Saturday

I’m going to start with the good news from today.  It's my best chance of controlling a nervous stomach this morning.  Emerson’s vital signs are stable.  She is sating mid 90s with no O2 support and her blood pressures are good.  That’s all very, very good news right now…

Unfortunately, that is where the good news ends.  Eme’s had no pain meds since 1AM (12 hours) & she hasn’t stirred.  Not once.  We’ve changed her central line dressing site, done a chest x-ray, multiple docs have removed her wound dressing & poked at her wound… nothing… she hasn’t even moved a finger.  It’s not hard evidence, but is enough to make my gut think something is very wrong.  Or headed in that direction.    

The drainage from Eme’s wound is increased this morning and her white blood count over doubled last night.  She’s been on very strong antibiotics for 5 days now.  Things should be markedly better, not worse.  Her wound has cultured an extremely resistant pseudomonas that, as of this morning, they still hadn’t been able to identify any susceptible antibiotics to treat with. 

My greatest fear right now is that the infection has crossed barriers from her wound into her blood stream.  As the doctor said this morning, that would be a “devastating” scenario.  He said she looks septic.  I agree, but she’s not tanking.  She’s stable for now… my greatest prayer is that that will continue until she’s safely to Omaha.  If she should decompensate before the flight team arrives we may have lost our window of opportunity to transport.

She’s flying to Omaha.  ASAP.  They have a wonderful, competent team here & I’m confident they can manage her through a crisis.  Should this wound need any surgical treatment, though, they will not intervene.  We need to be in Omaha with the team who knows her best.  God willing we’ll be there tonight.

My greatest hope is we’re all over-reacting and she’ll be up coloring again tomorrow morning.  I’m just not sure, though, & my overwhelming sense today is better safe than sorry.  As confident as I was declining transfer yesterday, I’m equally as comfortable accepting it today.

It’s really interesting for me to analyze my thoughts & feelings over the course of this week.  Indeed intellectually I know this cannot go on forever… Emerson & our family cannot live like this indefinitely.  Intellectually I don’t want this to go on and on and on for a few good days here & there.  I don’t want to live in a hospital – I don’t want that for Emerson & I don’t want that for our family.  I asked God to take the weight of this from me & to make the decisions clear.  Staring in the face of a potential crisis, though, I again find myself losing all composure.  The reality, when push comes to shove, is I just want her here.  With me.  Wherever that may be.  And the reality is I do want God to take the decisions from me, but only if His plan is for her to make a complete recovery and live a full life here on earth with her family who loves her so, so much.  I just don’t know how we’ll manage in this world without her.

She’s pale & shivering.  Her temp has spiked.  Her heart is racing.  Her blood pressure is falling.  They’re pushing a fluid bolus of albumin now.  We’re all hoping it’s a med reaction to a new antibiotic they just started.  Please God get her to Omaha.  Please God make this all a distant memory soon.  If only life came with a crystal ball… looks like I should have accepted transfer yesterday. 

I was very happy to find this

I was very happy to find this internet-site.I wanted to thanks in your time for this excellent learn!! I positively having fun with every little bit of it and I've you bookmarked to check out new stuff you blog post. ged english ged preparation online ged test application online ged class free gmat preparation gmat essay questions gmat exam preparation gmat exam schedule

I just can’t stop reading

I just can’t stop reading this. Its so fresh, so filled with updates that I just didn’t know.
I am delighted to see that people are in fact writing about this subject in such a elegant way,
presenting us all diverse parts to it. You’re a fine blogger. Please carry on with it.
I can’t wait to read what’s after that.Thanks so much fo                                                        
Testking VCP-511 Testking 640-864 Testking 70-667 Testking 642-447 Testking 1Y0-A19 Testking 1Y0-A18 Testking EX0-101 Testking JN0-101

Praying

Erika I completely agree with "Toni"! You made decisions for yesterday with the information you had yesterday. Today you are making decisions based on information you have today. You are providing the very best for your daughter and I for one commend you for your vigilance in her care from day one. Please know that your family is prayed for, probably around the clock if all the time zones are included.
I for one did lose contact with your blog when things changed. I was so very worried when I couldn't check on you guys. I finally decided to Google Emerson and found you again. I will continue to follow you as long as you choose to share your family. I hope this finds you in Omaha and Emerson is stable. Sending lots of cyber hugs and many, many prayers.
Kim

Praying for Emerson!

Ericka,

I just want you to know (and I believe I'm speaking for M-A-N-Y) that since the blog has been hosted on the new website, I have not gone away.   I've been reading every post and praying every day.  It's just not quite as user-friendly as the previous site was.  I really don't think you've lost readers and certainly not prayer warriors.  I'm still here, and I bet everyone else is as well.

Oh Ericka, if we could see it all through God's eyes and plans.  But we can't (and in many ways, it's good that we cannot see our days ahead).  I read yesterday and completely understood why you didn't want to life flight Em back to Omaha.  It very much made sense to me, as do your doubts today.  We're humans, flawed and sometimes fumbling to see how the fragments of our lives fit together.  You did the best you could for yesterday.  Give yourself complete permission to feel differently today, even if you cannot change certain things about this day. 

I will be praying for Emerson to stabilize and for a safe trip back to Omaha.  And I'm praying that God will uphold you with His supernatural strength as you face this head on.

Oh God, please get Eme safely

Oh God, please get Eme safely to Omaha soon! I pray that things will turn around and Eme will wake up and start playing again. I do know that when I've had to make a difficult decision on whether to do treatment on Jax, all of my friends that have lost a child say that they just knew when it was time. They felt calm and at peace. I've never had that feeling yet so I will continue fighting. I pray that you get the feeling you need with Eme. If you don't feel calm and at peace, it may not be her time yet.

Have a safe trip!!

Erika,

I'm so sorry that you have to go through all this. Hope you'll be in Omaha soon! Praying for a safe trip and that Eme handles the flight without any problems! We'll be saying extra prayers for your family! (((HUGS)))