Weekly Update...
School started this week (for me) & I’m up to my eyeballs in reading, and functions, and scientific notation, and periodic tables, and… Yikes!! I’m oddly enjoying it, though, & much to my surprise am really having fun with Chemistry. I’ve even found myself awake into the wee hours of the morning lost in Chemistry equations… wow, very uncool - now how’s that for some honesty?!?
Emerson continues to amaze us all with her on-going stretch of medical stability. She is decompensating in the late afternoons each day & her coloring has been off, but blood work ordered last week uncovered a severe iron deficiency. I’m hoping that once we correct that problem she’ll perk up again. That aside, she’s happy as a lark!!
I've always said I’d never confine Eme to the house… that I’d consented to transplant to give her a chance to live. I've always said that I’d choose quality of life over quantity of it. I've always only wanted to give her a chance to be a little girl. How easy it was to have such idealistic thoughts when I wasn't living in the situation. The truth, now, is the only way I can keep Emerson out of the hospital is to do exactly what I said I never would – keep her home. And thanks to the help of 3 skilled nurses, that’s exactly what we’re doing. Much to my dismay, she’s confined to the house. She pretty much never leaves. At the end of the day, though, I’ve come to the conclusion that life at home is better than life in the hospital & those, sadly, are her only two options. Life in the “real world” just isn’t a possibility for her right now. I’ll say this, though – she doesn’t seem too bothered by it. I’m not sure she even knows there’s life beyond these walls, and I’m not sure she really cares. She’s happy… and when it’s all said and done isn’t that really all we want for our children?
Until next week…
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