Tuesday

Emerson went to the OR for a scheduled procedure this morning – replacement of her perf drain & placement of a (new) triple lumen central catheter.  The procedure went well, but they were unable to extubate her post-op.  This is new territory for us… Eme has never not extubated after a scheduled trip to the OR (with the obvious exception of transplant and other incidences where it was pre-planned otherwise).  It was a surprise for sure.  The PICU docs expected to pull the breathing tube shortly after she arrived on the floor, saying she simply needed a bit more time to “wake up”.  It’s evening, though, & Emerson remains intubated… on NO sedation (no versed, no fentanyl – that’s never happened)… & not breathing over the vent, barely initiating any breaths at all on her own.  She’s tired.  They’re increasing her vent support now.

She continues to pee buckets & lose large amounts of electrolytes in the process.  Again we chased potassium & magnesium replacements all day. 

In a surprise turn of events, the bug she’s growing in her blood was identified today as a relatively susceptible organism… susceptible to everything she was on.  She’s not improving though.  It doesn’t make any sense to me at all.  I highly suspect something else will turn up in the next several days – either a slow growing yeast in her blood or something with her bowel.  Some here are pleased with the news of this susceptible bug.  I, actually, am anything but as it leaves me pretty certain we’re missing something. 

The only other explanation I can come up with is that Emerson is finally growing tired of the fight.  I really don’t think that’s it, but if this bug is all they find there’s no other way to explain her reaction to it.  She’s had bugs umpteen times worse than this & has not been this sick or required nearly this much medical support. 

My greatest hope is we can stabilize Eme and transfer her to Denver to finish up treatment there.  That’s what I’d like more than anything tonight…  I want to take her home… 

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Plymouth Grand Voyager Fuel PumpHi. I've been taking the Mirafit religiously since I received it but I don't know whether it's doing anything or not. The only thing I feel is gassy and constipated. Do I need to take it longer to get results? Of course, I just got off some medications that could have been causing the other things too. I will continue to take it just because it has such good reviews. I guess I'll know if it's working when I weigh in next week

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Do I need to take it longer to get results? Of course, I just got off some medications that could have been causing the other things too. I will continue to take it just because it has such good reviews.

Emerson will you be able to

Emerson will you be able to take her home to be with her dad and brothers? I sure hope so. search engine seo, web design firm, website design services

Sending my best wishes out to Emerson

Hoping Emerson can extubate soon and you can take her home to Denver. I'm sending best wishes that she will get some energy back and this will help to treat any bugs.

Hoping Eme and your whole

Hoping Eme and your whole family can feel all the warm love being sent your way. You are a lucky mother, she is a wonderful little girl.  She is a lucky little girl, you are a wonderful mother.

Sending True Love,  Jane

Sending strongest prayers

Sending strongest prayers that you get home to Denver. You are in my thoughts every day.

God loves Eme and it is to

God loves Eme and it is to Him I appeal on her behalf.  Praying for you and Em to be going home soon.  I wish there was more I could say but there just are no words.  Know that you are prayed for, Ericka.

Blessings,

Toni 

with love and prayers

Erika, been following and praying for some time now.  Quietly loving your family from afar, and tonight I share with you a most favorite prayer passed to me from my loving Nana.  I hope it brings the warmth and comfort it is intended to bring. Kate.

Watch, O Lord, with those who wake, or watch, or weep tonight, and give your angels charge over those who sleep.
Tend your sick ones, O Lord Christ.
Rest your weary ones.
Bless your dying ones.
Soothe your suffering ones.
Pity your afflicted ones.
Shield your joyous ones.
And for all your love's sake. Amen.

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Erika,

The last thing I want to be is negative in any way, but I feel the need to ask...if this is truly it for Emerson will you be able to take her home to be with her dad and brothers? I sure hope so.

Love and prayers always,

Robin 

Hoping you make it home with

Hoping you make it home with your baby girl, 

much love from st. louis