We’re back at the apartment & running around trying to get ready for Eme’s Make-A-Wish trip on Sunday. The team is behind us this time & it looks like a GO (shhhhhh, still keeping it quiet – we all know how quickly things can change)!! All in all, Eme is looking pretty good, although she continues to battle problems associated with her Addison’s disease. She desperately needs to be seen by an endocrinologist, but thanks to good ‘ole hospital politics and red tape has been unable to get the timely help she needs. It’s a very long story that has me very upset this week. Emerson’s survived 2 multiple organ transplants and now is dealing with a life-threatening (yet very treatable) endocrine disorder… she needs pills and I need direction. That’s all. But somehow the doctors here are unable to make that happen for her. It’s beyond frustrating. She currently has an appointment to be seen on March 15th. Until then, the endocrinologist has given vague instructions (relayed to me by the team) on how to treat her. I sincerely hope she’s able to get through this trip without the medical attention she so desperately needs.
The boys were here last weekend & we had a fantastically furious timeJ. We caught a UNO vs. U of Mich hockey game, made heart shaped cereal treats, shopped for & put together Valentine’s baskets for our special friends here (we’re hanging tight to yours, Emily, & hoping to cross paths soon), saw an IMAX movie, served lunch at an outreach mission, and even got a behind the scenes tour at the Omaha zoo! It was amazing!! I knew Collin would love it, but was surprised by how much I enjoyed it. It’s really fascinating to see what happens behind (& underneath) the exhibits at a zoo!
Right now I’m looking at a giant mess & a long to-do list and trying to decide where to start. I’ve been managing on very little sleep with the sole aid of Advil PM. Without it, I don’t think I’d sleep at all. Emerson’s schedule is insane… honestly. I’m not sure how I’m going to get everything into suitcases and on a plane, but I’m sure it will happen. It always does!
I’m looking into options for private duty (private pay) nursing here in Omaha. Unfortunately our C OTA account has run dry. I’ll update everyone with some fundraising things we have in the works (hopefully before we leave this weekend).
T minus 3 days and counting (fingers crossed)!!!
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