you are the best mama for the job and you do everything with her best interest at heart! That is so clear in your writings! Love from Tx.
Annalise
Sorry that your going through this, sorry for Emerson, sorry that you are having to be gloved and gowned to be around your daughter. I think that must be the toughest. I wish I could do more then just say my prayers are with you......always thinking of you both..prayers that answers and new routes to fix things come forward.
Lacey and Jaxson
I hate that you have to justify what you say, because you know you'll get stupid comments! I've done that on my blog before, and my friend always tells me not to do that, that if people don't like it, then they don't have to read it! We can't judge a dang thing through the computer screen. I've sat for months in a hospital, not near as many times as you, and I lost my mind. Its no way to live and I can't imagine doing it in another state from my hubby and other children. Always fighting with sweet Eme, as long as she continues to fight. Your doing a great job Erika and we are all amazed at your strength!
Cathy
Prayers continue...
Beth Jones
Erika - Thank you for continuing to post your ups and downs through this journey and for being so honest and brave and allowing all of us a peek into your life and thoughts. Please only hang onto all of the positive words of support and hope coming your way ... because there's so much of it! You and your family are always in my heart and mind.
Kerin
And another thing, it would be different if Eme was being supported with a ventilator and pressure drugs. She is breathing on her own and her vital signs are stable. There is no "plug to pull". As others have said, keep you negative thoughts to yourself. Until you walk in her shoes - you have no idea. Praying!
kerin
Only the parents will know when enough is enough. No Mom would put their child through this if there was no hope. Praying things will get better. You are an awesome mom. Fight for your girl. When there isn't any hope, only you will know. These women who commented do not understand that children are able to come back from things that seem impossible. She is fighting for her life and when God decides it's enough, then it will be enough. Mom's like you and Trish are a blessing to us all.
Amy - IL
Sorry you are having a rough day, you are allowed to be tired and cranky let yourself feel it, I'm sure the RT understood, after all she/he gets to walk out the door and ditch the gown and gloves. Praying that you have an easier day, that Eme starts to feel better and things start to heal and look much better soon. Praying that those with nothing supportive to say will just go away you certainly don't need their negativity around. Never giving up hope.
Lynn
Dear Erika, I have hope for Eme and I am holding on tight to it! I am so sorry a couple of women who commented in your guestbook are incapable of embracing hope. I am deeply saddened by this. They have not walked in your shoes. None of us have. They have no right to say the hurtful things that they said. Erika, I want you to know that your example has been a true blessing in my own life. Your ability to fight for your sweet daughter and KNOW that she is also fighting is nothing less than inspirational. I know she is fighting too! And you have blessed so many of us, simply through your example. My husband and I have been dealing with well over three years of infertility and recurrent miscarriage. You have unknowingly helped me through some very difficult times in my life. In NO way am I comparing our circumstances. But your inspiring example truly helped me to step outside myself and realize what is most important in life. When I would be walking in my own world of grief, wondering if we will even have a child here on earth, I would read your words. And I was inspired. You have inspired me to live my life to its fullest, just as you are doing yourself. You inspired me to not live in my own self pity but to be my best. And you have taught me to continue to hold on to hope. So I am doing just that. I am holding on to hope. Nothing is impossible. I just want to thank you for inspiring me in my own life. I have absolutely no idea what this has been like for you. I cannot relate at all to your situation. But, even though our circumstances are completely different, you have made a HUGE difference in my life. Emerson's willingness to fight has made a difference in my life. I have hope. Hope for Emerson. And I am going to continue to embrace it. I am sending lots of thoughts and prayers to Emerson, to you and to your family. Lynn
Thank you for sharing such a personal story... I'm so honored & touched to think I've somehow helped. Thank you!
Julie
Praying for you all! Hope you were able to get some rest last night.
Lisa and Aiden
I am praying my friend. We have full faith in Emerson's recovery. This is such a trying time..I am just going to focus on the way she smiled in that picture to the zoo. She is a fighter, a brave warrior. Take each day at a time. Love to you!
Kim M., St. Louis, MO
Kate: thank you for expressing my thoughts, both to the alleged Nicole and Carrie, as well as to Erica. It's a wonder how they can live with themselves, responding as they have, in the midst of all the HOPE surrounding Eme. Heartless (and hopefully not Mommies). While I don't think they deserve ANY attention, and hope the comments made to them by you and others do not encourage them further (sometimes a "delete" to these folks is best), I do appreciate that you so eloquently expressed the same thoughts of anger I was feeling as I read the posts this morning. Your post made me feel better, and allowed me to move on, without the urge to respond to those two, and get my prayer and focus back in the direction it belongs. So, thank you, Kate.... Erika: Today I begin my first day of volunteering at Cardinal Glennon Children's Hospital in St. Louis. I am excited! While this has always been a passion of mine, my motivation comes from YOU. My medical background and experience permits me to work directly with patients and their families. While I know you and Eme are too special to find someone just like you, I know there is a family right here in St. Louis that is facing similar challenges and medical hardships. I hope to be able to help them, as I have only wished I could do for you on some of your darkest days. Continued thanks to you, Eme and your entire family for spreading H*O*P*E. You are loved and admired, more than you know.